And unless you go strictly gluten free you will not get the desired results.
See the OK and not-OK lists on the website above. You have to do a lot of label reading and know what you are looking for.
Posted by phyl6648 (Member # 28522) on :
My LLMD put me on a gluten free and low carb diet for inflammation.. I tested negative for celiac and food allergies.. I will do gluten free and see what happens.. The last time I tried it I didn't watch the carbs and gained weight and fluid.
Will just use common sense and try to watch what I eat..
Posted by chiquita incognita (Member # 30381) on :
Testing for gluten allergies?
HAHAHAAHAHAHHAHA!!!!! That is the biggest laugh of the century.
I am soooooooo allergic it is not even funny. violently allergic actually, I will spare you the grizzly details. Suffice it to say that it made me ill,not just sick.
And here we go...I tested "not allergic" to wheat!
An ND said to me that she doesn't think the food allergy tests are "sensitive" or accurate.
She said the best test is to eliminate the suspected food and see how you do without it, then reintroduce it later to test for relapse.
My two cents worth.
Posted by Lymetoo (Member # 743) on :
That's true that testing for food allergies is not that accurate.
I also tested falsely negative for celiac disease 30 yrs ago. They didn't even do the test right. I later had a test that indicated that gluten was a problem and when I went TOTALLY gluten free, I got results.
Posted by blinkie (Member # 14470) on :
Well, I think Dr Oz having a show titled "the gluten myth" is going to be laughable. He's most likely going to poo-poo it and say it is only needed for those with celiac.
Well, he's wrong if he says that. I don't have celiac, yet I can't tolerate gluten. I'm constantly bloated...I mean two pant sizes when I eat gluten. When I don't, my tummy is flat and I fit into my skinny pants.
That being said, I'm sure the excess abx have done this to me.
Posted by Lymetoo (Member # 743) on :
I know, blinkie... I want to see what he calls a myth! Posted by Lymeorsomething (Member # 16359) on :
The book, The Lyme Diet, reaffirms the idea that lyme patients may not tolerate gluten even though gluten sensitivity tests are normal.
So it's better to just go gluten free as an experiment.
Posted by AlanaSuzanne (Member # 25882) on :
well remember his show is all about ratings...what show isn't?
troubling that the trailer is "the gluten myth" mmm. Wonder what his perspective would be if one of his kids was sick.
Kind of implies that all us idiots trying GF diets are being somehow misled and stupidified (new word!--hey BTW--is anyone keeping track of my new words??)
IMO we all should try GF for a few months. Even if you test "normal" whatever the heck that means, it doesn't rule out gluten sensitivity.
After being GF for more than 3 months DD had pizza and ate out in a restaurant that wasn't GF. So far so good. HUGE, considering GI issues have been horrendous.
Posted by one4islands (Member # 28187) on :
I went gluten/wheat free because my dr. also recommended due to inflammation.
I had two different gluten/celiac tests done-negative.
If I stray from gluten/wheat free I get a rash around my nose and cheeks.
My face was pretty clear last week.
I ate just one gluten & wheat product a day on Fri/Sat/Sun and Monday and today my face is broke out the worst it's been in some time.
Obviously, I have some sort of sensitivity.
It will take about a week to clear it.
Posted by jenn (Member # 21687) on :
Doing gluten free for the past 6weeks for my daughter! It's NOT hard to follow, and rather better choices of food to eat than all the Processed garbage we SHOULDN"T be eating anyways!
The only animal that can breakdown WHEAT is a cow...because they have 4 stomach's! We have "1"! Wheat is very hard to break down in our systems!
Posted by penguingirl (Member # 28688) on :
Should everyone be going gluten-free then? I mean those that we know are not sick with lyme.
Just wondering...
My allergy test came back negative for glutena allergy but that test is prob not accurate from what I hear.
However I am sensitive (not like 6 stars, just 2 or 3 I think) to Brewer's Yeast. But not to Baker's Yeast. not sure the difference but there is yeast in most breads so even when I am healthy again maybe I can never eat bread?? = (
It's ok - I'm a rice girl anyway. Posted by Lymetoo (Member # 743) on :
You could be gluten intolerant then, penguin. OR allergic to wheat.
here is a great thread in General Support with gluten free recipes!!
--PS - You never know what you'll find in General Support -- check it everyday! Posted by Lymetoo (Member # 743) on :
I taped it while gone this afternoon.. Did anybody see it?
Posted by blinkie (Member # 14470) on :
I don't think I'm going to. I don't want to make myself mad! LOL!
If you watch it, please let us know if there is anything of interest.
Posted by Lymetoo (Member # 743) on :
OK.. I'll watch it later.. He's on now but I think the gluten part is over.
Posted by WhitneyS (Member # 25666) on :
I didnt see it-- but I know one of his daughters is Gluten intolerant, so I know he doesn't poo poo it. It looked like from the commercial he was going to focus on GF not being a weight-loss diet.
Posted by chiquita incognita (Member # 30381) on :
Do you know, this is not referring to celiac or gluten specifically, but to leaky gut disorder which can indeed come from gluten indulgence in those who are intolerant of it....
Dr Mark Hyman says in an article he wrote about leaky gut, that only 1% of the afflicted are diagnosed with it! That leaves 99% undiagnosed!
Good god!
Well, that says something about the role of gluten in the matter. I am so glad that at least gluten intolerance is getting more mainstream recognition, even if leaky gut is not (yet). And at least people here know about leaky gut. GOOD!
Posted by Lymetoo (Member # 743) on :
quote:Originally posted by WhitneyS: I didnt see it-- but I know one of his daughters is Gluten intolerant, so I know he doesn't poo poo it. It looked like from the commercial he was going to focus on GF not being a weight-loss diet.
-You were right. How STUPID for people to think they could lose weight on a gluten free diet. He made the point that the gluten free breads and other items were WHITE foods (as I have said over and over here) and highly processed. They can actually cause insulin resistance. (as opposed to whole grain wheat, which would not)
He said to eat natural foods ... like I've been saying ... proteins and vegetables.
He said IF YOU ARE TRULY GLUTEN INTOLERANT or a celiac, then YES, eating gluten can make you gain weight since it causes inflammation in your body.
But if you are eating the diet and don't have those problems, it won't help .. you will gain.
I've heard of many complaining on the discussion board at www.celiac.com that they gained weight once being diagnosed. So it can happen to them also. I found out right away I couldnt' eat that junk because of yeast issues... so I didn't gain.
Most gluten free products contain plenty of sugar also. UGH.
The one good thing is that now I can buy a gluten free bread quite easily when I want it. 30 yrs ago I had to make everything!
**PS -- One reason some people with celiac would gain, however, is simply because being off the offending substance would improve their absorption of nutrients. So they would naturally be gaining from the other foods they ate also. (whereas before, food went right through them and even if it didn't .. it wasn't being absorbed)
Posted by julier212 (Member # 26408) on :
I was skeptical of going gluten free when my doctor suggested it. Even though Celiac runs in my family, I thought if I just stuck to low carb/low sugar it would be better. I finally tried it at the beginning of the year, and I have to say I never felt as bad in my life. However, I've lost 18 pounds in the last 2.5 months, which is great.
Here's my guess? I think I was finally having Herx symptoms from my lyme/bart meds. My doctor explained to me, that now that my body isn't fighting inflammation/leaky gut from gluten, it can finally focus on fighting the infections.
If that's the case, then I'd gladly feel terrible knowing that it's because I'm finally getting rid of the bugs...that's my hope anyway.
I'm pro-gluten free for Lyme fighters! If wasn't for the support I get from you all, I don't know if I could do it! Thanks!
Posted by Lymetoo (Member # 743) on :
Wow... maybe your dr is right because MOST who follow the diet feel BETTER. Maybe once you kick the lyme you will feel GREAT!
(do you follow it strictly?? reading labels for hidden gluten, etc?)
Posted by annier1071 (Member # 28977) on :
Dr OZ had a show all about lyme awhile ago too. I saw it on Utube if anyone is interested in viewing it.
I gained weight on gluten free. I realized recently the amount of sugar in gluten free foods..
Now I try eating tons of salads "colors of the rainbow!" add avacado for plant fat and slip in a few sliced raw almonds. When I want a treat, I put in some dried cranberries (yes sugar) but I found I could live on this salad!!!
SOmeone on here mentioned Ezeikel bread (in the freezer sectoin of many stores and at all natural stores). I have a slice every few days. The raisan one is the best..add some freshly ground almond butter and it is a great treat!
Posted by Lymetoo (Member # 743) on :
-"You were right. How STUPID for people to think they could lose weight on a gluten free diet."
+++++++++++++++++++++++
OH.. I get it. When SOME people hear the word "DIET" they think it means weight loss diet. Sheesh. Then everyone jumps on the band wagon.
annie.. just know that Ezekiel bread is not gluten free.
Posted by blinkie (Member # 14470) on :
Well, I follow a gluten free, low fat diet. That does cut out a lot of the breads. But, there are some that are better for fat and calories than others. I've found Rudi's cinnamon raisen bread to be low in fat and calories and yummy. I'll eat that if I'm in a hurry or don't feel like cooking something more time consuming.
I have found that the pastas are no different in fat and calorie content then regular and they taste fine, my family can't even tell the difference.
The best diet is veggies and protein but for many it's just not practical.
Posted by Lymetoo (Member # 743) on :
I'm very impractical then, LOL! Yeast is a big issue for me right now.
Do you mean Udi's bread or Rudi's??
Posted by julier212 (Member # 26408) on :
I hope my doc is right, too! It kind of makes sense. I hadn't had much herx reactions the first four months of treatment, but two or three weeks after going GF is when I started having problems. I also switched abx around the same time, so it could all be coincidental. Who knows?
I'm very careful with reading labels for gluten, and try to avoid the GF breads/pastas because of all the carbs and calories. I partake every now and then, and do not over-indulge just because it's gluten free. I also have continued to exercise 4-5 hours a week, and I finally see that my thyroid is functioning better.
I've started feeling better lately and the major body aching herxes have subsided now, but just because I changed my diet doesn't mean Lyme symptoms will disappear. I wish it were that easy!!!!!
Yum, that salad and raisin bread sounds good!!!
Posted by blinkie (Member # 14470) on :
the brand is Rudi's. Not to be confused with Udi's.
Posted by chiquita incognita (Member # 30381) on :
Starches in GF products convert to sugar in the body. The GF breads et al use tons of starches---tapioca, potato, corn, mixes thereof---and I am sure that is why people gain weight on the gf diet. It's not just because of sugars, it's the starches converting to sugars.
Lymetutu, as regards people absorbing more from their foods, there is reason to think that they would lose weight and not gain. Because as you said, when foods just go right through you without being properly absorbed, you develop food cravings. The body is saying "Give me some nutrients, I am starving!" So you eat and eat, and gain weight. A body that is absorbing nutrients will not have as many craves, and will utilize/burn nutrients more efficiently. The proper burning and storing of foods will aid weight loss, and the proper utilizing of the nutrients will cut food craves.
Win-win.
Thank you all! This is great, and thanks for this very thought-provoking report, Lymetoo! Best wishes y'all, CI Posted by Lymetoo (Member # 743) on :
Sounds promising, Julie!!
Thanks, blinkie .. had not heard of Rudi's so I was wondering. I did see a raisin bread by Udi's at the store. Haven't tried it since I'm avoiding sugar.
Good info, CI .. makes sense!
As for the gluten free diet .. You can also lose weight on it IF you don't eat so many of the GF breads and processed foods.
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Sheesh. Then everyone jumps on the band wagon.