I have literally not posted here for years. First, because it was so bad, and then, because it's been so good!
But I feel that I need to let the Lyme community know what we have done that has worked so well for us. Is it a CURE? I can't say.
Backstory: daughter unknowningly bitten 9 years ago at age 13, no rash; onset of 24/7 migraine level headache; constant fatigue, constant nausea, extreme cognitive deficits, heart pain, lung pain, episodes of tremors and partial seizures. Had to drop out of school. 20+ doctors misdiagnosed her. Took 9 months to a diagnosis that actually fit the symptoms.
Years of orals, homeopathics, months of hyperbaric, alternative medicine, RIFE, ozone steam therapy, etc etc etc did not carry the day. Finally we got her on IV Rocephin for 18 months at age 17. Gave her her life back, but did not make her well. She had a life again, but still suffered. Graduated HS by our homeschooling, but not well enough for college.
A guy from Medsonix saw my LymeSucks.org website. Offered to treat her with the Medsonix machine, which is in Vegas (and Naples FL). It's audio waves through a transducer. It's FDA approved for increasing blood flow, reducing pain, and bringing down inflammation.
I kind of forgot about the call for a few months, but as her "trend" continued on a downhill trajectory and we had done everything under the sun and had nothing left, we went for it. We got her to Vegas 1X month for a whole year. I didn't tell very many people about it because Lymies are broke and I didn't want to get peoples' hopes up without a long run.
Long story short, it's a miracle! She could not work when she started Medsonix due to pain and fatigue, and we had to drive her from LA to Vegas for treatments. Two months into it, she was able to take an evening college class. That led to an internship and a full-time job (unthinkable!) at something she's really interested in! Her energy is normal, the headache is no longer a player, she has a great social life, and drives BY HERSELF to Vegas every 4-5 weeks... that's four hours driving, then takes treatments for four hours, then drives four hours back, showers, changes, and goes OUT for the evening! HELLO??? MY daughter is doing that???
It has no bad side effects for her. There's too much to say here, but the whole thing is on my website. I don't know where we would be if I had not been contacted by them. I am happy to talk to anyone who wants to talk to me; but I'm on the west coast and I'm a working person. Email is best, at least for starters. I am not in the employ in any way with Medsonix. And BTW, they are WONDERFUL people! I'm just reporting on the best thing that has ever happened to us, once Lyme was on board. [email protected] Posted by Lymetoo (Member # 743) on :
That is wonderful, orion!! Thanks for posting!! It's good to see you!
I guess buying one of those machines is out of the question??
Posted by orion (Member # 3858) on :
Not at all, Lymetutu, if you have something in the vicinity of 150K to spend!! But there is talk of a "home version" that would be within the realm of some people...
Posted by 5vforest (Member # 29365) on :
Wow, congratulations!
Any info on the future of medsonix? Is it going to become more widely available?
Posted by sparkle7 (Member # 10397) on :
Interesting... Too bad they don't just broadcast it for everyone via all the cell phone towers...
"Medsonix uses low frequency sound waves which is the other end of the spectrum. Research has shown that it exhibits a very profound effect on pain and inflammation throughout the entire body.
As one sits in a comfortable chair and relaxes, the entire body is being bathed by the acoustic vibrations. Any and all areas of inflammation and pain in the body are being effected at once, noninvasively. "
Posted by hopingandpraying (Member # 9256) on :
FYI - I just read the Lymesucks.org website about Medsonix treatment, and they said they have clinics in Naples, Fl and Arlington, VA.
Posted by orion (Member # 3858) on :
The latest I have heard is that there's going to be five of them coming to the SoCal area. I have to find out more specifics. Anyone interested in the answer to that question now should go to their site, www.medsonix.com and call or put in a query.
Posted by apljack (Member # 14233) on :
How much does it really cost? Says about the same as a co-pay.
Posted by Dawn in VA (Member # 9693) on :
So happy for your daughter!! Interesting stuff.
Here's an interview w/the founder and some others; they say they did a double-blind study as well:
please....how much does it really cost???
Posted by lpkayak (Member # 5230) on :
they didn't pick up when i called...but i really want to knwo how much this costs
i hope they call me back
Posted by orion (Member # 3858) on :
lpkayak, If they don't call you back, call them again. They are not in the office full-time. The Vegas office is just one person, AL, the inventor, and he comes and goes in proportion to the people coming in for treatments. The Vegas office is kind of a "showroom" as well as a treatment center. I suspect that the Naples office is more regular.
Posted by hopingandpraying (Member # 9256) on :
This caught my eye, as I am always looking for help for my son, who has chronic pain. I read the medsonix website, then the lymesucks.org one.
If you go to the following link, you'll be able to read about this treatment:
The cost is discussed at the bottom of the blog: "Mention Silver or Bev Feldman's name, or LymeSucks.org, they will give you a substantial discount: normally a package of 4 treatments is $399, but for you it will be $299."
I am in no way affiliated with this product or clinic - just trying to help my dear son.
Posted by hopingandpraying (Member # 9256) on :
I forgot to add that this cost was at the Las Vegas, NV clinic. Didn't mention it for Naples, FL.
Posted by Hambone (Member # 29535) on :
quote:Originally posted by apljack: How much does it really cost? Says about the same as a co-pay.
The one in Naples, they recommend 10 treatments in 10 days for $499.
They discount it for people with Lyme. For other ailments it costs more.
Posted by lpkayak (Member # 5230) on :
ok-they called me back and i am more confused.
-no place in VA
-first he said 4 tx for 299
-then he said two long tx (1 1/2 hrs) in two days because of lyme detox
-then he said if only for my osteo arthritis more money
-i know i am foggy and talk funny but he was in a hurry and upset with me
-i told him i HAD lyme but didn't know if i still had it and wanted the tx for inflammation from arhtitis i know i have...and he said that would be more money-but he sounded like he only goes by what you say-you don't have to prove if you have lyme
-but there was no mention of a 4 hr tx once a month...
so i am basically confused
i wonder how long the tx is in naples the 10 in 10 for 499
my brother lives down there-i guess i could do it
VA was what i was excited about...its so close to me now
anyway-too tired to deal with this now...painful day
Posted by orion (Member # 3858) on :
They give discounts to Lyme patients. Just say you have Lyme. The treatment is the same.
Posted by Toppers (Member # 20083) on :
I need to hear from more people other than the ones associated with the Lymesucks.org before I really believe this is not another thing capatalizing on lyme patients. That seems to be the only story actually floating around re: progress with this and lyme.
The Naples FL one seems to be giving out their own treatment advice that the owner from Vegas doesn't seem too thrilled about---10 days is ridiculous, no one can stick around for that. He said he was going to contact them.
Posted by Toppers (Member # 20083) on :
quote:Originally posted by Dawn in VA: So happy for your daughter!! Interesting stuff.
Here's an interview w/the founder and some others; they say they did a double-blind study as well:
They mentioned a double blind needs to be performed, but I see nothing actually mentioning that it was done.
Posted by feelfit (Member # 12770) on :
Well, here is my story. First of all, I went to Medsonix, Naples, FL. it is owned and operated by Linda and Gary Gordon. Both good people, IMO.
First let me say that I live within driving distance of this facility in the Winter months...so the 10 days in a row was not so difficult for me to do.
They have a pkg for Lyme patients that is 10 days, 1/2 hour treatment for 499.00. Medsonix was developed to treat other conditions, not necessarily Lyme disease.
It just so happens that they found that lyme patients did see benefits. However, unlike other ailments, lyme patients typically do not respond as rapidly as, say, arthritic patients, or migraine sufferers.
They are very clear that this IS NOT a cure for lyme. Everyone differs on how long the benefits 'hold'.
From my own experience, I went for 10 days at the end of December through the first week of January of this year.
Before treatment, I could not tolerate any stimulation for over 3 1/2 years. NO PUBLIC PLACES without feeling like I would pass out, tachycardia, etc..
My first Medsonix session, I could barely sit in the chair for a half hour. I could not tolerate the movement of the two other people in the room with me...very overstimulated.
After the 4th session, I herxed, bad. In bed, felt like my eye was being pulled out, horiffic head pain, my typical herx. This lasted 2 days and I did not do sessions on those 2 days.
After that one herx, and my next session, I was going into stores without problem, something I hadn't done in 3 1/2 years. The noise, light, stimulation didn't bother me. I shopped for 3 hours one day. WOW.
I was able to go to church a few times (huge for me) out to dinner (also huge)..and generally felt better..headaches that were everyday were now 60-70 % diminished.
Gradually the results began to fade. In the last month, significantly so. No longer able to tolerate stimulation/public.
They said that this would probably happen. I have spoken to 2 other lyme sufferers and they had amazing results. One in specific, Rita Farmer, she is on the video on the Naples website.
I am going to sign up for 10 more appts. before I leave to return to MI for the Spring/Summer. Bottom line? When you haven't gotten any relief in 3 1/2 years of heavy abx, including 4 rounds of IV..you're willing to pay 500 dollars for a few months of relief...whether it is 25% or 50%.
anything that gets you out of the house or bed!
I would think that someone who is not as compromised as myself may reap even greater benefits...
I am in no way affiliated with this treatment or Medsonix Naples...
UNLV, I believe, has published papers on the efficacy of this treatment...it is actually sonar waves and it is believed that the vibrations help with blood flow, etc.
at first, i wasn't sure this treatment did anything, in retrospect, it did A LOT!
FWIW...this was my experience.
[ 03-25-2011, 07:12 PM: Message edited by: feelfit ]
Posted by orion (Member # 3858) on :
Feelfit said it very well.
Posted by sparkle7 (Member # 10397) on :
I think it's interesting - as I said. I have no doubt that we can do healing with sound. I wonder if the results are cumulative over time?
I guess it might be in the same category as massage or taking a sauna. I hope others will post with their experiences.
I'm sure some of the old folks in Florida will get some benefit from this. It's nice to hear some good news for a change. Hopefully, it will get cheaper as it gets more popularized.
Posted by lpkayak (Member # 5230) on :
toppers-it would be easier for me to do 10 days once a year than 1 day onnce a month cuz of travel-i have a brother to stay with there
i didn't see any where any one saying it was a lyme cure...i saw them saying it helps inflammation which is a severe constant sx of lyme
ORION-i'd like to hear more from you...didn't you say your daughter did 4 hr txs once a month for a yr?
i know i have osteo arthritis many places...i believe it came from lyme cuz it started in my 30s...but xrays show it everywhere and i can walk now that i have artificial knees so i know it is the cause of much of my pain
i'm not sure how active my lyme is...tests not very pos anymore
of course i would want the lyme discount but i'm trying to understand if it matters the length of tx and how close the txs are depending on why you are txing...lyme or arthritis
the guy i talked to sounded like he just wanted to tx ppl---didn't matter what their health problem---but that they found because of "detox" lymies did better on different time etc than others
not really sure what he meant by detox...i'm glad he created this tx but he obviously isn't lyme literate and really doesn't want to be
but thanks for the info here
that was really helpful feelfit
i want them to move one to VA tho-it would be easier to experiment with times then
Posted by feelfit (Member # 12770) on :
lpkayak...did you speak to the Naples person? gary gordon?
it doesn't matter if you tell them you have lyme disease, arthritis or cancer... the treatment is the same..except that lyme pts. tend to need more sessions in order to see results.
this statement is based on the lyme patients that have gone through treatment.
I am returning. Rita Farmer has done the treatment several times, each time it gets her out of bed and functional. I have a lyme friend in FL. who has done the treatment as well. When I was investigating Medsonix, all the lyme people that i talked to told me to do myself a favor and run to Medsonix and that I would not regret it.
To answer your question about arthritis, that is supposed to be one of the conditions that it helps with in a BIG way....they sort of just happened to fall into seeing that it helped with lyme.
It obviously cannot help with joints that are deteriorated, can't 'repair' them, etc.. but it sure as heck can and does help with the inflammatory process
like anything, results differ for everyone. Rita Farmer experiences HUGE results that are very, very noticable, my results were more subtle, but nevertheless, 'there'
feelfit
Posted by sammy (Member # 13952) on :
Wow feelfit, I'm so glad that it helped you! I hope that you will continue to get better with each treatment and eventually be able to hold on to those improvements.
Posted by Hambone (Member # 29535) on :
Seems like if you keep doing it and are able to keep the inflammation down, that maybe your immune system can eventually take over again and whop the Lyme on it's own? It must be so hard for the body to have to fight infections and deal with inflammtion at the same time.
I live in N. FL. and it would be about a 4 hour drive for me. My concern is, I am soooo sick, I'm not sure I could sit there with total strangers, feeling like they are looking at me like I'm some kind of kook.
I just know I would sit there and cry, partly from overstimulation and partly from sheer frustration of the whole ordeal.
I would feel so much better about it if it were more private.
My nervous system is so shot to hell right now. I just can't see myself sitting with people I don't know. (Before I got sick I would've enjoyed the heck out of it. I love people.)
Just thinking out loud here. Wishing I could hit the Lotto so I could just buy one.
Posted by feelfit (Member # 12770) on :
hambone...i only sat with others 2 out of 10 sessions. The Gordons are so nice, they may be able to accomodate your need to be alone, in fact, i'm quite sure that they would work with you on that.
ff
Posted by feelfit (Member # 12770) on :
thank you sammy! me too and likewise, i wish the same for you Posted by racer (Member # 30438) on :
It seems interesting - I hope they can get some more studies done to further validate the treatment. Those studies that were done do not appear to have been published in a journal (anyone can write a paper), but it is a good start!
I wish I had a machine here... We are going to Vegas for vacation, but I'm not sure we want to be herxing while out there
Wondering if I can figger out how to build one (hehe)
racer
Posted by lpkayak (Member # 5230) on :
feel fit i havent talked to naples yet. i plan to. orion just talked to me a lot. my brother lives in cape coral. i hope i can pull this off.
thanks to all on this thread
Posted by Hambone (Member # 29535) on :
quote:Originally posted by feelfit: hambone...i only sat with others 2 out of 10 sessions. The Gordons are so nice, they may be able to accomodate your need to be alone, in fact, i'm quite sure that they would work with you on that.
ff
Thanks!
I'm considering it. Trying to figure out how to travel and stay there for 10 days.
If I haven't said it before, I have the utmost respect and admiration for those of you who are so sick, but manage to criss cross the country if you have to, to get the help you need.
Posted by orion (Member # 3858) on :
Hambone, I understand the thought of doing it with others, etc., could be daunting. But I think the benefits will far outweigh your concerns. And I'm sure the Naples owners would be extremely sensitive to your needs. Orion
Posted by hopingandpraying (Member # 9256) on :
lpkayak - sorry, I just read that the Arlington, VA place is being "installed", according to the Lymesucks.org website.
I apologize if I misled you or got your hopes up by posting VA. I just thought it was there already! Hopefully, soon!!
Posted by sparkle7 (Member # 10397) on :
I've done IVs in places where there were other people getting treated. It's not so bad. Most people there are ill, too, & they don't really care.
Sometimes, you get someone who talks too much but it's not necessarily a bad or uncomfortable thing to be in the same room with other people.
I guess it depends on the person.
Posted by orion (Member # 3858) on :
I did not know that the Arlington VA site is not happening. So I'll take that off of lymesucks.org. Posted by hopingandpraying (Member # 9256) on :
orion - I think being "installed" probably means they are in the process of opening a center in Arlington, VA, - don't know. Perhaps you could ask the clinic in Las Vegas where your daughter was treated if they know anything about VA and let us know?
For what it's worth, would you also ask them of they plan on opening clinics in the Midwest? They are opening several in California, from what I've read. Thanks.
Posted by lingor123 (Member # 31136) on :
Just want to clear up a little bit of confusion on this Medsonix stuff. The recommended tx for most normal aches and pains, arthritis, bursitis, back pain, sciatica, joint pain, etc.. is 4 sessions, which is offered in a pkg. for $299,normally $399. Single sessions are offered at $99, normally $129. It is more cost effective to do the pkg., because the results are better and more sustained after a series. Lyme patients however require a more extensive tx, so rather than charge 2x as much and then some, for 2x as many sessions and then some, they offer a pkg. of 10 for $499. Most things do not require that many sessions. Both offices are having great results, but the results are going to differ for everyone, just as some people respond better to certain drugs than others do. Each office has found good results with differing protocols, but as a rule, the more sessions, the better the results. They are trying to find the BEST protocol for Lyme, but this is done by trial and error. Just remember Medsonix is ALWAYS working no matter what, the cardiovascular system is always being benefitted because of the increase in blood flow. As far as more locations...that is the plan, but probably not likely to happen until it is more well known and profitable, as many who have an interest want to see this before they plunge in. Hope this helps with all the confusing/conflicting information. They are all good people who really do want to help. This is not a solicitation and is only meant for informational purposes.
Posted by orion (Member # 3858) on :
lingor123, Well said. Orion
Posted by hopingandpraying (Member # 9256) on :
Thanks lingor123. Please keep us posted of new locations.
Posted by medsonixnaples (Member # 24780) on :
Will be happy to hopingandpraying. Would like it to be sooner than later!
Posted by unsure445 (Member # 15962) on :
Does anyone know if Medsonix treats Babesia and Bartonella?
Is it beneficial for neurological symptoms or is it more for joint pain, headaches etc...
Thanks!
Posted by medsonixnaples (Member # 24780) on :
Yes, unsure445, it does help with the symptoms of these and yes it is beneficial for neurological symptoms as well. Again, it does not cure or heal, but may allow the body to help itself because of the increase in blood flow and the decrease of inflammation.
Posted by orion (Member # 3858) on :
What Linda (Medsonix Naples) said is in line with what I think. You can't say it "kills bugs" -- Lyme, babs, etc. And you can't say that it heals, either, at least at this time. But it DOES do what it says it will do -- bring down inflammation, reduce pain, and increase blood flow. It appears, if my daughter is any indication, that all of those things give a BIG rise to quality of life, so much so that it's truly a miracle for her and my family.
Posted by Al (Member # 9420) on :
It doesn't pass the smell test with me.
In 18 years I haven't seen a (latest treatment)that was effective for lyme disease.
Posted by AlanaSuzanne (Member # 25882) on :
Al, I hear you loud and clear having a good sense of smell myself.
On the other hand I can't dismiss Orion's posts. I have had good results with a naturopath. I never in a million years would have seen that coming.
Try to keep an open mind. Believe me, if I can so can you.
Posted by 5vforest (Member # 29365) on :
The only fishy thing for me is that I can't seem to find any press releases or news articles about it.
Posted by nefferdun (Member # 20157) on :
Sonar? Perhaps we should just swim in a pool of Dolphins and we would be better!
I am skeptical.
Posted by racer (Member # 30438) on :
I was quoted $199 for four treatments. The patent office does have several patents - one on the basic technology and a couple others on top of that one.
It will be interesting if someone can do more research and get it published - then it might make the news.
Sounds interesting - but I am not ready to plunk down my money yet. If there wasn't such a capitalistic approach to this (vs. medical/scientific) (franchises info etc.) and if the owner charged much less in order to get more people treated -I think I'd be more likely to try it.
I am very happy it has helped the original family though!
Posted by unsure445 (Member # 15962) on :
So if someoner were traveling a long distance would they stay for 10 days and get the treatment each day? Or is one treatment per month the optimal schedule?
When do you plan to have your Florida location open? I'll try anything at this point! Thanks for the information.
Posted by Dawn in VA (Member # 9693) on :
I contacted them earlier this week and they sent me an electronic reply that said they "are heartbroken that they have no plans to install a machine in Arlington, VA." They also said they'd received two inquiries from Virginians.
Posted by orion (Member # 3858) on :
Here's the problem: Some doctors want to buy these and open up a Medsonix office, or put it on their existing premises. They are expensive ($150K or more), and doctors typically get loans for equipment like this. But the loan market has dried up, and so I'm told that doctors (yes, even doctors!) are finding getting loans is very very hard.
Posted by feelfit (Member # 12770) on :
Unsure,
The Florida location is open for business. It has been for over a year.
I understand the skeptisism, believe me, I am not easily impressed or willing to spend my money on worthless treatments.
I researched what information was available and talked to other lyme patients who have used medsonix. Not one patient that I spoke with did not have some improvement in symptoms.
I did 10 sessions at the end of December in Florida and I just began my second round of 10 sessions (in a row) today. As I have said, my improvement was not 'curing' nor did it put me in remisssion.
What it did do is give me some quality of life. Actually, as the first round has worn off, I see just HOW MUCH it had improved my life.
No regrets here. and after this round, I'll be back again in the Fall...until they find something better for me...this has been the best, including 4 rounds of IV therapy.
And, I have no interest in this company, have not received any discounts, etc. to each his own.
Posted by Hambone (Member # 29535) on :
I truly believe this helps some people. You just never know until you try. I am all about giving most things a good try.
I am just glad there are people out there at least trying to help Lyme sufferers.
Anything that can reduce inflammation without popping a pill is a good thing.
Posted by sparkle7 (Member # 10397) on :
FYI - (I don't have any connection with Medsonix.)
Effects of a low-frequency sound wave therapy programme on functional capacity, blood circulation and bone metabolism in frail old men and women
excerpt -
Objective: To evaluate the effects of a low-frequency sound wave therapy programme on functional capacity, blood circulation and bone metabolism of the frail elderly.
---
Conclusions: Low-frequency sound wave therapy may have the potential to promote well-being of frail elderly subjects via improved functional capacity, especially in subjects who are too frail to undertake exercise.
Posted by sparkle7 (Member # 10397) on :
Low frequency sound therapy operates on the premise that low frequency sound actually has healing properties. Also known as infrasonic therapy (IST), low frequency sound is thought to travel through the body, directly stimulating your cells.
Though you cannot actually hear these sounds, your body does receive the sound wavelengths and responds to them by healing areas that are affected by swelling, inflammation, or chronic or acute pain.
How Do You Use Low Frequency Sound Therapy?
Low frequency or infrasonic therapy is typically delivered in a hand-held or portable device. This device has a transducer that is very similar to that used in ultrasound technology.
You simply run this transducer over various parts of your body in order to receive the healing benefits of the low frequency sound waves.
Low frequency sound therapy can also be delivered in specially designed chairs that are equipped with internal speaker systems. These systems deliver low frequency sound to your body while you are sitting in the chair.
Both chair and hand-held systems often incorporate massage therapy in order to maximize the benefits of low frequency sound therapy.
What are the Benefits of Low Frequency Sound Therapy?
Low frequency sound therapy is thought to help relieve a variety of unpleasant physical symptoms, including: acute pain chronic pain joint pain and stiffness muscle pain fatigue sleep disorders
How Does Low Frequency Sound Therapy Work?
Low frequency sound therapy is thought to be effective in reducing painful physical ailments by stimulating cell reproduction and other bodily changes.
In particular, low frequency sound therapy is thought to increase the production of hyaluronic acid (HLA), which helps to lubricate joints and relieves muscle and joint pain and inflammation. Low frequency sound also stimulates cellular repair, helping to increase overall bodily health and stamina.
---
Not just Medsonix does this kind of therapy. May be worth looking into other sources...?
Posted by sparkle7 (Member # 10397) on :
LOW FREQUENCY RESEARCH�CLIENT POPULATIONS AND COMMON FREQUENCIES USED -LITERATURE REVIEW
By Dr. Heidi Ahonen, Professor of Music Therapy, Wilfrid Laurier University, Ontario, Canada (www.wlu.ca) Director of the Laurier Centre for Music Therapy Research (www.soundeffects.wlu.ca)
excerpt -
Michel & Chesky (1996) studied music vibration in pain relief. According to Skille (1989) and Skille & Wigram (1995, p. 39) low-back pains have been reduced by the use of 52 Hz frequency.
Accordingly 68Hz has been effective with neck and shoulder pains. Physioacoustic treatment has also been used in order to decrease the pain of knee replacement patients (Burke and Thomas, 1997) and post-operative gynecological patients (Burke, 1997).
Walters (1996) also studied the psychological and physiological effects of vibrotactile stimulation, via Somatron, on patients awaiting scheduled gynecological surgery. 52Hz has also been used for menstrual pains and symenhorea with good results (Skille, 1989; Skille & Wigram, 1995 p. 39).
According to Skille, Wigram & Weekes (1989), Skille (1989), and Skille & Wigram, (1995) low frequency sound waves are reported to relieve pain and to reduce the length of the rehabilitation period when treating sports injuries, such as acute muscle traumas or post-operative convalesneces.
At the LCMTR we conducted a sports injury research (Tiidus, Markoulakis, Murray, Bryden, Ahonen-Eerik�inen, 2008) in collaboration with Karkkainen in which we used frequencies between 40 Hz and 60Hz.
Posted by sparkle7 (Member # 10397) on :
This place has some cool stuff related to soud therapy... (Sorry, don't mean to hijack this thread - Just thought people may like to know some alternatives...)
Does anyone know? Wizard
Posted by Haley (Member # 22008) on :
I have not read all the posts but I am wondering about brain fog and cognitive problems. Does this help that?
Everything I have read on this treatment is related to pain. I don't have much pain just a super messed up brain.
Posted by feelfit (Member # 12770) on :
my brain is super messed up too...pain (fibro, joint type) is at the bottom of my list. I can handle that pain....nothing compares to my 'head stuff'/
if inflammation is causing your brain stuff, it may be worth trying.
Posted by sparkle7 (Member # 10397) on :
The LightWorks uses infrared light pulsed at the Nogier frequencies where the other info is about low frequency sound waves - infrasonic.
I have seen some studies as to how this can help people with Alzheimers. I'd have to look some more to find them. I'll check into it later today.
Posted by sparkle7 (Member # 10397) on :
PS - there are some negative effects of infrasound. I think it can be too much if one is exposed on a long term basis. I think there are some complaints about sound from the windmills being made these days for energy production.
I guess it goes both ways - like fire. I didn't find anything directly relating to brain fog. I'll have to look again at another time.
Posted by orion (Member # 3858) on :
Many of my daughter's symptoms were cognitive in addition to pain. The pain is pretty much not a player anymore, and the cognitive stuff is MUCH MUCH better, well within the realm of "normal." But I just realized that at this moment, she's on her way back from Medsonix Vegas, so I'll interview her and get the lowdown on the cognitive and pain questions and post back here.
Posted by steelbone (Member # 14014) on :
awesome stuff
I am going to think about buying one and charging people like 20 dollars a visit
or even 200 for the month- use it as many times as you want in that month- something like that
Nice and cheap and i slowly make my money back
Need to look into the legal implications- as i so far from being any type of practitioner:)
Posted by lymie_in_md (Member # 14197) on :
Paul -- You could be an assistant practioner therefor you don't have to be a real practioner. How many of us look to make sure a practioner graduated and are licensed to do what ever they do. You could also create a youtube explaining how your not liable if they grow a third leg or an eyebrow in between their other eyebrows and if they do (complement them about how cro-magnon they are).
By the way, are you looking for investors, after lyme I've got half a two dollar bill and a penny with a hole in it...
Posted by n2themystic (Member # 27315) on :
I recently tried something I think is similar. Its called the Life Vessel.
About the Life Vessel�
Recent clinical research suggests that the human body, when able to go into a natural state of relaxation and balance can produce dramatic results which allow the body to create natural healing. The Life Vessel� is a non-invasive patented (US6544165B1) apparatus that uses frequency, vibration, sound and light to enable a person to reach this natural state, allowing the body the ability to heal itself.
The Life Vessel�s� ability to balance and relax the body is accomplished by a direct affect on three major areas:
Balancing the parasympathetic and sympathetic parts of the ANS. De-Stressing the whole body � physically, mentally and emotionally Detoxification of the whole body � physically, mentally and emotionally
day 2 I think I herxed badly. Sweating profusely and felt achy and exhausted. A coffee enema helped reduce the severity later that night.
I have felt pretty good since doing it but still have bad days. They told me that typically people with Lyme need to do about 3-4 sessions like I did to see lasting impact.
You do the treatment by yourself but beside sounds it has lights and vibration involved.
Just thought I would share since this treatment seemed somewhat similar to the medsonix.
Posted by orion (Member # 3858) on :
Medsonix is audio waves through a transducer. Very different.
There is so much we don't know about our bodies and healing. So much of the modern allopathic medical practices we depend upon today I believe will be replaced by less invasive and more powerful forms of healing with sound and light. It's just starting!
Posted by steelbone (Member # 14014) on :
I agree Orion
One big problem will be our goverment
Posted by sparkle7 (Member # 10397) on :
steelbone - you could probably make it into a private club for members only... Just an idea.
There are portable devices you can get that have low frequency sound for healing. I posted one for about $700. It's not as big as a whole room device but it might help. They also have these devices for veterinary practice - race horses, etc.
Seem they get better treated than many people these days.
Posted by missy (Member # 694) on :
"One big problem will be our goverment"
Steelbone - I don't see government as the biggest problem. It will be how big pharma and big health industry can control and make most money off it. Forget the small guys....the big guys got to figure out how to max profits and control small owners.
Just my take.
Posted by orion (Member # 3858) on :
Steelbone, Missy, I don't want to get into blame here. Change is often painful and usually takes longer than we think it should. There will be breakthroughs in human development and thus thinking that over time that will bring forth new ways of healing. That's inevitable. In the meantime, we've got what we've got, and I am grateful for what Medsonix is doing for my daughter and others.
She just came back from Vegas on Sunday from doing Medsonix. I asked her last night to give me a "weather report," and here it is: Her always-on headache that was a 5-6 level when she started Medsonix (that NO pain meds could touch), is background now, at a 0-1 most of the time, and occasionally flares up to a 4 when she's stressed. BUT IT COMES BACK DOWN!
She reports that her energy is well within the range of "normal." As her Mom, I'd say she's got MORE energy than most people her age (22). She works fulltime in a VERY stressful job (package design), on her feet all day, often working overtime, dealing with office politics, miscommunications, demanding clients, etc.
And then, like a "normal" young person, she goes out in the evening and hangs with friends. We don't see her that much! This is good. Very, very good. Beats the way it was!
When she was a baby, I was dreading the teenaged years of "sex, drugs, and rock and roll." HA! If only life had been that normal! We didn't ever imagine it would be "Lyme, drugs, and PICC lines!!"
Posted by unsure445 (Member # 15962) on :
Orion, This is such wonderful news! Your daughter must be such a strong, compassionate person for having been through all of this. You must be so proud of her!
Thanks for your posts. Best regards!
Posted by sparkle7 (Member # 10397) on :
re: When she was a baby, I was dreading the teenaged years of "sex, drugs, and rock and roll." HA! If only life had been that normal! We didn't ever imagine it would be "Lyme, drugs, and PICC lines!!"
I like how you put that... well said. You have a good sense of humor.
Wishing you & your daughter continuing success.
Posted by orion (Member # 3858) on :
Thank you so much. We've been through so much, but mainly it's been her. It made her be someone she was not going to become.
Posted by Diana 85 (Member # 23929) on :
Our daughter has been to Medsonix twice now, about a month apart,in Las Vegas. She has had significant improvement during this time.
She is willing to travel, which was impossible a few months ago. She seems to operate at a better level, with more energy. She is still in the battle, but this therapy appears to be hastening her recovery.
I noticed that pain and inflammation related to my own back problems were decreased by a therapy session I had when we were at Medsonix.
Posted by Haley (Member # 22008) on :
Thanks for bringing this back up. I would like to see an update from Orion.
My concern as with any new treatment is ...... does it last?
I beleive that these things work but will it put you into remission.
I've considered many alternative treatments such as HBOT, but I spoke to so many people that said the results didn't last. I was not ready to fork out a couple thousand bucks.
Some people think it's worth it to have some relief for a period of time.
Posted by orion (Member # 3858) on :
I am so pleased, but I am not at all surprised. It's amazing. Try to keep it consistent if you can.
Posted by orion (Member # 3858) on :
My prior post was a response to Diane. -------------- Haley, about the "does it last" conversation... we did everything, years of orals, 18 months of IV, 3 months of 10X a week HBOT, etc etc etc... you name it, we did it. She was brought back from the brink, she got a "life" again from he IV, but it was still a life with constant pain. Medsonix is what took her over the line and put her squarely back in normal life. She's now working full-time, learning how it is to work for a corporation (not so fun), the ins-and-outs of office politics, what mismanagement looks and feels like; she has a great boyfriend, she's in a 7-month high level Leadership program where she's been encouraged to write an inspirational book about her journey, which she is doing. None of this was possible without Medsonix. She still does it 1X a month. We'd like it to be a cure, but we don't know. We'll take this right now. Perhaps the cure may come, in some part, from being able to feel what it is to have a normal life again.
Posted by Haley (Member # 22008) on :
Thanks Orion. I'm really happy that she is doing so well.
Is she on any meds at all or is she primarily doing the Medsonix?
Posted by orion (Member # 3858) on :
She is not on ANY meds. She takes some supplements, period. She is med-free!!!! When we started, and I think I've said this, she could barely RIDE in the car to Vegas (4 hour ride). NOW, she drives there by HERSELF if need be, she's worked her way up to 4 hours sitting in front of the Medsonix, and she drives the 4 hours back to LA, tarts up, and goes out.
Posted by Diana 85 (Member # 23929) on :
Hi Orion! Thanks for the encouragement!
One thing my daughter likes about Medsonix is that it is a sound therapy, and it does not require needles.
Crossing the blood-brain barrier is an issue with medication for Lyme, so therapies that use alternate methods, such as sound, light, rife, seem to hold some promise.
Medsonix appears to help by supporting and activating the immune system.
It reduces inflammation and improves circulation which are a big problems in Lyme and other chronic illnesses.
If you can drop the inflammation load, and get the blood moving, the body can do a lot more to fight for itself.
Dr. S has written a great deal about reducing inflammation, and while the research on XMRV is in dispute, it has been said that inflammation feeds XMRV.
It seems that each person also needs to address the underlying problems that Lyme has made so much worse.
These could be mold, parasites, gluten sensitivity, a huge viral or bacterial load, etc. So I think this therapy can help a lot, and there may also be other things that a person needs to be doing.
We are going to continue going for treatments as Orion's daughter did, and see how it goes. We are all more hopeful at our house than in the past, which is certainly positive!
I will post updates as we go.
Posted by orion (Member # 3858) on :
Wow! This is so good to hear! Cant wait for the updates.
Posted by hopingandpraying (Member # 9256) on :
Bringing this post back up to find out the following:
1. Have any others tried this treatment and what were the results? I would especially like to know if chronic pain disappeared.
2. Were your results lasting or do you keep needing additional treatments?
3. Have any new Medsonix centers opened, besides Las Vegas and Naples?
Waiting for replies, especially updates. Thanks.
Posted by orion (Member # 3858) on :
Orion here, let me update you on my daughter. It does bring down chronic pain, bigtime. Does it last? Yes and no. She got relief for about a month, then it stretched into 6 weeks and going every 4 weeks. Life being what it is, this time it stretched into 2 months, and she has had more pain and is driving to Vegas this Saturday. I don't hold it as a "cure." I can't say if we've killed all the bugs and this is "aftermath," but in any event it has given her a life (working full time +), a boyfriend, and a normal existence.
A question we're kicking around is if Medsonix reduces pain, brings down inflammation, and increases blood flow, and if THAT'S what is making her feel so good, how can we do those things at home in the hopes of getting a similar effect??
Posted by sparkle7 (Member # 10397) on :
I posted some options earlier in the thread...
Posted by Diana 85 (Member # 23929) on :
Our daughter returned from her third trip to Medsonix this week.
Since her first trip to Medsonix in April, she has had medication changes, and is seeing a new doctor locally with excellent insight regarding digestion and exercise.
She continues to see the doctor she has seen for nearly a year for TBDs. While she made great progress with antibiotics, she was reaching a plateau level that left her with great limitations.
Disabling CFS was a good characterization, and the prospect of a normal life appeared remote.
However, since April she has made significant progress. April and early May were touch and go with some good highlights.
After the second Medsonix trip and recovery from plane travel, she had a better month with some travel and productive days. Every week had a few bad days, but most days she could count on getting some things done.
We just returned from our third Medsonix visit, and the difference in her while traveling and afterward is substantial.
She handled the plane trip without a post-trip multi-day crash. The day after she came home she was tired, but she was grocery shopping and out to dinner with friends.
Her energy level is up and her mental acuity has increased. Orthostatic intolerance has declined. Pain levels appear to have declined, but I will ask her specifically about that.
My own pain from a back injury certainly declined following treatment.
It is difficult to attribute my daughter's rapid improvement to anything except Medsonix. We have begun to anticipate that she will continue on an uphill path.
Currently, it appears she needs to go to Medsonix on a recurring basis to continue improving.
At the least, Medsonix therapy is an excellent adjunct to other treatments, and it may be the most essential treatment. The Medsonix staff we have met have been wonderful.
Posted by hopingandpraying (Member # 9256) on :
Thanks to all for the replies. I am so glad to read that this adjunct treatment has helped.
Have any other centers opened other than Las Vegas and Naples? It would be wonderful to have one in the Midwest.
Posted by orion (Member # 3858) on :
Great to hear Dana's daughter's good experience with Medsonix! Very consistent with our experience.
Posted by IckyTicky (Member # 21466) on :
I don't understand..if the treatment is all the same...why charge more if it's just for arthritis? Why not a set price?
Posted by kelmo (Member # 8797) on :
Orion, you were on here when I came on. As you might remember, my daughter started getting sick in her teens as well.
She has had continued progression in her treatment with one major relapse due to overexertion in school activities.
She has yet to get a job due to inconsitent symptoms.
I would be interested in hearing that she continues to improve without further treatment. I know this is not a cure for Lyme Disease, and only meant to give relief for inflammatory illness.
But, it is something to consider. I really appreciate that you have weighed the consequences of coming on here with the new "latest and greatest". For me, this gives the treatment validity.
You have nothing to gain from this, I can tell.
Give your daughter a big hug, from a mother who has sympathy.
Posted by Rumigirl (Member # 15091) on :
I've been interested in the treatment since you've had this thread going. It's a tough choice though, since it clearly isn't exactly a cure or treatment for Lyme Disease by itself.
There are so many other things we need to do to treat the illness and collateral damage, it's hard to know where our time and $$ are best spent.
But at this point, if anything would give a big boost towards feeling better and functioning better, that would be huge! It's just that one has to triage the time and $$ factor, since so much else has to be addressed.
Crystal ball, please!
Please, everyone who is doing this, keep us updated, as it sounds so promising. It's just not the most practical thing for those of us who have to fly there---which is most of us.
Posted by darwinsdream (Member # 30314) on :
Id also like to know if there are any older people that have benefited from this procedure.
I am seriously considering doing it. i live is AZ so it is do-able for me. The problem that does bother me is having to go once a month for treatments. I know i can drive but calculating the costs of staying, gas, treatment can still add up.
I know there are no guarantees but i guess we are all just trying to get the best information before spending the money - once again.
I have to say though - I am doing more and more reading on it and am getting pretty excited about it.
So - Anyone older out there doing it? I guess i ask this because, you know, we don't bounce back as easily as the younger ones.
Posted by orion (Member # 3858) on :
I recommended Medsonix to a Lyme patient, who took her 85 year old father, who was losing his sight due to restricted blood flow to his eyes. He was a retired doctor. In the morning, before the treatment, he could not read the breakfast menu, so she read it to him. Then, at the end of the day, after two 30 min. treatments, they went to dinner and he could read the menu! Also, he did not need his usual afternoon nap, and then wanted to go to a movie, which they did, and he did NOT fall asleep like he would always do. He was begging for one to come to LA! There are a LOT of us begging for one to come to LA!
Posted by Imaginit (Member # 20399) on :
I just called Medsonix and they told me for lyme I would need four treatments in the am and four in the pm and to do that for three days. Cost is $199 for four treatments--acutally quite cheap in the lyme world imo. They also have a rate of $99 at the Bellagio for lyme patients. As for returning every month, they said it's up to the person. One could go every month or every two or three months. Makes it easier for us who live a long way away like in Montana.
Posted by orion (Member # 3858) on :
I'd try it out once and see how that goes. VERY important to take an inventory of symptoms before starting... meaning you walked in the door with a headache of X, fatigue of X, joint pain of X, etc. And then note any changes you have at the end of each day, or the next morning. When you start to feel better, you can easily forget how badly you felt before. We started out at one month intervals, and now we are at 6 week intervals, except this time, when -- because life was so good -- we let it go to 2 months. We are in LA, a 4 hour drive away, so it's relatively easy to get there. It's a "commute!"
Also, remember that they can't answer any medical questions, so don't ask. They are not allowed to under their FDA designation. Some people have been inappropriate about this. Just enjoy the ride!
Please report back!!!!!
Posted by Diana 85 (Member # 23929) on :
My daughter says her pain is much less after treatment. Also, many older people go to Medsonix and appear to have much benefit from it.
Posted by Diana 85 (Member # 23929) on :
As Orion said, if you try it, do inventory your symptoms first. After our first visit, I was not sure how much Medsonix had helped my daughter versus the stress of traveling, especially by plane.
However, I knew it had helped me. After another few visits, it has clearly helped her. Tonight she is busy reorganizing my pantry, which is quite a change from a few months ago.
We met an older gentleman with Lyme at Medsonix, and his wife told me he was getting a lot of benefit from it.
Hope to hear other's experiences!
Posted by Imaginit (Member # 20399) on :
So Diane and Orion, Should one do just one treatment and then come back a month later. How did your treatments go? Did you do several a day? One a day for several days or what? Thanks for your help.
Posted by orion (Member # 3858) on :
That is sooo great to hear! This is why I waited a YEAR to tell anybody about this. We have suffered so much financially from Lyme... I did not not want to have one other person suffer needlessly.
Posted by sparkle7 (Member # 10397) on :
Not to sidetrack but CFS can be caused by a parasite called Cryptostrongylus Pulmoni - hidden lung worm. You may want to have your daughter try an anti-parasite protocol...?
I had CFS when I was in my 20s & it went away but I developed Fibromyalgia 8 years later - which was re-diagnosed as Lyme. The anti-parasite herbs really helped me.
Posted by dan67 (Member # 20344) on :
How does one find out where the machines are available?
Posted by hopingandpraying (Member # 9256) on :
I was still wondering if any new centers have opened (or will be opening?).
I only know of two: one in Las Vegas and the other in Naples, FL.
Posted by orion (Member # 3858) on :
Imaginit... It depends on how far away you are from Naples FL or Las Vegas NV. If you are close enough and have the resources enough to do it, I'd give it a couple of times..., document the results, and go from there. It really DOES bring down inflammation, increase blood flow, and decrease pain
Posted by orion (Member # 3858) on :
Dan67, There are only two places with Medsonix machines... Las Vegas and Naples, FL, at this time. Posted by Diana 85 (Member # 23929) on :
Hi Imaginit, My daughter has gone twice a day for 3 days when we went to Medsonix. I think repeated visits may have more success in terms of a consistently better lifestyle.
I had read some reports from people who went once, and then returned some months later after the benefits of the initial visit wore off. However, Orion's account on Lymesucks.org recorded monthly visits with continuing improvement, with a result in her daughter leading an amazingly normal life.
I would recommend going more than once, but try it first, and go from there.
As far as the treatments, my daughter has often felt poorly after the first day. The next two days are better, and on this third visit, the plane trip did not affect her badly. She has had a good overall energy level since returning. Still much to deal with, but amazing progress since April.
Posted by Diana 85 (Member # 23929) on :
Hi Sparkle7! Thanks so much for the article on the link between CFS and parasites. I had noticed that CFS doctors have often used wormwood in their protocols. With a compromised immune system, it is easy to see that parasites become another issue to address.
Posted by nighthunter21 (Member # 32937) on :
Hello everyone! Like so many I have battled the lyme for years (I am 60 years old) useing most of the newest and greatest supposed treatments available with little results until Medsonix.
My results have been as orion has stated of her daughter except maybe more reactions from the treatments (sick, headaches)
I take 2 hours morning treatments and 2 each afternoon for 4 days.
Normally the first day I feel fantastic with the morning treatment with reactions of sickness after the afternoon treatment.
The second thru fourth day treatments seem to bring me up each day.
My daughter (33 yrs) also has Lyme and has now had 2 months treatments with similar results.
My wife has had a few treatments with us with no reaction from them (she does not have lyme) except some arthritus releif.
My foot problems from diabetes has greatly improved.
The plane flight and full day of travel has become much less stressful as the treatments have progressed.
I have gone from almost no activities to makeing 12 hour fishing trips (yes they were very hard on me).
Is this a treatment worth the money? No question for me and my daughter.
Al (the owner and inventor of the equipment) is really nice guy that has reduced the cost of treatments for us lyme patients.
Try it if you can as I think you may find some releif as we have.
Posted by Diana 85 (Member # 23929) on :
Nighthunter, This is great news! Glad you are doing so well!
Posted by mjbucuk (Member # 843) on :
For what it's worth, I found some interesting websites regarding acoustic therapy:
Call me paranoid, but why Does nightthunder only have one post on lymenet?
Posted by nighthunter21 (Member # 32937) on :
dan67 the reason I have not posted here before is I would never reccomend something I did not personly see produce effective results.
If my results are suspect to you just ignore them.
Sorry I contributed to your website in a suspect way. I was only trying to help others. dan67 you can do all the posting here for me from now on.
Posted by Diana 85 (Member # 23929) on :
Hi dan67, Many of us with Lyme in the family do more reading than posting on this site. We tend not to have much new to offer, but greatly appreciate what we learn from others. I know Nighthunter and his daughter. This has helped him, and he responded to the requests from people who asked for input from older people with Lyme. I hope Nighthunter will keep us posted on his progress!!! Posted by scorpiogirl (Member # 31907) on :
Ok... after reading all this I'm going to see if I can get to Vegas this weekend or next to try. I will report my result if I go!
As long as it doesn't hurt (with needles involved) I'm will to give it a try. If it works well for me obviously I would want to take the baby. I'm going to call them right now to see if they can squeeze me in.
Posted by scorpiogirl (Member # 31907) on :
Dang it they are not answering! I guess they don't have a receptionist then or an appointment person.
Posted by scorpiogirl (Member # 31907) on :
Does anyone know what their turn around time is for returning phone calls? I am making plans for this weekend and want to squeeze this Medsonix in if at all possible (since I'll be 1/2 way to Vegas already what's another 2 hours drive) but I don't want to make husband ask for time off work and book a hotel if I can't even get in! So everything is up in the air right now...Patience is not my greatest virtue can you tell?
I feel like a desperate girlfriend stalking her man! Sheesh!
Posted by Diana 85 (Member # 23929) on :
Hi Scorpiogirl,
I think Medsonix hours are 10 to 5, or maybe 9 to 5, Monday through Friday. I think Saturday might be by appointment only. I would anticipate you would get a call back tomorrow, unless they are closed for some reason. They have a small staff.
I might call again in the morning, to make sure they get your message. You could also try to leave a written message through their website.
No needles in this! That was a big draw for my daughter. She does have some pain during treatment, and some pain after the first day. Many people just have some tingling.
It took 2 treatments a month apart before my daughter and I were fairly convinced it was helping her, and worth giving a longer trial.
Hope it goes well for you! Posted by darwinsdream (Member # 30314) on :
Nighthunter - and anyone else doing treatments
I'm the one who specifically asked if anyone older has done these treatments. Thank you so much for responding.
It would make sense that it would take more visits for someone who is older, sicker or who has had the illness for a longer period of time.
I think for many of us, I know me for sure, spending thousands of dollars on treatments, the money either isn't there anymore or it's just scary to plunk down more money.
I'm 51, very ill for over 20 years and was told I would need 2 days of treatments - 4 morning, 4 afternoon - $400 pr day.Now that's $800. I can see myself doing that by the skin of my teeth but if i really have to go for 2 more days that's another $800 and I just can't do that. That's the scary part.
Do you feel we would benefit from going less? Say a person can only go 1 day a month, Do you think they would benefit from that?
I know these questions are not ones that anyone really has the answers to, but from experience, I guess I am asking for your educated opinion.
Or....maybe I just have to once again see it as...there are no guarantees in life...but there is hope everyday.
Posted by Marnie (Member # 773) on :
[ 07-25-2011, 10:27 PM: Message edited by: Marnie ]
Posted by nighthunter21 (Member # 32937) on :
Darwinsdream It is my opinion that 1 or whatever amount of treatments are affordable will improve your life. The first treatment made me feel better.
Talk to Al when you go and explain why you want to take the number of treatments with each visit.
Posted by darwinsdream (Member # 30314) on :
thanks Nighthunter,
I think the ones that are considering it like me need to hear that any amount of treatments will be help. That's the key right there.
Obviously, the more you can do the quicker you will feel better and the better it will work.
Please keep the experiences coming.
This treatment seems to be very hopeful.
For those that can't afford the long trip - there's got to be more of these popping up soon in your area. They are offering franchises and it seems to be a money maker. So, sit tight, you will be able to get this treatment soon.
More hope!
Posted by Marnie (Member # 773) on :
For those who cannot afford the trip...I posted some alternative links above that look to do the same...a drug, accupuncture, and likely doing that frequency via Rife may help.
Keep this post up and going.
I think there is a very very valid reason why this helps!!!
What this is all about is combating Bb's "toxin" (which is PLA2 - inhibiting acetylcholine release) which leads to ongoing inflammation...ONGOING...which looks to PROMOTE Bb's survival.
This, like many other treatments, may take a LONG TIME i.e., many treatments to work.
Posted by Diana 85 (Member # 23929) on :
Hi Marnie, Thank you for the interesting and insightful research regarding 600Hz. A lot to think about.
I noticed that 600Hz is listed as the frequency for Leprosy on RoyalRife.com. Interestingly, Leprosy is a chronic inflammatory disease caused by bacteria, attacks the nerves, bones and skin, and responds to long term multi-drug therapy.
Posted by Rumigirl (Member # 15091) on :
It's also a major Lyme frequency for rife machines and other frequency devices, like Ondamed.
Posted by Marnie (Member # 773) on :
Curious...does the sound you hear sound when doing the Medsonix treatment sound like what I will link below?
I am going to link what 600Hz sounds like (which apparently is the frequency they use).
I wonder if one played that frequency (by ***looping it*** so it is played nonstop) and recorded it for 1/2 hour (so it can be played daily) would it help?
I suspect it might take several days i.e., many treatments to actually work.
I don't think earphones (listening to nice music during the 1/2 hour treatment) is necessary since this is the frequency of a newborn's cry, the background frequency in some plasma TVs, the frequency of a police siren, and the buzz of a mosquito,etc., but certainly listening to it nonstop would be really annoying!
Treatments cost $50 for 1/2 hour though some packages are avail. for out of towners who have to travel to Naples (Florida)and for lyme patients who need LOTS of treatments. The machine costs $100,000 which is why not too many "alternative" places have one (only 2 so far).
Probiotics always!!!
[ 08-06-2011, 11:01 AM: Message edited by: Marnie ]
Posted by orion (Member # 3858) on :
Marnie, You are an awesome researcher. Could not get the first link to play -- have a JAVA issue, and I'm working and can't be doing downloads on the set. But I will check it out later at home. What I do know is that there are three patents on the Medsonix, and that there would be NO sound if it was not going through a transducer, none of which I understand.
Posted by hopingandpraying (Member # 9256) on :
Would love to hear updates from people who are continuing this treatment and from those who have just started it.
Posted by Mo (Member # 2863) on :
this is interesting.
is this link that marnie posted the sound you hear?
Re: the link Marnie posted re frequencies. I know that the Medsonix is 600mghz, but that also there are 3 patents on it, so it's much more than just the tone. When you go to Medsonix, they have a meter and they measure the pressure waves. I'm sure you don't get pressure waves out of an audio speaker. This is not my territory!
Posted by Mo (Member # 2863) on :
it's a very intriguing subject. thanks so much for sharing, orion, i know you and your daughter have had a very long and rough road.
i'm so glad it is helping.
i think true and considerable reduction of inflammation over a sustained period could at the very least support a cure, if not enact it.
mo
Posted by orion (Member # 3858) on :
That's my thinking, too.
Posted by Diana 85 (Member # 23929) on :
We returned from Medsonix late Sunday night. My daughter feels poorly during treatment, but much better afterwards. On Monday she was up at 6 am, worked a full day, came back to our house, exercised and ate dinner, and then drove home 40 minutes to her apartment. She's had amazing gains in energy level and mental clarity.
When our daughter began Medsonix treatment last spring, returning to full time work and a self-sufficient lifestyle appeared unlikely. These treatments are proving to be a powerful aid in her recovery.
Posted by hopingandpraying (Member # 9256) on :
Thank you, Diana, for the great update on your daughter. So glad to read the treatment has helped her and I wish her continued improvement.
Do you know if any other Medsonix centers have opened up across the country? Wish I had the money (very expensive!) - I'd open up one too!
Posted by Diana 85 (Member # 23929) on :
There are plans to open one in the Los Angeles area in the near future. Currently Las Vegas and Florida.
I wish this could be available locally around the country, as it seems to help so many conditions.
Posted by orion (Member # 3858) on :
Diana -- That is SUCH great news! It parallels my daughter's experience. Energy goes way up! Gotta love it! Orion
Posted by dan67 (Member # 20344) on :
up
Posted by dan67 (Member # 20344) on :
up... updates?
Posted by orion (Member # 3858) on :
Hi Dan67, Be glad to give an update! Things are GREAT! Our daughter continues to live and WORK normally. (ie. she works for FOX Sports International on the live soccer matches from Britain early in the am, like 3am. Getting up on a Sunday morning and getting there at 3am, and working till noon is a scenario that was entirely UNTHINKABLE prior to Medsonix.) She went to Medsonix two weekends ago without having been there for over 2 months! When she goes, she now usually does 4 hours of treatment.
I cannot say enough about what Medsonix has done for her. And what it continues to do. Now her treatment visits are getting further apart. I call that progress!
We are very grateful.
Also, there is a Medsonix operning up in LA shortly.
AND, everybody calling Vegas needs to know that there is no receptionist -- it is first and foremost a "showroom", and then it's a treatment center. The owner/inventor Al, is there and does not keep regular hours as this is not a walk-in sort of business. He's working on getting more of them out in the world, and I support him 110% in that -- I want one on every streetcorner!
Orion
Posted by nefferdun (Member # 20157) on :
There is also low level laser therapy which you can use at home. It is FDA approved to stimulate circulation, reduce inflammation and helps relieve pain.
Totally unrelated, there is something called velashape that uses infared light and radio frequencies to heat up the collagen. It is used to reduce cellulite but I bet it would also knock out a few critters in the collagen too.
Posted by dan67 (Member # 20344) on :
The few people on this thread who have actually USED medsonix as opposed to just guessing about it, say that it has REALLY helped them.
Yet, why so few people using it?
I don't understand. If it is this good, why aren't more people trying it? I want to try it, and probably will. This therapy has been out for years, yet so little usage.
Posted by orion (Member # 3858) on :
Well, Dan, I think Medsonix is presently "geographically undesireable." There's one in vegas, one in Naples FL, and one in Sherman Oaks, CA, about NOW! In fact my daughter got a text from the new owner inviting her to "come on down!" So it sounds like it's "up and running."
I say, "Woo hoo!" Bring them on.
Look, is it going to make a huge difference for EVERY Lyme patient?? Odds are, probably not. No one knows, REALLY, what everybody is featuring in terms of infections. It's a crap shoot. But aren't we Lyme parents and patients used to that... in sort of a horrible way???
Look, I held OFF from talking about this for a YEAR, until I could say unequivocally that this sucker WORKS, at least with my daughter, who was a VERY TOUGH CASE... and who had been labeled as such by her beloved LLMD. (Translation: "I can't do anything for you anymore.") And because Lyme patients have pretty much ALL been through the ringer, I could not live with myself to contribute, in any way, to that burden.
Posted by dan67 (Member # 20344) on :
orion, does the one in sherman oaks shorten your daughters commute? Sounds like it would? That would be fantastic. Where I live, its a plane flight to either location. However, I was talking to my wife and toying with the idea of buying a machine and setting up a "clinic" where I live where people could pay to use it, maybe after 5 years I make my money back? Why not? I hate the traveling, just too busy, and its a pain in the butt to travel somewhere. But I will come soon to try the machine.
I do appreciate your willingness to share your daughters story, that will greatly help other searchers.
Posted by Blackstone (Member # 9453) on :
It is unusual to find an infra-sound or really any sort of "vibration" device with as many positives reports and some clinical backing.
That said, I'm eager to know what makes THIS particular device special? Do they use a certain wavelength that others do not? Any special materials that are necessary for its construction? Is Medsonix willing to share the information regarding their emitter, to the point that someone else could construct or program a similar device to provide the same emissions?
I'm also interested in how it may work on Lyme patients. Does it actively somehow affect the pathogen a la "Rife" or biophoton therapy? Is it affecting inflammation? I'm hearing a lot regarding an improvement, but as others have said they don't feel it a cure for Lyme itself, so I'm wondering if it somehow counteracts the negative secondary effects of the pathogens.
Those that have been helped by this therapy, I'd be interested to know..
1. If you had confirmed Lyme infection 2. If you had confirmed Babesia, Bartonella/BLO, Protomyxoa, etc... coinfection 3. If any of the above confirmed pathogens were treated significantly prior to your experience with infrasonic therapy with antibiotics, herbals etc... by a LLMD. 4. Are there any who found this to be a pivotal piece of the puzzle and after this sort of therapy was introduced, went into remission or felt "cured". That is to say, it was not constantly necessary to engage in infrasonic therapy or other therapy to avoid relapse to the prior state. 5. Subsequent to therapy, did any patients have changes regarding other objective metrics, such as those measured by blood test?
If this does have anything besides anecdotal merit, I'd like to find out its limits and benefits. For instance, is it something used best to "clean up" after other treatments? Should it be introduced with other direct "attacks" on the pathogens themselves (assuming the infrasound therapy itself does not directly attack)? Does it provide the body with an "optimal state" of sorts regarding ANS, hormonal, and immune systems that better allows the body to fight off the pathogens themselves? What circumstances make a patient a good or poor candidate for the therapy?
I'll look into this a bit. Thus far I've not seen any particular variants of this therapy that have proven significant, but I'll look into this type specifically.
To be completely honest, I'll be considerably skeptical if they keep the specifications of the treatment as a trade secret. If this is truly as dramatic and life-changing a therapy as it could be from testimonials, it should not be limited to a proprietary methodology, only available in two places in the country, with devices created by a single company.
I'm am not doubting or disparaging anyone who has received relief from Medsonix; I'm very glad that you've found something that has been part of your healing process. I'm just trying to figure out its parameters so that patients who will benefit can be exposed to the therapy and ultimately, as it stands up to scientific inquiry it can become a commonly available treatment modality.
Posted by dan67 (Member # 20344) on :
At 14 seconds, there is the sound of the machine. I turned my computer speakers way up and played this about 50 times (the 4 second segment starting at 14 seconds).
Note: I have a VERY high end speaker system on my computer.
and....
I am not kidding, I began to herx and feel all my Lyme areas get "warm". You can call me crazy, but I swear this happened.
I'm going to bed, but will try more tomorrow. If it works through computer speakers, one would have to believe that his real machine is MUCH more powerful, so I'd like to try it. Also, the fact that it works through computer speakers may mean that it isn't his special machine that matters, but instead, simple sound, amplified. So perhaps would work with a very fancy speaker system???
More to think about....... another day.....
Posted by jarjar (Member # 8847) on :
If I lived closer to a location I would do a few treatments and access how I feel. If you got to a point to where you only went in once a month it would not be a financial burden if you lived not that far away.
Posted by orion (Member # 3858) on :
Regarding listening to the tone through the speakers... you may have really gotten a "mini" treatment. I can't say, this is not anywhere near my area of expertise.
When you are in the room with the Medsonix, the sound goes through a transducer, which, I think, means basically a tank of water. Al can walk around the chairs as the machine is going with some kind of meter that measures the sound waves at each chair, and can point to you the chair that's "strongest" or "weakest," whichever you think might be the best for you! There really IS something there!
Orion
Posted by Rumigirl (Member # 15091) on :
I would LOVE to try this. I've thought about it a lot on and off. The problem is that, for me, too, it's a plane flight away, plus hotel, plus local transpo, plus the treatment cost every time I'd do it.
Plus, I know that it is not really a treatment for the infections, which I really need, so . . . financially pretty tough at this point. Not to mention logistically tough.
Posted by nonna05 (Member # 33557) on :
has anybody talked to a LLMD about this ??/ What was the response??
I'm having a hard time getting even out the door or take a shower, so don't see how I could get there .
Unless a little break through happens with meds.
Was told it could take a few months with Mepron...and whatever for LD...
Posted by Diana 85 (Member # 23929) on :
An update: With each Medsonix treatment, my daughter emerges with less pain, more energy, and is slowly but surely recovering her health. Quite amazing to watch, and in the miracle category. Since last spring she has had about 8 treatments.
She has been working for 4 months, something we did not expect could happen. Still on medication, side effects, fatigue, coming down with random viruses, but getting a life back.
Her local doctor does blood microscopy, and says her blood has gone from Lyme prevalent, poor circulation, poor immune system, to a healthy immune system with toxicity problems. While Medsonix is not a treatment for infections, it seems to send them scuttling.
Her LLMD, who has treated her for a year and a half for positive test results of Lyme, Bart, and Babs, is very pleased. He recommends detoxing during and after her Medsonix treatments. He has other patients who have heard of and are going to Medsonix.
We have met several people being treated for Lyme at Medsonix, but I have not seen posts on this site from them.
Regarding the treatment - see an interesting link that Marnie researched: "If you want to see a video about it:
Great news that a Medsonix is opening in LA. Like Orion, I would love to see them around the country. My daughter could drive 20 minutes to get treatment somewhere, but travelling across the country is a different story. Still, that is something I believe she will be able to do soon.
Lyme is so disabling, that the thought of travelling is overwhelming. And the financial drain of lost work, doctors, medication, and supplements, goes on and on, as so many on this site have experienced. So the money may not be there for travel to another therapy.
I know plans are underway to try to open many of these around the country, and I certainly hope one will land close to our region, and to many of those here on this site soon.
Orion, thank you so much for keeping us informed. That your daughter has gone for 2 months between visits is a real encouragement!!! I am happy she continues to do so well!!!
Posted by dan67 (Member # 20344) on :
Diana - thanks for the update. What do you mean by, "plans are underway to open many of these." Do you have specific information on this? Thanks.
Posted by Diana 85 (Member # 23929) on :
Hi Dan, I think there is someone interested in putting these in several locations around the country. That is all that I know. The existing locations are Naples, Las Vegas, and now Los Angeles area - Sherman Oaks.
Posted by sick (Member # 9143) on :
What we need to do is try to get a bus or something so a bunch of us from each region could ride together and share the expense getting there.
sick
Posted by sick (Member # 9143) on :
I also wondered if anyone had talked to their doctor about this treatment.
sick
Posted by Diana 85 (Member # 23929) on :
My daughter's LLMD, who has treated her for a year and a half for Lyme, Bart, and Babs, is very happy with her progress. He recommends detoxing during and after her Medsonix treatments. He has other patients who have heard of and are going to Medsonix.
My daughter's local doctor does blood microscopy, and since she began Medsonix treatments, says my daughter's blood has gone from Lyme prevalent, poor circulation, poor immune system, to a healthy immune system with toxicity problems.
Hang in there Posted by orion (Member # 3858) on :
Diana 85-- great to hear about your daughter's progress with Medsonix and the empirical evidence of her bloodwork! I am sooo glad to hear this! Orion
Posted by mike21 (Member # 25035) on :
Nighthunter21 (me) was sent a pm that i have not been able to answer before. My progress has continued with my medsonix treatments being less in number but longer in duration. I now take 4 hour treatments at a time. Since I have to travel a long distance I like to take 2 or 3 days of this (last time only one as I had to leave early). I still have issues but am able to work longer. Headaches and sleep are still a major problem.
Posted by sick (Member # 9143) on :
orion It is with a heavy heart that I post here tonight. You see I have had Lyme disease for over 45 years. Like many of us it took most of my life before I found out what was wrong with me. Since I have been sick so many years I haven't been able to work much so I have very little money. I thought it was bad enough that I had Lyme disease and was never able to be much of a mother to my kids but now I have even worse news. My son who is 29 has lyme disease also. He has his first appointment with his doctor tomorrow. I just hate to see him start down the road I have gone with so much medicine. Do you know if there is any hope of them opening up one in the midwest? I fear I already know the answer but I am not out anything to ask. Thank you in advance for your trouble.
sick
Posted by jarjar (Member # 8847) on :
Thanks mike for your update. I was the one that sent the pm. I did talk with Al about 2 weeks ago and the sessions in Vegas are more reasonable.I was quoted for 3 days at 4 hours per day, it would be 200.00 per day.
Al is really more interested in helping people feel better from Lyme then trying to cash in.
I also feel he has lowered the rates for lyme from last year due to the discovery that it takes more sessions to help out most people with lyme.
[ 03-01-2012, 04:05 PM: Message edited by: jarjar ]
Posted by hopingandpraying (Member # 9256) on :
If I had the money, I most definitely would open one in the Midwest!!
Posted by sick (Member # 9143) on :
Oh that is so sweet of you hopingandpraying. If I had the money I would open one up in every state and do it without a profit just to help all the people who need it so much. Little kids could have parents who are well and brothers could have sisters who are well. The list just goes on and on.
sick
Posted by orion (Member # 3858) on :
Frankly, I'd like to see a Medsonix on every street corner! Yes, Al does make financial accomodations for Lyme patients. He is REALLY a GREAT guy!
Also, I warn people to take it easy on treatments at the beginning... it does not produce side-effects, but when doing it at first, I think taking it slow is better. Sitting down and doing 4 hours 1st time out MAY produce something like a herx. I know it's happened to at least one over-zealous Lyme patient. Just take it easy and build up.
Posted by boulderlyme (Member # 36430) on :
I am new on here, just registered, but am very intrigued by this thread that I cam across. My 12 year old son has been sick for 14 months and was finally diagnosed by a LLMD here in Colorado about 6 weeks ago. He is on a detox diet, antibiotics, tons of supplements, frequency specific micro-current treatment, etc. He just started the antibiotics 2 weeks ago, but he is horrible shape. His doctor says this is probably the "Herx" reaction, but it is so hard to see him getting worse, not better. Would you all recommend that we wait longer before we would try this treatment? He has only been in school about 15% of the time over the last year. Luckily, he goes to a great private school and we do what he can at school and the rest at home. I would take him to Vegas from CO asap if this could really help him feel better. I would like to see if my Dr. has heard of it, but am fascinated that this could be something that would work. Please let me know what any of you think on the timing we should consider. Thanks.
Posted by orion (Member # 3858) on :
I hear you on this one. I know what you are going through. Our daughter was SOOOO sick. Medsonix does not kill bugs. Its FDA approved to bring down inflammation, pain, and increase blood flow, and it does those things. (One would think those are good things for Lyme patients. I did.) But we did not do Medsonix till we had done tons of meds (including 18 months of IV) and we had no doubt killed a LOT of bugs prior to Medsonix. There are NO studies on this. And I'm sure your doctor hasn't heard of it. You can read the full account of our journey on LymeSucks(dot)org.
Posted by sparkle7 (Member # 10397) on :
There has to be a way to do this at home using different technology... I have been looking into it & found other devices. I don't have time to do a thorough search now. Maybe others can look into it...?
I think you basically need a transducer to produce the low frequency sound waves. I'm not sure why the sessions are so expensive & why Medsonix is the "only" way to do this...
I did find this device but there was no price on the website - or even practitioners... The inventor is pretty well known in some circles.
The Medsonix uses a low- frequency sound wave of 600 hertz. I guess one would need to look for a similar device...?
Posted by boulderlyme (Member # 36430) on :
Thanks so much orion - I will check out your site and story. I know it is not a cure, just want to do anything that will help him. I will read more about it and stick to what we are doing for now - but keep this info for down the road. Our doctor thinks that our son could be better in 4-6 months possibly, but reading all the stories on here sure is discouraging. I know this could be years, but am praying that he can get better.
Posted by sick (Member # 9143) on :
I think this should be kept on page 1 so everyone is aware of this place. It seems very promising to me. I just hope they keep adding new states where we can go.
sick
Posted by hopingandpraying (Member # 9256) on :
boulderlyme -You should take your son for Medsonix treatment as soon as possible, if you can. It's worth a try.
My son has been ill for 12 years and, if we could, we would take him too. He has had chronic pain in his chest, sides, back and arms for 6 years and we haven't been able to hug him (it hurts more to be touched).
BTW - Please break up your posts into 2-3 sentence paragraphs, as there are people on Lymenet who cannot read large blocks of text due to neurological problems. Thanks.
Posted by sick (Member # 9143) on :
Thank you orion for all the information. Please keep us informed if they do open up any new places. sick
Posted by orion (Member # 3858) on :
A Medsonix has opened up in Sherman Oaks, CA (SoCal, Los Angeles area.) I don't know the details of it, but my daughter has been there and used the machine. If anyone wants to know more about that location, I'd Google it, and if no results, call the Las Vegas office number which is on www.medsonix.com. Or send me a note to bev AT lymesucks dot org.
Posted by sick (Member # 9143) on :
Thanks Orion please keep us up to date on things.
sick
Posted by Rumigirl (Member # 15091) on :
Any more updates/feedback on Medsonix?
I have followed this thread with great interest. I'd love to do it. It's just the money, and the fact that I'd have to fly there, pay for a motel, etc. each time. And right now I am focusing on getting and paying for treatment. But I am pretty desperate to feel better, even somewhat so.
Wish there were one in my area.
Posted by sick (Member # 9143) on :
UP
Posted by jarjar (Member # 8847) on :
I had a ticket to burn so I tried it about 2 months ago. It was effective for me as the 3rd day I started herxing hard and had to stop. Rested for about an hour and drank water. As I drove back to the airport I had a burst of mental clarity and very little fatigue, my two worst symptoms.
I should add I stayed on my abx for bart. while I did the treatments as I knew if you knock back the inflamation the abx can go to work.
After about 2 weeks the improvement slipped away. It is a continual type treatment and I'm not in the position to buy plane tickets,hotel rooms,rental car plus Medsonix charge, every month.
Glad I did it though because next year I could be in a position to move closer to a location if I really wanted to. Then drop in once a week or every other week and see where more frequent visits would take me.
Posted by orion (Member # 3858) on :
Jarjar, Glad to hear that it made a difference for you! (I want one of these on every street corner!) My daughter continues to do it, but less frequently. She is living a normal life now. Actually, MORE than a "normal" life, but that's a long story not sppropriate to this space.
Posted by hopingandpraying (Member # 9256) on :
orion - just wondering if any more places have opened up (Midwest?). Please update.
I seem to remember Sherman Oaks (?), CA was the last one.
Posted by jarjar (Member # 8847) on :
hope, I talked with Al about that, he mentioned one city and then got very vague about it taking place.
Posted by hopingandpraying (Member # 9256) on :
Thanks, jarjar - please keep us posted if you hear anything.
Posted by sick (Member # 9143) on :
Since these are in so few places would some of us be able to take the mercy flights (that may not be the correct name)that will take us to doctors for treatment or would this qualify for that?
sick
Posted by Rumigirl (Member # 15091) on :
Orion,
Well, maybe the details of how your daughter is now living MORE than a normal life isn't appropriate here, but I'm sure that I wouldn't be the only one to want to hear them! We need inspiration from those who have "made it to the other side!"
Any more updates anyone? I still want to do it, but keeping up with my treatment/supplement/medical costs is an enormous challenge as it is. Adding flights, hotel, and Medsonix costs---don't know how i'd do that, esp to keep it up.
My sed rate is through the roof though (indicating a LOT of inflammation, so . . I'm sure it would be great.
Posted by orion (Member # 3858) on :
Rumigirl, The medsonix SHINES when it comes to anything inflammatory and circulatory. So, I agree, it would probably do you good. Thing is, you do need to do it with some regularity to break up the inflammatory cycle, IMHO. It's painless, but not in the "expenses" department.
Posted by dan67 (Member # 20344) on :
any update on medsonix? I just heard from someone who said it helped them. Want to hear more from those who've used it.
Posted by dan67 (Member # 20344) on :
updates, anyone!!?? medsonix has gone totally silent... please, people share!
Posted by hopingandpraying (Member # 9256) on :
Would also like some updates
orion - are you out there?
Posted by orion (Member # 3858) on :
Orion here. Update on daughter: Living a normal life, has a job she loves and works very long hours, moved out into her own place. All unthinkable not that long ago. Medsonix was a BIG part of it. They are in Las Vegas and I see that they have moved. They have posted a $199 offer that's good for 4 sessions. Not a bad deal IMHO.
Posted by dan67 (Member # 20344) on :
orion -- that's great to hear!!
Can you tell us what else your daughter did that helped? You said "medsonix was a big part of it." What else was part of it? Thanks :-)
Posted by orion (Member # 3858) on :
Well, the BIG part was 18 months of IV ceftriaxone. It got her from horizontal to vertical, which was fantastic, but it did not bring her daily life back into the zone of normal functioning and being pain-free. Medsonix did the rest.
Posted by TNT (Member # 42349) on :
Yes, that is great news! Is there one near PA?
Posted by orion (Member # 3858) on :
I don't think so. There is one in Naples FL.
Posted by dan67 (Member # 20344) on :
also one in las vegas and los angeles
Posted by dan67 (Member # 20344) on :
the one in naples closed
Posted by MannaMe (Member # 33330) on :
I tried emailing them and it said my message failed to be delivered. I tried using the contact button on their website.
Posted by hopingandpraying (Member # 9256) on :
Thanks, orion, for the wonderful update on your dear daughter.
Are the Las Vegas & CA offices the only ones open now? Wish we had one here in the Midwest!
I'm also a bit confused, because I googled Medsonix for CA and two locations came up: Sherman Oaks and Santa Monica. Are there two or did they move from one town to another?
Posted by orion (Member # 3858) on :
Yes, I've known about the Van Nuys (Sherman Oaks?) one, but I wasn't sure it was still open. I'd call the number at the Las Vegas one and talk to Al, and find out what's going on, and where. Don't annoy him with questions about treating Lyme. He's not a medical professional, and by law he cannot (and never would!) make promises or claims about what the machine does, other than it: 1. brings down inflammation 2. reduces pain 3. increases blood flow.
Those are the things that it's PROVEN to do, so if any of those getting better in your body due to Lyme or anything else seems like a good idea to you, then you might want to consider it.
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