Does anyone know what it is? I have 7 and I feel like I must be close!
I asked a few tick experts at last year's Entomological Society of America's conference, and 7 was the highest number they'd ever heard of. But I figured if anyone out there has more, you all would be the ones to ask!
Posted by James1979 (Member # 31926) on :
Oh my goodness! That's insane!! How do you feel right now?
If you ever get 100% cured, please make sure you come back and inform us all, because it would be a great success story! Posted by TF (Member # 14183) on :
I'll bet you have bartonella also but forgot to list it. That would make 7.
Posted by seibertneurolyme (Member # 6416) on :
Curious as to whether you have had multiple tickbites or worked in a job with frequent occupational exposure?
Pretty sure Tincup has you beat -- think she may have had 9 or more infections -- remember reading the story where she got a chiropractor to test for everything and she tested positive for every infection that was tested for I think.
Bea Seibert
Posted by Lymetoo (Member # 743) on :
You may be right, Bea. I thought I'd seen some pretty high counts here before. TC may be the one I'm thinking of.
Posted by map1131 (Member # 2022) on :
Oh my!!!!!!!! I hope we're not looking for Guiness world record holders?
That is insane. bashi, I don't know what I'd do if I was told that kind of info. I think I would go to bed and sleep on it and do some serious spiritual soul searching.
I wouldn't stop fighting them. One by one I'd knock them out. Don't know how but I would die trying.
Probably buy a big lottery ticket every Wed and Sat.
Pam
Posted by momlyme (Member # 27775) on :
My son has Lyme, Babesia, Bartonella, Mycoplasma Pn, Ehrlichiosis, RMSF, HHV-6, and high strep titers.
>>Plus, high lead, high mercury, KPU, and mold.
It was because he tested positive for so many infections that I kept researching to find out why.
I believe the mold in our home mixed with his prior exposure to lead and mercury acted like an auto-immune deficiency disorder... allowing all these infections to take a strong hold.
Posted by Tincup (Member # 5829) on :
MomLyme,
Poor dear! He must be feeling awful! Hugs to you and him!!
Bash- That is a lot to deal with, as is the treatment for all of them. So sorry to hear it!
Posted by Tincup (Member # 5829) on :
Bea is right. Good memory Bea! After years of having Lyme and going through that run-around ...
And then not being able to get the IDiot doctors to DO THEIR JOB (again) and order more tests when I was exposed on a regular basis to ticks and I remained horribly sick...
I eventually had to get a chiropractor to order the blood work from Labcorp to see if I could find some answers.
Thankfully he actually LISTENED to me and could see I was so so sick, so he had no problem ordering the lab tests. Bless his heart.
Once I had the positive results in hand (after 15 years of suffering) I thought that would help get me needed medical treatment, but no, the IDiots again wouldn't listen. Hard-headed toads.
Maybe because they didn't want to be sued for letting me get that bad, especially after I'd begged them to run those blood tests and they wouldn't?
Anyhow...
The IDiots said back then it was "impossible" to have more than one tick borne disease at a time and I couldn't still have Lyme after being given 7 days of tetracycline, nor could I have gotten it again because I was now "immune" to getting it.
Guess again IDiots. Surprise, surprise, ALL tests were positive.
So then a physician ordered the same tests from another lab, and again all were positive.
I've actually had all of the listed infections (below) tested by at least three different labs (minimum) and all results on all tests were positive.
Must be a special gift I have. HA!
Some infections were actually tested by 4 or 5 different labs to be sure- and again, all positive.
Western Blots, PCR, IFA, ELISA- you name it, I've had it.
My biggest hope now is they don't discover any more diseases because so far my luck isn't running too good.
Brucellosis- the ONLY test the IDiots ordered Mycoplasma Herpes Viruses
My bet is people with chronic Lyme have even more infections we don't know about yet. We are finding salmonella and also trichinosis in a number of patients in this state. Go figure.
Posted by Robin123 (Member # 9197) on :
Wow on you, TC - I have a hard enough time with just one infection - ie Lyme -
Hats off to you for being as amazingly functional as you are! Posted by Tincup (Member # 5829) on :
UGGGG! You know how it is when you say something and then realize you are wrong?
Last night I shut down computer and was TOO tired to get out of bed to fix it, so here it is.
The Babesia duncani test was not done a minimum of three times at different labs. Only once at Labcorp or Quest, can't remember. That and the heavy sweats and other symptoms were enough to indicate Babesia.
You know what's nice?
These days I don't need to re-do all the tests to prove anything to get help. Plus, giving up on IDiot ducks helped a lot.
It is nice people actually believe one test result and will act on it instead of being a hard-headed mules, and in the process destroy people's lives.
Hey Robin5935848,
I believe there was someone more powerful than all of us up there who wanted me to stay alive, or I absolutely would not be here today. The longer I was sick and each disease I "got" made me have to research it to help myself because the ducks sure weren't helping.
Once I learned things I was then able to share the info to try to help others. Hopefully, that is what HE wanted me to do.
As far as "functional" goes, I am blessed for what I have left and what I was able to re-learn, but truth is, given a choice, no one would want to be me.
Hopefully they won't have to be with LymeNet and all the other resources, LLMDs and volunteer patient advocates out there.
When I first got sick there were many things found prior to the lyme disease and co infections and i was very ill and had activated positive test results and infections of
I have all the test result dates and doctors and such in dated order and i have a notebook so if I see a new doctor I can just show them it and along with a list of the doctors names and numbers and addresses then I do not have to remember stuff and refill stuff out over and over.
I hope I am over seeing lots of doctors or new doctors even though i have a neurological doc appointment.
Posted by outerspace1226 (Member # 34274) on :
Does anyone else here have 5,6,7 co infections? Is it common? I have 8 TBD's. Seems like a lot.
SpringShowers. How are you doing?
Posted by chastain (Member # 34236) on :
I have tested positive for ch pneumoniae, lyme, babesia, ehrichlia, candida, ebv, mycoplasma, hhv6, toxoplasmosis, anaplasma, parvo, and possible clinical babs.
I also nearly died of c diff a few months ago.
Posted by chastain (Member # 34236) on :
sprry i meant possible clinical bart. i am serum pos for babs.
Posted by BoxerMom (Member # 25251) on :
I stopped counting. 10+ including tick borne and opportunistic.
Nobody has listed their filarial worm co-infection. It's there, people. It's there...
Posted by nonna05 (Member # 33557) on :
Oh MY GOD..literaly....I want to go stick my head in the sand ,,but there is none,,,,
This is for sure one post I wouldn't want my Son-in -Law to see ....
I never thought about counting...And then to have everything neat and in a notebook..Amazing.
I have copies of everything ...some where in a 400sq.ft area.........I just kept thinking...find the problem ,take the pill and all will be well..............
.So I collected the info and kinda have an idea of how many positives ...but still thought it's just this one more piece to puzzle and I'll get there..
I think you guy's forgot the Thyroid/hormone issues if you want a couple more to count...
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