I and my doctor strongly suspect lyme and am just awaiting test results. I likely have had it 15 years and have had that many diagnoses too.
The past year has been particularly bad after another tick bite with a rash that I blew off as me scratching too hard and bruising myself. I am guessing I either re-infected or have had some other disorder and now with lyme on top.
Anyway, the neuro symptoms are out of control. Funny spots/weird lines/discoloration in vision, migraines with aura, vertigo, dizziness, poor coordination, poor memory (just this morning forgot to bring in the milk and bacon I bought, rediscovered seven hours later, sigh) ... most scary to me though is my poor concentration. I am a grad student and just can't comprehend or read with the speed I could only a year or two ago. I am terrified that, even with treatment, this is permanent damage. Has anyone recovered from the neuro problems?
Posted by 0ldman (Member # 22101) on :
Mine come and go. I had the same fears as you. I am a little more at ease with the situation, tho certainly not enjoying it.
On a good day everything is clear. Quite often, I'll fix lunch, coffee, whatever, completely forget about it.
From what I've read Lyme tends to affect the white matter more than the gray matter. White matter is what connects all the functioning parts together.
In computer terms (my thing), white matter is the network cables. The info and processing is still there even though right now we have some cable issues.
White matter changes, so this should not be permanent.
Posted by dsiebenh (Member # 5353) on :
The idea used to be that neurological damage could not be repaired, but from that I understand it is now believed that neuro damage can be repaired, just more slowly than other damage.
Posted by sixgoofykids (Member # 11141) on :
Yes, I got better from those issues. It took the longest for my memory to come back. I played games and did other things to give myself a mental workout to get the memory back.
Posted by sbh93 (Member # 30429) on :
Thank you so much for the replies. Oldman, yes, this is my biggest fear. The skin problems, headaches, IBS I'll take but please don't take my brain! dsiebenh and sixgoofykids, it's good to know it can heal.
I appreciate hearing your experiences. Just the idea of lyme is new to me (I went to a ND out of frustration that no one would test me for celiac - ha) and I'm glad to know others have had similar issues.
**Edited to say I'm not glad you have suffered these problems, just that I'm not alone or crazy. Posted by fflutterby (Member # 28081) on :
Me too, I had similar symptoms and have been treating since Sept. I am 90% better already. Hang in there. I feel for you.
Posted by bcb1200 (Member # 25745) on :
I had similar symptoms too. I've been treating 9 months now and they are almost 100% gone today. They are reversible!
Posted by lyme in Putnam (Member # 11561) on :
Feel like connections to me and my life are cut. Always thought depersonalization, but could connections be damaged and I have ocd, so I believe I can be anythng because I don't feel any connections. sometimes having seconds like I feel back to me, than it passes, last thurday was 2 hours, last month was 4 hours. Sleep and shake cause of the anxiety it causes. My herbal doc says I'll have blips of seconds and it will be longer and longer until I get myself back. On antibiotics, it just snapped back, this isnt snapping. When it snaps back its just me and my life. Don't know if it lyme, psych, both, anxiety (dp), just want to be in my skin again. Anyone?
Posted by dsiebenh (Member # 5353) on :
You mention IBS issues, mine have cleared up greatly since I went nightshade vegetable-free and gluten-free. Some also find benefit in dairy-free.
Posted by steve1906 (Member # 16206) on :
It does get better, as you have read here.
It takes time, keep working on it, stay positive!
Posted by sbh93 (Member # 30429) on :
Thanks for the replies! fflutterby and bcb1200, your experiences give me hope.
lyme in Putnam, I hope you can find an answer. I've struggled with OCD myself, and the feeling of being disconnected on and off as well (if I'm understanding correctly).
dsiebenh and steve, thanks for adding your comments too. I had already cut dairy, most gluten, and meat before seeing the ND and have found improvement with the IBS. I still get pain and burning after two months of Prilosec, though, so all I can figure is that it's the lyme or whatever it is I have.
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