My fatigue has been dominating my other symptoms this past week or so.
I am not sure if it is because I am not in deep stage sleep enough but I have been sleeping ok (yes on meds for it though) and I can't take naps even when I try, even so tired.
I have been taking B12 shots in my thigh 3 x a week for the past few weeks - I am not sure if that is contributing to it - if anything I would think I should have more energy from it but it is doing the exact opposite. Maybe it is not related.
I just feel like a walking zombie.
Does NT Factor work for fatigue - I have read in Dr. B's guidelines that is is good - I wanted to hear people's feedback on it. I might order it at my next LLMD appt. Apparently it is much cheaper than the Immune Transfer Factor I am on now so that would be a nice plus to switch it out.
Oh and I am anemic so that cannot be helping the situation as well..
Posted by Lymetoo (Member # 743) on :
Be sure to do the shots early in the morning.
Have you been treated for babesia yet?
you're right .. being anemic doesn't help!!
Posted by penguingirl (Member # 28688) on :
Yes I do the shots after breakfast. I am bruising like a peach!
I have been treating for babesia since mid Feb with Mepron/Zith/Plaquenil and just added in Artemisiae since mid March.
But I had to stop all meds per my LLMD 2 days ago because of the ear pain. Hopefully we can start it back next week once we know the ears are ok. Getting it checked out tomorrow w PCP.
The good news is that my BM is normal now! maybe it was the Mepron..
Posted by Maradona (Member # 24552) on :
Take D-ribose ,B-complex B6 50 mg a day alpha lipoic acid ,L-carnitine,Whey protein and zinc magnesium and other minerals.
Posted by stillwater (Member # 30312) on :
I'm taking both NT-Factor and Phosphaline 4:1 a half hour before each meal. I do believe they are helping with fatigue.
But with Lyme, who knows?
Posted by Lymetoo (Member # 743) on :
Your babs herxes are what is making you so fatigued. They are the worst!
Posted by penguingirl (Member # 28688) on :
Yes this is awful - but at least I can work from home and just lie down a lot. Could not do that in the office obviously.
Stillwater - I'll try the NT Factor when I go to my next appt.
Maradona - I am taking Riboscardio - not on a daily basis because I keep forgetting, but I will try to take 2 servings today.
Posted by tickled1 (Member # 14257) on :
I had issues on Zith w/BM's.
Posted by penguingirl (Member # 28688) on :
True - it could've been Zith because I started Zith/Plaq at the same time I did Mepron.
Maybe when I start my abx again I will do one drug at a time so I can figure it out easier.
Posted by willbeatthis (Member # 31111) on :
Penguin girl: I found when I was herxing- which was a lot, I was BEAT. And, the only thing that really helped was detox... detox... detox...
I believe in the infared sauna and a sauna for that matter - used to do the old kind until it was too extreme for me - the far infared is much gentler.
There was a lemon drink on here where you mix I believe an organic lemon, tbl of olive oil and water and ice in a blender and that also made me feel better. I think I put some stevia in there as well... Resting when you need to is key. It is great you can work at home. I too was fortunate like that... Ended up working when I felt good and that was some weird hours...
Posted by penguingirl (Member # 28688) on :
Thanks Wilbeaththis.
I have been horrible at detoxing lately. Last night I took an epsom salt bath.
I am planning on doing the FIR sauna soon - there is a place not too far from me that has them so I will try it out.
I should try that lemon drink - it sounds more tasty than just plain water and lemon!
Posted by apljack (Member # 14233) on :
My primary had me take glutathione when I was treating for Babs. I think this is supposed to help with detox.
Posted by 17hens (Member # 23747) on :
quote:Originally posted by Lymetoo: Your babs herxes are what is making you so fatigued. They are the worst!
And once again, I agree with Tutu!
Posted by Googleberg (Member # 30669) on :
Stimulants like caffeine and ritalin are a possibility . Ritalin kept me functioning in the worst time. Unfortunately the effect has vanished.
Posted by penguingirl (Member # 28688) on :
I don't think I should take any stimulants because then I won't be able to sleep at night?
I have insomnia even though I am so fatigued.. just so bizarre.
Posted by DHinLA (Member # 30395) on :
NT Factor Energy is an amazing product. I highly recommend it. However, it isn't what I would call cheap. I can't take it right now b/c any tyrosine or really anything stimulating messes with my heart after stupidly taking steroids last November.
If you're on Transfer Factors, that could be causing your fatigue. It always makes me very tired. I try to take it at night but I'm still dragging on days when I take it regularly. I think shifting your body from T2 back to T1 (which I believe is the point of TF, I could have that backwards) causes a herx or at least fatigue. I also wonder if it's the Astragulus in it. Buhner advises against Astragulus for chronic Lyme.
Posted by penguingirl (Member # 28688) on :
Thanks Dhin - I think it's supposed to be cheaper than Transfer Factor Lymplus. I think.
I was taking those pills a few times this week so that could have contributed to it. But my immune is so horrible that I'm trying to do everything in my control to get it better!
Today I am less fatigued even though I had a hard time falling asleep last night. Let's hope for a good week!
Posted by mcaringella (Member # 24848) on :
My LLMD (Dr. B in southern california) changed my B12 injections to a different compound. I started with the methyl...version and it stopped working. Now I inject Hydroxocobalamin. It works much better and isn't a financial burden.
Posted by stillwater (Member # 30312) on :
I think the Phosphaline 4:1 is helping the fatigue quite a bit as well. I also inject 5mg of Methylcobalamine every other day.
As far as coffee, I've never seen what the big deal was. I drink between 2 and 3 cups of coffee a day, no sugar. I fall asleep within minutes of my head hitting the pillow. All with the blessings of my LLMD. Provigil vs coffee? I'll take the coffee.
I know we all think the world of Dr. B, but he hasn't practiced for quite a while and his guidelines haven't been updated since 2008.
The not sleeping under an electric blanket never made much sense to me either. But I'm not a believer in EMF causing problems. I've worked around electronic equipment for 25 years, day in, day out. I did end up with some nasty mercury and lead poisoning though.
Posted by aMomWithHope (Member # 19255) on :
up
Posted by missing (Member # 22437) on :
I can't handle any vitamins or B-shots. They all made me feel so much sicker and made the pain worse.
I basically stopped eating, until right before bed.
After about 8 months of Babesia treatment with Mepron and zith, I started to sleep really good!
Before that, I was barely sleeping at all. I had to take Zopiclone. I still take Zopiclone, and I sleep all night. I nap and sleep a lot during the day.
Sometimes during the day, I sleep really deep for about 3 hours.
But, for the first 12 months of treatment, I could barely sleep at all. And I was so tired.
I wasn't too worried about the ear pain. It only lasted a couple of weeks.
I guess, I am the type of person that will endure anything just to get better. I have to get better quickly because I am constantly afraid that I will lose my job. I work at home too, but there is a lot of pressure to do lots of paperwork, and there are lots of meetings at my house, so I am always having to do house work too.
Thankfully my husband helps with the housework, but he has Lyme and Babesia too, so it is really tough for both of us.
Well, I hope this helps.
Posted by raw vegan runner (Member # 30432) on :
I like NT Factor, I am on it now. I would say it helps. I also second d-Ribose(also not cheap) and it has REALLY helped me in the past. BUT, one thing I will say is if I am in the pits-of-hell-fatigue, d-Ribose doesn't touch it.
Posted by penguingirl (Member # 28688) on :
Yes I inject myself with 10 mg of Methylcobalamine 3 x a week. It has almost been a month on this - have not noticed a thing. If anything, maybe it is making me more tired but my B12 level is so low and I can't seem to absorb any foods/vitamins orally.
I have been taking D-Ribose too - not doing much but maybe like raw vegan runner said, it is not touching it now since I am more fatigued than usual. I was taking D-ribose for muscle weakness originally.
Stillwater - I agree - caffeine works for some and that should be fine. I tried some tea and it has helped during the day a bit so I think I will just try that during these horrible moments. I can't stomach coffee though - I get too shaky and it goes right through me..
I can't sleep without Gabapentin, Melatonin drops and a 1/4 pill of 0.25mg of Xanex (I have cut it down so I don't become addicted). I can't nap during the day even though I am a zombie. It is like being jetlagged coming from Asia.
I will get through this and fight it. I just have to do errands in small spurts and hope for the best.
Posted by steve1906 (Member # 16206) on :
Hi Penguingirl, have you ever looked at this web-site:
Been taking magnesium and saw from some other posts that it makes people tired. Maybe I will try stopping it for a few days to see if I feel any change.
Who needs magnesium anyway, haha. Posted by Annie C (Member # 14) on :
Fatigue. IDK If i spelled it right. I gave up on spending the other half of the day to do spell checks. Sound it out.
Now Fatigue could be helping us to stay still longer than anyone else has to. If ONLY we could achieve REM sleep in the fatigue zone. Well That would be great in a perfect world. We just have to find, seek, peek, prod, trod, and soon when others remind us ie My brother Hey Sis you SOUND GREAT so now to HIM IM normal.
Sound phthssssssss you havent seen me in 5 years. I ask how do I sound Now????
Tie a bigger knot at the end of your rope. And truly we are 2in from steady ground. To laugh and roll a round and no one will think. Oh thats great sis. I can heaqr him do this and then I
Actually Im not this in tune too tu. Am I. Yet to day I AM not Am I weeeeeeeeee all the way home
Posted by hadlyme (Member # 6364) on :
Have you had your Thyroid ck'd?
A good llmd will know if your tests look borderline that they should treat you for hypothyroid.
I had horrible fatigue a year ago... treated with Armour and it really did go away. Sleep normal now and am off the couch finally.
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and then I ![[puke]](graemlins/puke.gif)