I am having the head pain of a lifetime. The back right side of my head hurts soooo bad, and I feel nauseous. I have many unexplained brain lessions (MRI), so I know something is wrong with my brain, and obviously have been diagnosed with Lyme. My head hurt when I woke up this am and has only gotten worse. Sharp pain and tender to the touch. I also feel pressure in my right ear and temple. I've just started Samento four days ago and am up to four drops 2x day. I don't really think that's it, but could it be? I went to urgent care but they were closed. Considering the ER, again, but I'd really rather not! Any advice? I feel like I'm losing it!!!!
Posted by sbh93 (Member # 30429) on :
I do not know about samento, but have had migraines after adding new meds. I suspect that since you are posting here you have a classic migraine and should treat as such. However, if it is truly the "worst headache of your life," get to the ER, especially if you have
Sudden severe headache, the worst headache of your life Loss of consciousness Nausea/Vomiting Stiff Neck Sudden blurred or double vision Sudden pain above/behind the eye or difficulty seeing Sudden change in mental status/awareness Sudden trouble walking or dizziness Sudden weakness and numbness Sensitivity to light (photophobia) Seizure Drooping eyelid
Posted by LymesNotSweet (Member # 32089) on :
Thank you. I'm so scared I don't know what to do. I think I may go to the ER soon. My husband has just had it with me, so I'm not getting help. This stuff takes it's toll.
Posted by sbh93 (Member # 30429) on :
It does. I'm sorry you have to deal with it alone. Do you have a history of migraines?
Posted by LymesNotSweet (Member # 32089) on :
no, not really. My neurologist told me that migraines were causing the lessions, but I really haven't had a migrain since I was a kid. I feel like it's the lyme that has caused the lessions. I'm just really afraid and sometimes it's hard to make decisions. Especially to go to the ER where I've been too many times and they'll just want to pump me with drugs.
Posted by LymesNotSweet (Member # 32089) on :
I feel like my whole body is shutting down!!!
Posted by TF (Member # 14183) on :
If you never had a headache like this before, then I would stop the samento and see if it subsides. Could take a few days. Drink lots of water to flush it out of your system.
None of my lyme docs ever had me take it, so you will have to research whether or not this is common with that herb. You can even do a search on lymenet. Just click on "search" near the very top of the page and use the word "samento" to be found anywhere in the body of the message. It will then give you all messages referring to samento. There are a number of them. One person even said it hurt to touch their skin. Sounds like you. Others said to start it very slow.
I doubt the ER will be of much help to you. You will have to tell them about the samento. I can anticipate how they will treat you, lyme diagnosis and all.
I had undiagnosed lyme disease for at least 10 years before a doctor figured out what I had. In April, it was 6 years since I completed my lyme treatment and I am still symptom free, enjoying my life.
I got cured by going to a doctor who followed the Burrascano lyme treatment guidelines.
I wish you the very best. Sorry about the bad head. Hope it goes away quickly.
Posted by LymesNotSweet (Member # 32089) on :
thanx tf for giving me hope. I have also had symptoms for 10 years and only just recently have been diagnosed. I had no idea what was wrong with me. My doctor seems to think I've had it in my body over 20 years. How long did your treatment take? I've been sitting in the bathroom waiting to throw up, so nauseaus. But nothing. I just want to go to bed! This sucks soooo bad. Thanks for helping me, both of you!!!
Posted by dlfs1957 (Member # 21468) on :
A friend of mine took Samento and had a massive brain herx with terrible headache that lasted for weeks. So it is possible you are experiencing a herx reaction. Cut back the dose, drink lots of fluids, take binders (chlorella if you can tolerate it, apple pectin, activated charcoal, french green clay or bentonite) to help remove toxins.
Posted by HopesAlive (Member # 29774) on :
OMGosh, I really hope you went to the ER! I don't like the "sharp pain and tender to the touch" or the pressure in your right ear and temple. I would definitely want you to rule out aneurysm. Please keep us posted.
Posted by TF (Member # 14183) on :
It took the Burrascano type doctor 13 months to get rid of my lyme, babesiosis, and bartonella. The last 5 months I was symptom free. But, since he won't allow anyone to stop meds in winter or if winter is coming on, that's why I had to continue taking my meds for 5 more months, even though I felt great.
Prior to this doc, I treated with a doc who gave me lousy lyme treatment for 2 years.
That's why I hang around Lymenet--to help people figure out when they are not with a good doc and get switched over quickly to someone who can knock this disease out for them. It doesn't have to take years and years of treatment.
My friends all got well using Burrascano type doctors also. A number of them treated one year and were done. All had lyme, babs, and bart.
Hope that head pain is decreasing for you. Hope all is well with you today! You have us worried!
Posted by LymesNotSweet (Member # 32089) on :
Thanks for all the help everyone. I did end up in the ER (I just get so flippin scared when it's my brain or my heart). They said it was occipital neuralgia ~ possibly from Shingles!?! I'm supposed to watch and see if any "sores" pop up? I never even mentioned Lyme or Samento (figured I'd take that up with my Lyme doc). I had a CAT to rule out anything else. I felt like an idiot going to the ER. I just couldn't even touch my head! I'm so over this! I didn't take any meds or anything at the ER. Just Zofran for the nausea. Does anyone else totally freak out over some of this stuff? I often feel like I'm just going to die. Makes me crazy!!!
Posted by jadams (Member # 28016) on :
AHHH! I have had many extreme headaches since Lyme. They change with the bug Im treating. When I took Bactrim I had to stop after 1 week since it gave me the worst headache in the World.
It continued for 1 week after I stopped the medicine. Now I get them several times a month. I think the Bactrim was hitting something and brought out a symptom.
If you have a doctor I would call them. They might tell you to back off the dose or stop to see if that helps. Also, I would take excedrin or somthing.
Posted by LymesNotSweet (Member # 32089) on :
Thanx! I will call him today. Not sure what causes what, ya know? Hard to tell if it's coincidence, or a medication.
Posted by TF (Member # 14183) on :
Lyme can cause all types of neuralgia since lyme is a disease of the nerves.
And, since all persons with lyme have a weakened immune system, you should be on the lookout for shingles. That's when people are prone to shingles--when the immune system is weak. If you see anything that looks like bug bites or a blister or blisters, go to the doc right away and get the shingles treatment. There is a short window of time to get the med and stop the shingles attack. You definitely don't want shingles.
Also, lyme makes many people freak out and go to the ER. You aren't the only one by any means.
Hopefully, this was all caused by the samento.
Posted by lymeinhell (Member # 4622) on :
Question - is it a 'headache' you have, or head pain? The two are very different.
From what you have described, you have head pain that is coming from the outside of your skull, not radiating within like a migraine. Is that correct?
Posted by LymesNotSweet (Member # 32089) on :
sorry I haven't been looking back at posts!!! Thank you TF for the info. I will be on the lookout for shingles. And julie, yes, it is head "pain" and not a headache. It's funny that only Lyme people seem to know the difference. I've been describing Head "Pain" for years and the doctors just didn't seem to get it. "you're having migranes or cluster migranes", uh, no, I'm not, I'm having "HEAD PAIN" lol.
Posted by Haley (Member # 22008) on :
I wonder why they think it is shingles. Have you been on steroids lately?
You should ask your doc for some Migraine medication, the headaches will get better with proper Lyme treatment but in order to relieve the pain try migraine meds.
Maxalt and Imitrex are a couple of them (I like Maxalt). It will make you very tired. I would not take them often but it beats the hell out of a migraine.
Keep us posted.
Posted by Lymetoo (Member # 743) on :
Hope you feel better soon!! I know the difference between head pain and migraines too, since I've had both!
Be careful with the Samento. I think it pushed you over the edge.
Posted by LSG Scott (Member # 21624) on :
Try and be still i'm sure your fine sounds like a herx from the samento ,hang in there this too shall pass
Posted by lululymemom (Member # 26405) on :