I have been reading 8 year old posts and I see alot of names that i havent seen yet. I know im new but there are alot. Did they get better?? Posted by JunkYardWily (Member # 24271) on :
i think a lot did.
hard to continue here when you have your life back. tho many do
Posted by onlyflippin (Member # 32260) on :
With what i know have learned i will stay around just so i can educate other people. I talk to everyone I can walk up to stranger and have an hour long conversation. I have a big mouth, you dont want to give me bad service because i dont forget and i dont shut up. Posted by onlyflippin (Member # 32260) on :
I just read your name, man i love salvage yards, there is no such thing as a junk yard Posted by bcb1200 (Member # 25745) on :
Yes...it was a trend I noticed as well. Very few people on this board from 5 years ago. There are a few still around..some still stick..some well.
But once you start feeling good you spend less time online and more time living life!
Posted by Jason21 (Member # 16393) on :
bcb1200,
Yeah, people tend to drop off when they get better. I still check in from time to time to try to help or give advice.
I see you are on tindamax. I would consider adding 250 mgs of cipro with your tindamax. 6 months of that combo helped me get from 80% to 100% about a year ago. According to Lyme Md's blog, cipro helps to shuttle the other abxs into your cells where they can better attack TBDs.
Also, another member mentioned to me that prilosec and other PPIs aid in getting abxs into your cells according to Dr. B.
Posted by bystander (Member # 11893) on :
I've read the "Folks get better and move on" theory a lot. I'm truly sorry to rain on the post, but in my experience, what happens is lymenet stops being useful after a while. It's a godsend, an absolutely irreplaceable source of information at the very beginning, or, for me, even during the first few years of (my partner's) treatment, but there's a point of diminishing returns. I used to check it every day and I learned something every day; after that it was all the same information (through no fault of lymenet). Now I come back once a month hoping for breakthroughs.
Posted by groovy2 (Member # 6304) on :
Hi All
Yep Thousands of people get Better and Move on with their lives--
That is what has happened with me-->
It seems to take Many people about 3 to 4 years of treatment and being on Lymenet to gain enough Knowledge and get Well enough to move on with there lives--
Almost no one is still on LN from when I first signed up -- You Will Get Better--Jay-->
Posted by onlyflippin (Member # 32260) on :
Mad thats awesome, But everyone should still check in and let people know how they are doing. It really brings up my level of hope. I am sure I am not the only one who needs a boost.
Posted by map1131 (Member # 2022) on :
Some folks improve and stay to help others. Some of have spent periods so ill we couldn't help ourselves let alone helping others.
I personally had social issues caused by this darn illness. I've never be anti-social in my life until this monster tried to take control of my life.
So I spent years reading, researching, trying all types of protocols and I hope I have come out of the don't want to be social, I'd rather just read than take on issues phase.
I use to come out to defend those that made sense to me like Gigi, Scott, skyking and some others. Recently I was trying to defend CI and her wonderful knowledge and support.
There used to be heavy duty fighting on this board about alternative methods not 3-4-5 yrs ago, actually going back to 2003, some 8 yrs ago.
Some very evil angry traditional medicine or you were made out to be a weirdo. Thank goodness those nasty hard core people are gone.
This site has become a great mix of traditional and alternative medicine, advice, experiences, failure, helpful, out of the box, good people. TBTG!!!!!!!!!!!
I don't know where I would be today if it weren't for a few angels from this site. One is Gigi, another is Lymetoo, keebler, Scott, skyking, Lou for starting this site. TBTG!!!! I hope I haven't forgotten anyone. CI. She's pretty angry with me right now.
But I know she is a forgiving person. She is suppose to give us messages too.
I always feel for the moderators on this site when it gets heated. I can't image trying to run a zoo of lyme & co ill frightened, fearful, madder than he!! people who are so passionate about their cause.
Can you image being a LLMD and all you had all day for patients with lyme & co? I bet they can tell some pretty funny stories on their experiences.
Rmember we're not crazy, we just need help, proper help, not a prozac and everyhting will be fine in the morning. Tomorrow is another day of?????????????????????
Pam
Posted by sparkle7 (Member # 10397) on :
Some get better & some get worse & stop posting... It's a mix. We just have to keep trying as best as we can.
Posted by springshowers (Member # 19863) on :
Map - I agree with you on being grateful for the mix of people and alternative and conventional mix. it was horrible when there were fights or disagreements over just how to treat and there is not a right or wrong. But at one point many thought there were. I have been integrative concept person and even that got me yelled at and talked down to many times over and i stuck in there. So thankful that it has calmed down and we all can share without fear of the backlash. PS For me as aI feel better I leave but tend to come back to check up on what is anything might be new news or info. But also as it was said the info does run out after a couple years and that attributes to it too somewhat I think. SS
Posted by sutherngrl (Member # 16270) on :
Bystander is right. It is a great resource for the first couple of years, then it starts to become the same thing over again for the old veterans.
Some, like me are still treating and I come to lymenet a few times a week to put my two cents in or look for something new. Sometimes I take a few weeks away from here, but then I return.
Many ppl get better and leave all together and get on with their lives. A few stay around to help out the newbies.
Posted by onlyflippin (Member # 32260) on :
Heated arguements are unnecessary and counter productive. When a person post they are posting on their personal belifes, knowledge and experience. It is a post not the word of god. I look at each post and use what I think is good for me at this time. If it doesnt work I have other methods I can try.I like the different views they give all sorts of options to try. This board is saving my life and I cant say thank you enough. About a week ago I was ready to throw in the towl
Posted by Al (Member # 9420) on :
bystander is right on target.
Most people I know are still sick . I have known many, many lyme patients since 1992 when I was first diagnosed. A few are well but most are not.
Posted by map1131 (Member # 2022) on :
Have you been thru a full moon with us yet?
Just kidding, well no I'm not!
Pam
Posted by onlyflippin (Member # 32260) on :
Map are you telling me I have to be afraid of miniature vampires AND WEREWOLVES. Now I am not going to sleep tonight Posted by BoxerMom (Member # 25251) on :
I'm a vampire.
Posted by onlyflippin (Member # 32260) on :
I dont worry about big vampires just the itty bitty ones Posted by BoxerMom (Member # 25251) on :
Mine's pretty small. Better watch out...
Posted by karenl (Member # 17753) on :
Great to see old members here again, really happy you are feeling better.
It is right after 3 -5 years you learned so much and your chance to get over this disease is very high. I also think we learn to handle a lot of other age related diseases and later on we will add the lost years.
Posted by lymeinhell (Member # 4622) on :
I am well but stick around to pay it forward as a thank you to all those that helped me when I was going through my darkest hours. Many a person held my hand and stopped me from 'jumping off the ledge'. Many of them are gone, yet a few of them are still here, helping others.
That's what this site was put here for and I forever will be greatful. Had I not found my LLMD with the help of this board, I have no doubt I would be dead right now. So, healthy and working, I will always have time for Lymenet (and I have been off abx since 2004).
Posted by nefferdun (Member # 20157) on :
I hate to bring this up but isn't it a full moon today or tomorrow? I used to be able to tell you the phase of the moon just by the way I felt - the Bb flare.
Well, as for where have they all gone - some left because of fighting, some were banned, some got better, some gave up.
Posted by onlyflippin (Member # 32260) on :
I am going with they got better theory, It makes me feel better
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