Well...finally one of the docs believed me and is going to start me on doxy.
I went to go see an ND who was the partner of someone who was on the LLMD list. I went over the usual history and she said...neuro lyme. She said it had been undertreated before and that I have had it anywere from 3 to 10 years.
She helped me decide to stay part time until the end of the summer to see how treatment goes. She also said it didn't even matter what the blood tests said, though she wants to run some.
She said the treatment will determine if she is correct.
I thought it was interesting because I thought the cause of the flare was sinus surgery (stress of surgery on a sleep deprived system). She said she thought that all the abx I was on for sinus infections prior to sinus surgery kept the disease at bay and that once I had the surgery, and didn't need the abx for sinus infections it was allowed to grow/flare.
Finally......somebody looked at the big picture and is willing to do something about it.
I feel hopeful.
Posted by Deshi (Member # 30949) on :
congrats! i hope you make a full recovery
Posted by Laura_W (Member # 31491) on :
Posted by payne (Member # 26248) on :
you are your own advocate... Glad to hear you found a believer. press on - the road is long and broken, That leads you back to Your life again.
Posted by Lymetoo (Member # 743) on :
Very good job, pme!
Posted by ukcarry (Member # 18147) on :
Glad to hear that someone is thinking outside the box! Good luck,
Carry
Posted by lpkayak (Member # 5230) on :
whoopee! a doc with a brain!!! gives us reason to hope
Posted by philly78 (Member # 31069) on :
This is wonderful news! Yay for you.
Posted by lyme in Putnam (Member # 11561) on :
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