I was Dx 1 yr ago. Chronic, doc says about 15 years ago is when I contracted.
Have been researching ALOT since - but cannot afford Tx.
Tremors started three weeks ago. Getting worse. Can anyone help? Will they stop? What can I do to lessen them?
Any info would be very very much appreciated.
Posted by mbdq (Member # 26277) on :
Tremors have always been one of my symptoms, their appearance helped to diagnose the lyme.
They have been SLOWLY getting better over my 18 months of treatment. I used to get multiple at bedtime, overnight and in the AM, and every day.
They increase when I herx/flare, etc.
They are now down to only overnight and in the AM and not everyday and sometimes I can go a few days without them.
I have been on long term combo antibiotics, some breaks and Byron White over the winter mixed in.
If I get up and move around and don't give the tremors the opportunity to get rolling, they are better.
I have never found a particular program, supplement, drug etc that hits my tremors. Its just been a very slow improvement over time with lyme treatment.
Good luck- these can be scary.
mB
Posted by LymeAware (Member # 26195) on :
I'm sorry you are going through this. I've had tremors for a year now and I know how challenging they can be. It must be doubly challenging to not be able to get in to see a doctor.
Given the progress of your illness, I would strongly suggest that you start some form of treatment. Even if you aren't able to see an LLMD, would you consider looking into some of the other natural protocols? I've heard that the salt/c protocol may be the least expensive, and many have had good results, but there are certainly many other options.
It's important to be on some form of treatment atleast. If you can't afford for it to be really comprehensive, there are still other options.
The tremors starting and getting worse means (as far as I would think) that your infection is getting worse. Really important to keep it from continuing.
For me, tremors starting last June quickly led to seizures, which became a regular part of most of my days starting in the fall. That progression certainly isn't the case for everyone, or even most people, but tremors starting and getting worse means that your system is needing support in dealing with these infections.
As far as things I've read, tremors are often either lyme or bartonella for most people.
I'd also recommend you start taking a good amount of magnesium, if you aren't doing so already. This helps some people and it can be helpful for neuro symptoms.
I'm not a doctor or any sort of expert in this, just trying to share. I know it can be a lonely road. Best of luck, and let us know if you need other support.
Posted by little_olive (Member # 28063) on :
You can take magnesium to support your nervous system, but with this kind of involvement you should put finding SOME way to treat this infection a priority, just as you would find a way to treat multiple sclerosis, or cancer, before it became unstoppable. There are many herbs you can take that will at least help potentially slow down the progression of this terrible disease, but please, take these tremors as a very big red flag to treat as soon as any way becomes available to you.
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