I was diagnosed with childhood benign epilepsy, tic disorder, ADD, generalized anxiety disorder, chronic gastritis, IBS, lactose/food intolerances, ocular migraines, TMJ, and mild scoliosis (obviously not caused by Lyme, but it was blamed for the back pain).
Other things that might be related are iron deficiency anemia and vitamin D deficiency.
They could never figure out a diagnosis to explain the joint pain, fatigue, and brain fog.
[ 01-27-2011, 12:42 PM: Message edited by: exdancer ]
Posted by 365SunnyDays (Member # 29969) on :
Myasthenia Gravis (autoimmune neuromuscular disease), Alopecia Areata (autoimmune hair loss), neuromas in feet, Chronic Fatigue Syndrome, hypothyroidism, insomnia.
Posted by Tracy9 (Member # 7521) on :
NOTHING.....it's all the crap I've been diagnosed with SINCE I've had Lyme Disease, including Myasthenia Gravis. Having had a bacterial infection for so long has caused me a ton of other issues.
Posted by RubyJ (Member # 28711) on :
And don't forget the ever popular diagnosis of "it's all in your head. You must be stressed."
20 years ago, after telling me the results of my first MRI on my head, the doctor actually patted me on the head and said, "Don't worry, it's just your nerves." He was talking down to me and saying there was nothing wrong. He didn't know how right he was - it IS my nerves. Nerves attacked by spirochete critters.
Posted by katiebobatie (Member # 28753) on :
one doctor diagnosed me as bi-polar when i told him that i have a few okay days, and then a few really bad days. my therapist assured me i was definitely NOT bi-polar... surprise!!!
at my last appointment when i asked for a diagnosis, but llmd said "i don't know, ecoli" ... yes, i have had ecoli for over 8 years, and have no symptoms of it... that makes sense! *rolls eyes:
Posted by bcb1200 (Member # 25745) on :
Diagnosed with anxiety, depression, gastritis, and labyrinthitis.
Posted by momlyme (Member # 27775) on :
chronic reactive arthritis, walking pneumonia, jawbone infection, it's all in your head, gallbladder attack, sphincter of oddi, it's nothing, hypochondria...
Posted by sutherngrl (Member # 16270) on :
Diagnosed with heart arrithymias(PAC's), depression and fibromyalgia.
Posted by MichaelTampa (Member # 24868) on :
GERD, irritable bowel syndrom, Tourette's, depression, general anxiety disorder, PTSD, yeast/fungus infection, leaky gut syndrome, chronic fatigue, benign prostate disease, who can remember all the non-diagnoses...
Posted by apljack (Member # 14233) on :
Vascular headaches, colitis, Raynaud's disease, GERD, sleep apnea, depression, "all in your head-itis", temporal arteritis, chronic sinusitis, chronic earaches, hematuria (blood in urine), osteoarthritis in neck, fatigue supposedly caused by motherhood & age.
Posted by bellajo (Member # 28738) on :
mono - over 20 yrs. ago, stress, anxiety, Epstein Barr Virus, hyperthyroid, hypertension, high cholesterol
Some are real problems I do have. They were caused by the Lyme.
Posted by sixgoofykids (Member # 11141) on :
Paryting too much. I was in college, and the doctor assumed I was fatigued all the time because I was always out partying, which I wasn't because I was fatigued all the time. I maybe got out once a week and drank about a quarter of what everyone else did.
Somatization Disorder.
In general, I was considered to be a hypochondriac even though I never was asking for meds.
Posted by seaweed brain (Member # 29547) on :
Fibromyalgia, Chronic Fatigue Syndrome, depression and anxiety.
Posted by Mickie Mouse (Member # 6261) on :
Chronic Fatigue Syndrome, Early Onset Menopause, Acute Anxiety Disorder, Organic Psychosis, Somatization, Hypochondria, Heavy Metal Poisoning, Epstein Barr Virus, Cytomegalovirus.
[ 01-27-2011, 08:15 AM: Message edited by: Mickie Mouse ]
Posted by PTrain (Member # 28773) on :
Fybromyalgia, IBS, arthritis.
Posted by kimmie (Member # 25547) on :
Daughter: ringworm, "immaginary lyme disease and maternal anxiety"
Posted by renny1985 (Member # 25222) on :
IBS, "crazy", "all in head", non specific autoimmune, colitis, crohns, GERD, gastritis, non specific inflammatory bowel, depression, TMJ, migraines, "adolescence", GROWING PAINS!, stress, possible lupus, possible porphyria.
Posted by tic chick (Member # 9156) on :
Tendonitis, Thyroid related problems which turned out to be cancer, migraines, vasculitis, perifial neuropathy and after multiple lesions on brain and spine, MS was being considered as the next Dx , although lesions were atypical.
Posted by Pam08 (Member # 19203) on :
First they kept telling me I had some sort of virus although no one knew what virus that would be.
Then after that I was told I had Post Viral Fatigue Syndrome and then I was diagnosed with Chronic Fatigue Syndrome.
7 years later I tested positive for Lyme and company.
Posted by elizzza811 (Member # 24713) on :
Fibromyalgia, Rheumatoid Arthritis (because of my consistently elevated rheumatoid factors), Irritable Bowel Syndrome.
But most of my symptoms, when I persisted with doctors in finding a diagnosis, were blamed on depression, anxiety, OCD, suspected anorexia nervosa, hypochondriasis ("it's all in your head"), or my favorite..."suspected schitzophrenia".
Posted by CherylSue (Member # 13077) on :
chronic fatigue syndrome
Posted by Marz (Member # 3446) on :
No diagnosis. When I asked if my symptoms could be Lyme, my MD simply said, "Oh you wouldn't want Lyme" and sent me out the door.
It took two more visits and nine months after first getting sick when he did an ELISA and it was positive.
In retrospect, I don't know why I stayed with him for a few years. There were probably no LLMDs here in 1992 and the concept was unknown to me.
Posted by onbam (Member # 23758) on :
"It's all in your head."
Posted by arkiehinny (Member # 26546) on :
Only thing I was ever diagnosed with was OCD.
About a year before Lyme I was diagnosed with Lichen Schlerosus and Hypothyroidism.
Posted by linky123 (Member # 19974) on :
Fibromyalgia, depression, anxiety, anemia, and my favorite, 'your bloodwork doesn't show anything remarkable.'
Posted by SashaC (Member # 18968) on :
Mono, fibromyalgia, "possible" MS, ALS, anxiety, depression, hypochondria, rheumatoid arthritis, chronic fatigue syndrome, sinusitis, anorexia, impacted wisdom teeth, post traumatic stress disorder, various other psychiatric problems and "there is nothing wrong with you."
Posted by triathletelymie (Member # 26456) on :
Possible thyroid problems...possible stroke...possible brain tumor...heart arrhythmias needing a pacemaker...'forget what else...
Posted by BoxerMom (Member # 25251) on :
Epstein Barr Virus, Copper Toxicity, possible Wilson's Disease, Heavy Metal Toxicities, Hypothyroidism, Adrenal Exhaustion, Chronic Fatigue Syndrome, Depression, Fibromyalgia, Hypoglycemia, Sleep Apnea, possible Ankylosing Spondylitis, Narcolepsy (Seriously? I hadn't slept in like 15 years!)
Posted by stngray114 (Member # 30295) on :
I was first diagnosed with sinusitis, then Meniers Disease, then advised that an unk. viral infection caused my hearing problems. I was finally diagnosed (clinical diagnosis, Lyme tested negative) with Lyme by my PCP, who specializes in Infectious Disease.
Posted by Starfall (Member # 26795) on :
Anxiety/depression and a MIDLIFE CRISIS!!!
Posted by randibear (Member # 11290) on :
fibro, myositios, depression, gerd, reflux, chronic anxiety, diverticulitis, you name it.
i've probably been diagnosed with it.
Posted by lymegal23 (Member # 28573) on :
I went to my primary care doctor and she looked right in my face and told me I was depressed and to go on antidepressants and go for more walks.
HAHAHAHAHAHA. ya. okay. I had a positive lyme test she kept telling me it wasnt "active lyme"
I then went to an allergist who diagnosed me with a rare form of "chronic sinusitis" because I didnt have any discharge just pressure all around the sinuses. I took flonase for a week and it did NOTHING so i stopped
Rheumatologist was stumped. Only thing she could suggest was fibromyalgia so she gave me a panphlet on it. Although my fibromyalgia trigger point test was TOTALLY negative
I must have went to the ER like 15 times. I even went to the best hospital in my state. and they told me I had a virus and to go home sleep and drink plenty of fluids. HAHAHA. YA A 3 MONTH VIRUS RIGHT? ohhh boy.....
I think we all get misdiagnosed.
Posted by ryansmom (Member # 27456) on :
Asperger's Syndrome (part of Autistic Spectrum), along with ADHD, anxiety and depression, multiple food allergies, sinusitis, and PANDAS (Pediatric Autoimmune NeuroPsychiatric Disorder Associated with Strep).
The correct diagnosis is Lyme (borrelia), Babesia, Bartonella, Rocky Mountain Spotted Fever, H. Pylori, HHV1, Mycoplasma, Chlamydia Pneumonia.
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