LymeNet Flash: Congenital lyme

This is topic Congenital lyme in forum Medical Questions at LymeNet Flash.

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Posted by gatorade girl (Member # 24896) on :

Does anyone have first hand experience with this? Did their children show symptoms? How were they treated?

Posted by philly78 (Member # 31069) on :

I don't have any experience but I did read a rather interesting article recently which may benefit you. It is a bit long but well worth the read.

Congenital lyme is discussed.

http://www.publichealthalert.org/Articles/scottforsgren/corson.htm

Posted by Spindleshanks (Member # 32556) on :

I know I have been sick since my teens but

started to get really sick during pregnancy. It

took me four years to get dx after having my

son. I went into labor at 29 weeks had all kinds

of weird symptoms that still have not gone away.

My son was born at 38 wks. We both had a fever.

He had breathing problems and was showing signs

of sepsis. They kept him for seven days and gave

him antibiotics around the clock. The docs said

they don't know what the cause was and that

these things "just happen". I now know it was

because I had lyme disease. My son does not have

any signs of lyme. I am hoping the seven days of

IV antibiotics at birth did the trick but I

think that is wishful thinking. Sorry that is

all I know but am also very concerned.

Posted by gatorade girl (Member # 24896) on :

My older daughter just tested positive for Lyme . I think my Lyme goes way back. My doctors always blamed everything on Crohns. I had crazy pregnancies and my daughter was born 2 months early. The other one went to full term , but only weighed 4 pounds 11. I am going to get my younger tested as well. Just really scared.

Posted by gatorade girl (Member # 24896) on :

Thanks for e article!

Posted by peacemama (Member # 17666) on :

Yes. And there is a group on facebook called, "Parents of Kids With Congenital Lyme" if you would like to join.

I have two congenital kids and I lost one in between them.

Posted by ktkdommer (Member # 29020) on :

It is a scary thing and there isn't a ton of info out there on treatment of our kids- some of them very young or even infants.

I didn't know I had Lyme until my youngest became bedbound after 4 years of deteriorating health. He was tested and then myself and oldest son. Turns out my lupus was Lyme and all those "odd" things that happened in my body for 30 years were Lyme too.

It has been about 13 months since discovering I unknowingly gave Lyme disease and 2 coinfections to my children in utero.

My sickest started out weird in womb, odd breathing as a baby, pneumonia at 3 months, but met his milestones. At age 5 ADHD was impacting his learning although he was quite bright. Then came cyclic vomiting syndrome, fatiguing muscles, postural orthostatic tachycardia syndrome and FMS. His behavior totally changed.

My oldest was pretty healthy but some symptoms we had considered normal. It is weird that he was healthier- stronger immune system- and I nursed him 2 years.
Now we are starting the long road to recovery. We are following Burroscano's treatment guidelines with an ILADS doctor and doing lots of supplementals and diet changes.

My sister didn't know she had Lyme until I got tested and now we know she is positive along with her 5 year old. He has mild symptoms like sensitivies to sound and light, pain on shins, outbutsts, frequent viruses that last longer than his preschool friends.

So many of us as mothers have been clueless that Lyme can really exist the way it does. I'd never heard of such a thing until last June.

Posted by gatorade girl (Member # 24896) on :

Thank you all for your support. I joined the Facebook group.