Not which state you live in but which state you were bitten. if not there should be one
Posted by Razzle (Member # 30398) on :
Yeah, I agree...this would be good... But there would also need to be an option for those who are uncertain where they were exposed, and for those who were exposed through the womb (congenital Lyme) and through breast milk.
Posted by onlyflippin (Member # 32260) on :
I thought of that just figured whoeve does polls would do it.
Posted by Hambone (Member # 29535) on :
Florida
Posted by HopesAlive (Member # 29774) on :
I agree. Good idea.
Posted by onlyflippin (Member # 32260) on :
Not diagnosed yet,but washington state
Posted by Lymetoo (Member # 743) on :
Texas
90 miles NW of Houston
[ 06-10-2011, 09:12 PM: Message edited by: Lymetoo ]
Posted by onlyflippin (Member # 32260) on :
Lymetoo, but if you look on the cdc website there are no cases in texas and i believe everything they say
Posted by HopesAlive (Member # 29774) on :
I see there is a place to "post polls," but members do not have permission to do this.
What I cannot find is a place where there are polls to take here? Where do I find those? Or are there any? Just curious, and still learning my way around.
Thanks! Posted by onlyflippin (Member # 32260) on :
Me too still learning
Posted by Dogsandcats (Member # 28544) on :
Alaska..... Had to be...I live in California and there are no ticks there either.
Posted by onlyflippin (Member # 32260) on :
They dont have lyme disease in Alaska its too cold, Just like Washington Posted by Lymetoo (Member # 743) on :
flippin .. I forgot!!
Could be Minnesota then. Spent some time there in the summers.
Posted by scorpiogirl (Member # 31907) on :
CA... but they said there is NO Lyme in CA either so I don't know where I was bitten then.
Posted by lululymemom (Member # 26405) on :
Someone did start a poll in General support last year.
Posted by Dogsandcats (Member # 28544) on :
Maybe they lived in California and therefore the poll doesn't exist. Guess I am getting punchy......
Posted by Paul Mall (Member # 27581) on :
Connecticut
Posted by gryphon78 (Member # 31930) on :
NO ticks in california ? Are you friggin kidding me, theyre everywhere here, my apologies if you where being facitious. Anyway guessing I got mine here after many tick bites over the years...
But I did have a mystery illness that I never felt quite right from after visiting thailand 5 years ago. Anyone here of lymelike disease in asia ?
Posted by scorpiogirl (Member # 31907) on :
LOL@ Dogsandcats!! You are sarcastic!
Gryphon, that was how I lost all 3 of my PCPs b/c I vehemently disagreed with their position that there is no Lyme in CA.
Posted by Dogsandcats (Member # 28544) on :
I needed to decide whether I was sarcastic or facetious....
Facetious Treating serious issues with deliberately inappropriate humor; flippant.�
Sarcasm a sharply ironical taunt; sneering or cutting remark.
I will now choose facetious. Sounds less harsh. I don't want to make cutting remarks about doctors who hold the secret file to where the ticks, even the nymphs, live. Nor would I want to taunt the doctors that have another secret file of ONLY their designated symptoms for Lyme. Lastly, I would not want to sneer at those docs who, after a major scene where it appears you are fighting for opiods, instead begrudgingly hand you two weeks of doxy. This is not a rage, it is a rant. Didn't want to have to find Websters again. But, through the dark pages of Websters we find other words to describe those few and true- dedicated, over worked LLMD's who don't debate the part of the world the tick bite occurred, believe our symptoms because they have heard them repeatedly and treat us with the best medicines they know how to. Tune in next weeks kids as we talk about insurance......
Posted by jlp38 (Member # 27221) on :
Colorado
Posted by Lymetoo (Member # 743) on :
dogs.. Very good!!
Gryphon .. there are very few states where Lyme exists ... hahahaha.. Didn't you know that Lyme is only found in the North East?? Posted by mcaringella (Member # 24848) on :
Ok friends...Lyme has been reported in every state but Hawaii. It may not be reported by CDC, but according to a medical journal I read, wish I remember exactly which one, and confirmed by my LLMD, its in every continental state. Not sure about Alaska???
I caught it in Mammoth, California.
If you look up your county's vector control site, they will state the exposure risk for lyme transmitting ticks. At least mine does. Orange County, CAlifornia. I was pleasantly surprised when I looked it up. They actually announced the closure of a popular hiking/biking trail due to high risk of tick exposure a year or 2 ago. Imagine such honesty.
Posted by payne (Member # 26248) on :
Mid-MICHIGAN- I saw dozens of reg/md's, all stating this don't exsist in michigan, I went to a state (MSU) sponcered health resource report document, and printed it out/filled it out/ showed it to my reg/md and WOW, he got real shooked and wanted to know if I sent it in.. No, I said, then I did later and they responded to me with, Lyme Disease only in animals.. really? and how much money are we spending to find that out..dah
Posted by gryphon78 (Member # 31930) on :
I know I find it funny, I too was told by a couple yahoo docs that theres no lyme here so I must have gotten somewhere else. I was like thats funny cause I know of at least 2 people whove never left cali and have LD, come to think of it just about everyone I know here has a lyme connection somehow... I think the place is just as infested as the east personally.
Wow in mammoth ? That actually does surprise me, I wouldve thought its too cold dry and high elevation there for any ticks.... guess those little bastards are tougher than we realize
Posted by momcap (Member # 31420) on :
Ontario. Doc says we don't have ticks here either - guess they don't have passports. So I called the vet and they say lots of ticks over the 15+ years they've been in practice, and more and more each year. Then I started pulling ticks off my cats. Ugh. But we also vacationed in Minnesota when I was a kid, and travelled across Canada and the U.S., so who knows where/when I actually got it. I don't recall ever having a tick bite.
Posted by nefferdun (Member # 20157) on :
Montana, by a wood tick. Absolutely certain. Of course lyme does not exist here.
Posted by sutherngrl (Member # 16270) on :
Mississippi, probably on a golf course.
Posted by searching4truth (Member # 28481) on :
Ocean city, Maryland. I know the exact moment, although it took 13 years for a diagnosis.
Posted by Roger1700 (Member # 29719) on :
Southern Indiana.... I got the tick off of a dead deer I was checking for gunshot wounds...
this was way back in the 80's before all the talk of lyme and rashes.. had no clue...
Posted by riverspirit (Member # 19435) on :
probably initially southern oregon in 1981 or so ~ also got many tick bites in northern california.
Posted by Lymetoo (Member # 743) on :
quote:Originally posted by stillwater: former pediatrician told our neighboor that deer ticks aren't out this time of year. -------------
This guy must have paid someone to take his boards for him.
- FORMER pedi!! Posted by Lymetoo (Member # 743) on :
quote:Originally posted by gryphon78:
Wow in mammoth ? That actually does surprise me, I wouldve thought its too cold dry and high elevation there for any ticks.... guess those little bastards are tougher than we realize
- Ticks prefer cooler climes .. but they can live just about anywhere.
Posted by CherylSue (Member # 13077) on :
Illinois in the Chicagoland suburbs
Posted by lyme in Putnam (Member # 11561) on :
NY Catskills when kids, sherwood island, CT as a teen.
Posted by momindeep (Member # 7618) on :
Grantsburg, WI
Posted by tickssuck (Member # 15388) on :
WA State, both my dad and myself.
My son just got a tick bite in WA State, the tick tested positive for Lyme.
Hmmmm....but it is very "rare" here!
I had reason to visit the CDC web site as the "mountain school" where my son got bit called me. I was prepared for her to start rattling the "rare" stats about WA State, which she did and got them from the CDC site. I couldn't stand to read through it; it's just ridiculous, unbelievable...it's just all so warped. Never in a million years would I have thought I'd find myself in this abyss (I'm sure I'm not the only one!), it's just weird. TS
Posted by just_ma (Member # 17111) on :
central NY, twice. Two of my children both central NY. Near Cornell University.
NYS Health Dept. would not allow any of us to be counted as lyme cases in NY because we were not diagnosed in NYS. (yes, I did tell them what I thought about that : )
Posted by ktkdommer (Member # 29020) on :
Bitten in Wisconsin probably in late 70's the summer the ticks were so bad on the dogs. Found out I have Lyme a year ago.
Posted by onlyflippin (Member # 32260) on :
Hmm ticks in ca, hmm ticks in wa, hmm ticks in or. hmm ticks in canada. Hmm I do believe ducks and geese migrate between ca and alaska. Hmm, guess they make non stop flights. Posted by HopesAlive (Member # 29774) on :
Northern Minnesota. I also spent many summer vacations in Wisconsin.
Posted by onlyflippin (Member # 32260) on :
no ducks in minnesota Posted by pooldog71 (Member # 21722) on :
Arizona...where my Neurologist says it is impossible to get Lyme because there are no deer ticks...
and they said:
the world was flat
if you cross your eyes they will stay that way
wait an hour to go swimming...
Some day people will laugh at the idiots
Posted by Lymetoo (Member # 743) on :
Do you have lone star ticks there, pooldog?
(enjoyed your post!!) Posted by missy (Member # 694) on :
Originally thought southern or mid California. in late 1980s.
But, could have been area around Middletown, NJ as a kid in early 1960s.
Posted by jenn (Member # 21687) on :
Orange County, NY
Posted by HopesAlive (Member # 29774) on :
lol, no ducks! No geese, either, I suppose, lol
I picked SO many dog ticks off myself and my pets, through the years, but I was told to have no fear! It is only the ones we cannot see that cause harm. I was probably "swimming in" the ones I could NOT see judging by the number of ticks I could and DID see.
Makes me sick to my stomach, now. We were never taught to take any type of precaution. Nope. Life was "carefree," as I romped through the woods as a child, teen, even as an adult.
Posted by BoxerMom (Member # 25251) on :
Oklahoma.
Posted by supergirl (Member # 26936) on :
looks to me like lyme is country wide...believe i was infected in Bay Area, CA or Mass
Posted by Lymetoo (Member # 743) on :
HopesAlive .. sounds like me. I climbed trees, built forts, tromped through the woods my entire childhood. (50's and 60's) Had more than 100 tick bites at the minimum.
Sure was fun.
Posted by steve1906 (Member # 16206) on :
Massachusetts for sure!
Posted by needhelp38 (Member # 27665) on :
West Virginia 32 years ago
Posted by philly78 (Member # 31069) on :
Chester county PA here.
Posted by onlyflippin (Member # 32260) on :
All year round i am around ticks, dogs have em, even though we use tick drops and spray the yard. I scout for elk year round, when i hunt I cant tell you how many miles i have logged on my hands and knees chasing elk and deer. I usually burn ticks off the animal when i clean them but thats only if i have time. My partners and I harvest our animals as well as help others, so i am in contact with lots of deer and elk. then add bird season when i am in the marsh with birds. I never gave lyme much thought, i always heard it was an east coast thing. Now i am learning its not. I am telling everyone I talk to about It. I told 4 people at the grocery store today. I am spreading the word in our area.
Posted by sixgoofykids (Member # 11141) on :
Ohio in the early 70's then Indiana in the 2000's.
Posted by cbb (Member # 788) on :
South Carolina, near Columbia for me.
Grandson - in Columbia, SC. Backyard is adjacent to Ft Jackson where signs say "Lyme Disease area...Take precautions..."
No one has ever publicized the study at Ft Jackson in 1992 that concluded that Richland Cty and surrounding counties are at high risk for LD and RMSF.
Interesting that Chief Epidemiologist at health dept still says LD is not a problem in SC. They've had over a quarter of a century to figure this thing out and still no accurate info. It's maddening, frustrating, depressing, etc, etc.
Posted by glm1111 (Member # 16556) on :
Pennsylvania...I also grew up playing in the woods, climbing trees and running in the tall grass.
Not even safe in the city though. I saw a sign in one of the many parks here "Be Careful Of Ticks"
I got bitten hundreds of times when I was living in the woods in Pa with a boyfriend. I kept looking at these things,(ticks) picking them off of me (including a fully engorged one on my arm)and thought
"I know this isn't good, but I don't know why" Sweetest, kindest boyfriend I ever had, but the deadliest because I went to live in his cabin with him in the woods "How RomanTICK"
Gael
Posted by randibear (Member # 11290) on :
lake ray roberts, texas...north of dallas/fort worth
Posted by Lymetoo (Member # 743) on :
randi.. My brother used to leave in Rockwall...the other side of the lake!
Posted by HopesAlive (Member # 29774) on :
Lymetoo, That is me!
I lived at the lakes, played in the woods, biked and walked to friends' homes through trails in the woods, always camping, making forts, climbing trees.
Then, as an adult, I would bring my boys out to nature parks to play in the leaves, go for trail and "nature walks," hiking, biking, and always camping.
Not only ticks but TONS of misquito bites. I still love nature and the outdoors and the lakes and camping, and I don't want this to spoil my love of nature, but I find myself getting paranoid. Not fun. Posted by NEMOM (Member # 31370) on :
Kansas-20 years ago but there isn't any ticks in the midwest either! Where on earth do those elusive ticks live????
Two kids with congential Lyme....
Posted by onlyflippin (Member # 32260) on :
Ask my dr., her opinion is that they live in my head Posted by Lymetoo (Member # 743) on :
HA.. I know all about mosquitoes .. grew up in Houston. And as I said above, spent time camping in MN also! Home of biting flies and giant mosquitoes...LOL.
---I am also wondering where those elusive ticks live???
Posted by FYRECRACKER (Member # 28568) on :
Not sure where, don't recall a tick bite or any classic symptoms.
But I grew up in South Dakota and I've frequented Minneapolis, northern Minnesota and northern Wisconsin.
Get this: I recently saw a D.O. (family doctor) who basically didn't believe I have lyme.
He bragged about getting his degree in one of the "Lyme Meccas" (Wisconsin)
I later read in my report that he referred to me thinking I "have Lymes" and a "lyme-like illness, abesia"
No, he didn't forget the B. He called it Abesia 4 times in his report. Posted by onlyflippin (Member # 32260) on :
wow sounds like my doctor, gave me results from an elisa test and told me they were the bands on a western blot. looked all over for band no. 91(i had 45 needed 91 to be positive).
Posted by Lymetoo (Member # 743) on :
fyrecracker and flippin... to your doctors!!!
Posted by OConnor800 (Member # 14895) on :
Ithaca, New York
Posted by Robin123 (Member # 9197) on :
quote:Originally posted by scorpiogirl: CA... but they said there is NO Lyme in CA either so I don't know where I was bitten then.
Since we were hearing this too much here, Dorothy, who writes the Touched By Lyme blog at www.lymedisease.org, asked for an informal poll of where Californians got bitten. She reports about 150 responses - scroll down to the bottom there - it's the 5th one, titled "No Lyme in CA?"
There are over 1000 folks signed up on CaliforniaLyme.
Just found our 8th person known to have contracted Lyme in San Francisco. And we are not a hotspot. Parts of Mendocino County north of here have 40% infected ticks.
Posted by lymeboy (Member # 24769) on :
North Jersey
Posted by onlyflippin (Member # 32260) on :
I just read somewhere that you can get lyme from sand fleas.
Posted by urpaige (Member # 16096) on :
My son got it in Central Virginia even though two docs told us it wasn't here either. Funny though, State Health Department did follow up twice on my son's two positive lab tests.
Posted by Arkie-hinny (Member # 26546) on :
Arkansas!
The natural state, with a big ole tick right in the middle!
Posted by clueless (Member # 30019) on :
Burgundy, FRANCE my U.S. friends!!
hmmmmm and as there are no longer border controls in 27 countries, I imagine that they can travel quite feely without their passports!!
parlez vous 'tick'?
Posted by Robin123 (Member # 9197) on :
Pour Clueless: Je ne veux pas dire tique - tant pis!
So how well is the word getting out in France about ticks - do people know?
Posted by Razzle (Member # 30398) on :
Two LLMD's and Two LLND's have confirmed it's possible when I tell them I was bit in the neck by a red fire ant in the California Desert in 1977 or 1978 (I don't remember exactly when; the only thing I do remember is the burn from that bite - I was only 4 yrs. old at the time), and my first known Lyme symptom began (wandering leg pain) shortly after that. This known Lyme symptom completely disappears when I'm on antibiotics, only to return within about a month or so of when I go off the abx...
Since the ant bite, I've travelled to and lived on the East Coast and WA, and travelled to Michigan, Oregon, and various other places around the US & Canada. I've also been to Mexico (just over the boarder). But as far as I can remember, all of these trips took place *after* my first Lyme symptom appeared...
Posted by anonymiss (Member # 32018) on :
urpaige: That's INSANE! Virginia is endemic for Lyme and the number of cases has grown by over 400% in the last three years! Tick studies have shown greater than 40% of ticks in Northern and Eastern VA to be infected with b. burgdorferi.
I saw an adult deer tick in my house back in February or March (when they aren't supposed to be active, according to some idiot who just pulled that "fact" out of their rear end).
Central VA is smack dab along the route of some migratory birds who also travel right through eastern NY state and west to the great lakes (Where over 75% of reported cases of Lyme disease come from). I CANNOT believe that anyone would be so ignorant to say that Lyme Disease doesn't exist in Central VA. Heck, even the CDC map of reported cases shows MANY dots in the central VA area.
I live in Richmond, and I got bit here in my very own yard! In the city!(the concrete isn't even safe)
I could probably go drag the grass in my yard right now and come back with at least ten deer ticks. And that's lowballing it, big time.
Posted by SEREN J WEED (Member # 7280) on :
Orange County, California
Posted by onlyflippin (Member # 32260) on :
Clueless this is an american disease and its in our minds Posted by sammy (Member # 13952) on :
I got the characteristic bulls-eye rash after a hiking trip in OH.
Posted by abby-do (Member # 25440) on :
Southeast Georgia 1996/1997 my backyard... clearing brush to put up fences...pulled of many embedded ticks....but not to worry no Lyme in SE Georgia
Not diagnosed til 2009.
Strangely, I found out that the vets check for and are finding lyme.
Posted by cjfrank (Member # 26985) on :
well, let's add Maine to the list, that's where I am and that's where I got my tick, bulls eye and the works
Posted by clueless (Member # 30019) on :
ROBIN123.....
Bonjour! I am afraid the word is getting out only too slowly, and there are VERY few LLMDs around.
I call them Less than Lyme Literate here!! We managed to get our LLMD to follow Dr; B's protocol- which is way too outside the box here....
As Flippin said it's all in our minds!
Good luck with the list people!
Posted by kadee (Member # 21199) on :
Aptos, CA.
Posted by kadee (Member # 21199) on :
quote:Originally posted by scorpiogirl: CA... but they said there is NO Lyme in CA either so I don't know where I was bitten then.
What? And why did they put up signs at the coast in Santa Cruz, warning against ticks? This was in 1989!
Posted by kadee (Member # 21199) on :
Kadee, Its a joke we have going on this post, most of us live in areas we were told lyme didnt exist. I like you link I will look at it in more detail later. From the brief glance i saw of it it didnt show all that many cases, But it does confirm one of my theories of the pacific flyway for migratory birds. thanks for your link
Posted by Lymetoo (Member # 743) on :
quote:Originally posted by onlyflippin: But it does confirm one of my theories of the pacific flyway for migratory birds. thanks for your link
- hate to bust your bubble, but that is not a new theory Posted by Lymetoo (Member # 743) on :
quote:Originally posted by AlanaSuzanne: Yes, sand and beaches. My favorite place in the world is a beach. Those damn ticks fry at the beach or on concrete.
- You can definitely get bit by ticks at the beach.. esp in the dunes where the grasses are.
Concrete is NOW my friend.. didn't use to be!! Posted by Pam08 (Member # 19203) on :
Virginia is where I was bit. In the Staunton, VA and Shenandoah area.
We were on vacation there in October 2001. I suddenly became very ill on our last night there and have been sick ever since. We had been golfing, walking on paths in the woods and even climbed a big beautiful tree to have my picture taken in it.
7 years (and a million doctors) later I tested positive for Lyme.
Posted by Lymetoo (Member # 743) on :
Razzle.. I've heard of others who were Lymed by fire ants. Very strange.... HOWEVER...
In Texas, fire ants EAT ticks. .. or tick larvae.
On our family's land .. where I was Lymed ... our ticks disappeared when the fire ants showed up in the 70's.
Posted by onlyflippin (Member # 32260) on :
You didnt burst my bubble the theory is a new one (to me) Posted by Lymetoo (Member # 743) on :
It's a good one!!
Posted by Razzle (Member # 30398) on :
quote:Originally posted by Lymetoo: Razzle.. I've heard of others who were Lymed by fire ants. Very strange.... HOWEVER...
In Texas, fire ants EAT ticks. .. or tick larvae.
On our family's land .. where I was Lymed ... our ticks disappeared when the fire ants showed up in the 70's.
Wow - didn't know fire ants ate ticks! Very good to know about this! Thanks!
Posted by Lymetoo (Member # 743) on :
Can you believe that!!?
I had a lyme friend in Central TX who told me she had fire ants AND ticks on her place, so I guess it's not SURE FIRE... Posted by Razzle (Member # 30398) on :
Lymetoo, you are funny!
Thanks for the giggles!
Posted by koo (Member # 30462) on :
First bite definitely NJ 40 years ago. Possible second exposure a couple of years ago in Pebble Beach, CA.