my husband (and I) are having a horrible time sleeping lately. He's the lymie..Only at night he complains that he can't get comfortable. No pain. Just "weird" feelings under his arms and all over his body. He has full body twitches. Just can't get to sleep because he can't get comfortable with all this stuff going on.
Anyone have these problems???? We really could use some sleep!
Posted by elizzza811 (Member # 24713) on :
I have a horrible time trying to fall asleep, too, no matter how tired I am. I'm either too cold or too hot, have MAJOR restless leg. I'll have brief shooting pains through the cartilage of my ears and outer portion of my skull. I'll clench and grind my teeth...
I found out I'm having seizures though, so I'm guessing this is related? I'm scheduled for a 24-hour EEG because of my seizures. Has he ever had an EEG?
And this may sound crazy, but have him check this daily for a while...whenever we're inside solar windstreams I feel worse? I'm not joking! See my notes below, and THEN tell me I'm wrong...
*Read the forecast daily for information on upcoming storms. But whenever the field is forecast to be 'unsettled' or 'active', my symptoms increase, usually from earth-directed high-speed solar windstreams.
*Also, pay attention to both the Solar X-ray FLux and Satellite Environment Plot graphs.
Solar flares often improve my symptoms.
A 'jaggedy' blue Electron Flux line can sometimes cause me to start sleeping better, or at least feeling better overall. I definitely feel worse when the blue Electron Flux line remains basically straight.
And days when the Estimated Kp graph bars turn yellow or red (instead of green), my symptoms increase.
*Lack of sunspots or sunspots containing magnetic filaments make me c-r-a-z-y ill.
Seriously though...I'm having seizures, so maybe I'm weird in being able to feel solar and geomagnetic activity? But I'll bet others here can, too. Check these four websites daily, and I'll bet you notice a correlation! I'm TOTALLY serious.
There have been days my symptoms have increased astronomically and nothing different was showing on any of these pages, but then the following day Space Weather posted an article about a magnetic filament that had erupted the day before. This has happened too many times for it to have been a fluke.
Posted by momlyme (Member # 27775) on :
My son used to have those full body convulsions (or twitches) I never could bear to call them seizures... but they very well might have been short seizures.
I was giving him magnesium, but it was a poorly absorbed form of magnesium... called magnesium oxide. Most of the magnesium supplements you find in drug stores are this type.
I switched to magnesium citrate... but I hear (on these boards) magnesium taurate is better absorbed. Also looking into a transdermal magnesium oil to avoid the GI track completely.
I saw some improvement with the switch to mag. citrate... some reduction of tics and twitches and the full body convulsions were gone. I wanted to get rid of all this neuro stuff, so I kept researching magnesium and absorption.
I read a book that suggested magnesium was best absorbed in this ratio: 2 parts calcium gluconate to one part magnesium carbonate powder in an acid base (either vinegar or vitamin c)
I was looking to buy the powder supplements separately when I found a company that makes a CalMag Formula with this exact combination.
Since my son has been taking this, all the tics, twitches and convulsions he had are gone.
Thank you both for your ideas. I will try anything. I'm exhausted by morning and I honestly don't know how he makes it through the day! He was diagnosed with ALS 4 years ago and sometimes that makes me wonder...is it lyme stuff or ALS stuff or both! We choose to say that he tested positive for lyme (no matter what the insurance company says)...we can't say that about ALS(again..no matter what they say). Again, thanks and we'll give it a try. As for the space weather...I will DEFINITELY check it out. I know for a fact that he feels worse on poor weather days.