Last year I went through about a two-month stint where all I could do was sleep. Everything else was impossible. I had to force myself through Christmas and spent almost the entire (first and only!) time my brother and wife vistied were here asleep.
Before that, I was another typical Insomniac Lymie and had been for years. The sleep was welcome for the first week but after that, it was awful.
But it came and went overnight. No idea what the trigger was and changed nothing when it stopped.
But now my husband is doing it. He is also being treated for Lyme. I hardly see him anymore - He gets up right before work and falls asleep as soon as he gets home.
When he didn't come home from his college class yesterday I got worried and finally called him. He was alseep in the car! He didn't think he'd make it home so he drove to work and slept in car until it was time for his shift!
We have a doctor (I guess we're part of the Elite We Were Sick Firt Club), and he's not taking new patients. But we want a change after all our years but we can't do that until we find someone else.
So my husband posted (and later on I posted) in the looking for Doctors board. We asked for a pretty wide area as we are desperate (Virginia, North Carolina, DC, Maryland) but we got ONE reply!
My husband is looking into his work disability. It's awful to see a man a year ago going to College for an Enginering Degree and Working and Taking Care Of His Sick Wife, to now be reduced to one class he's probably going to have to drop and a very real job loss (and with it our insurance and how do we pay these bills...?).
There's thousands of members on here and I don't come on as often as I'd like due to illness but whenever I do, I always forward doctor info to The New Victims - that board is so so sad! All these people asking for help or a doctor, a phone number, anything, and they sometimes get 0 replies to their cry for help.
Please, does anyone have this experience and/or an explanation for Chronic Sleeping (Hypersomnia)?
Can anyone please throw us a bone to some doctors who are taking patients? I know we need to protect them, but when does it go from protecting them to "hoarding" them for ourseleves?
Thank you and God Bless anyone who is willing to reach out and help us!
Posted by 5vforest (Member # 29365) on :
I don't think anyone is hoarding doctors.
The reason you don't see many replies in the "seeking a doctor" category is because people send their replies in private messages.
Another way of finding a doctor is to contact support groups in the states you listed. In DC, you can contact NatCapLyme, they have a website.
The problem is that there are a lot of people asking for help and few people sticking around to give help. This is a volunteer job, and the help needs to be passed on by people who get it.
Posted by Lymetoo (Member # 743) on :
There is basically ONE LIST... hence the reason you got "one reply."
We have been encouraging members here to become more active on the Seeking a Doctor board.
"Please, does anyone have this experience and/or an explanation for Chronic Sleeping (Hypersomnia)?"
I would say it's Lyme.
Posted by lymednva (Member # 9098) on :
NatCapLyme has a policy of not recommending doctors from the group. However individuals can do it. Kind of frustrating, I know.
There happens to be a support group meeting tomorrow, Thursday, Feb. 10 at the Fairfax library from 1-3. Individuals there will talk about their doctors.
Posted by 17hens (Member # 23747) on :
I would think Babesia. I know when it flared for me, all I could do was put my head down and snore. There was no fighting it.