The 4th Annual Morgellon's Disease Medical conference will be held in Austin, TX on April 2nd.
For more information refer to www.thecehf.org. Dr. Randy Wymore from Oklahoma State University will be a speaker, along with several other keynote speakers, and he will discuss the latest findings in his research of Morgellon's.
I am not advertising rather putting the word out to inform those with Lyme and/or Morgellon's of the meeting.
This will be my first year to attend. My case is quite severe and the doctors I've used accused me of self-inflicting the lesions. Failing to recognize this condition is physical, not psychological, I was sent to two (2) different psych hospitals. That was just the beginning of being told by doctor after doctor that the stress of my Lyme and arthritis was causing me to make the lesions.
I finally found a doctor who believed I was sincere that I had a "real" problem and he admitted me in the hospital for twice daily IV's of Vancomycin. He agreed to allow the IV's in-home until he did a 360 and said he would order the IV's after I saw a hypnotist to help me with the scratching. Seems he had some help with that decision, just my opinion.
Until something conclusive is found as to how this condition starts or what it is many others will experience what I have been through.
Posted by glm1111 (Member # 16556) on :
Salt/c and antiparasitics have turned things around for me and have gotten rid of the lesions as well. Have you considered these options? IMO, I feel strongly that the Filarial Worm infection is a big part of this.
Gael
Posted by ladyjenie (Member # 21098) on :
Gael, I agree with you on this. When I first came down with Morgellon's I began having biofilm form on my legs after showering. I was horrified, never saw anything like it before in my life. Couldn't get anyone -- hubby, daughters, or my doctors to believe me.
The biofilm increased the pain and therefore I scratched the lesions deeper causing more damage to my skin. At one point I know I saw a tiny white worm in one of the lesions.
The lesions then are so unlike what they are today. They appeared as bored holes similar to a biopsy punch, that's the only way I know how to describe it, and they were very deep. The biofilm is very waxy feeling and looks like a thick 2nd skin. I haven't experienced that lately, thank God.
I was a horrible sight then, the itching was so intense I was scratching and tearing my skin so that I was bleeding everywhere. Anyone who has Morgellon's know that these lesions can bleed for minutes at a time and the sight is not pretty.
The doctors seem to think that the patient can control the scratching, mind over matter they say, and you can distract yourself if you just set your mind to it. Poohey! I personally know of no one that has that power over their brain, that's why more has to be learned of this dreadful illness.
Gael, is there an easy way of doing the Salt/C? My brain is not up to measuring grams and all that stuff but I would like to try it. I have hypertension and retain fluid so need the salt that doesn't cause more fluid retention, if there is such.
This forum is such an excellent tool because we learn from each other and have sympathy for others suffering that we so understand. Same way with the Morgies. We email and often times meet and form a strong bond. It is so nice not to be judged but understood.
Posted by glm1111 (Member # 16556) on :
ladyjenie,
So sorry you have to deal with this. Interesting that you mentioned the white worms. This is a notable infection I have been dealing with.
I have seen several other posts of people mentioning white worms. The best advice you can get on the salt/c protocol is at lymestrategies.
I started with 1/4 tsp salt and 1/4 tsp of C and ramped up very slowly according to how I was herxing. You also might want to try some of the antiparasitic herbs. I am having very good results with Parastroy.
Concentrating on using antiparasitics is key in getting rid of this disease. There is also another site called lymebusters where they have very good info on supplements for Morgellons.