I wish that i could report that i am feeling better and that the abx seem to be doing the trick but the truth is i do not.
Its been 12 weeks and i know this will take time but all i have felt is worsening of all my symptoms and have even developed NEW symptoms while on treatment.
The latest and possibly greatest new symptoms i have developed are in my legs and effect my ability to stand or walk for extended periods.
I am fully aware that i could be having Herx after herx but is it normal to develop new symptoms while on treatment?? Or should i reconsider my treatment method?
Thanks all.
Posted by sixgoofykids (Member # 11141) on :
Unfortunately, at 12 weeks you're just getting started. That all sounds pretty normal. I was seeing small improvements once in a while, but nothing great overall at that point.
Are you seeing an LLMD?
Posted by DDEC2 (Member # 30313) on :
Yes im seeing a LLMD. when my treatment first began i was feeling an increase in energy and was beginning to feel as though the treatment was working.
After 4 weeks a second abx was introduced to the protocol and its been down hill ever since.
Scary part is i never had problems with my legs and walking until now.
Posted by JLaw (Member # 31159) on :
I've been on Suprax and Azithromicin since May 5th and the first two weeks sucked. I started feeling somewhat better after about a month. My joint pain in my wrists and hands along with the joint stiffness is just now starting to subside. I am starting to feel like myself again and just started back at the gym which I had stopped due to the lack of energy and fatigue. I see my LLMD July 28th and he does have two more refills on those antibiotics so I will be on them for another two months. But all and all they are working. That second abx you started is prob causing your new symptoms.
Posted by sbh93 (Member # 30429) on :
I'm at week 16. I'd had knee problems in the past, but not like you describe until I hit week 3. I couldn't walk. LLMD reduced dosages and I walked again.
We spent the next 9 weeks on the same dose, then tried upping it again. I do feel it in my knees and fingers again, but am still walking so I believe my "bacterial load" has been beaten back enough to where I could handle the higher dose again.
In general, what has made a huge difference for me lately in symptoms overall has been getting weekly IV nutrition drips. (And I am on daily supplements and vitamins anyway.) I get 3 clear thinking days out of it.
Posted by scorpiogirl (Member # 31907) on :
I was on oral meds for a year while my condition continued to deteriorate PLUS I developed more new symptoms! I didn't know any better then, b/c people kept telling me be patient... it takes times before you see results! I beg to differ.
An effective protocol should yield some results or at the very least stop the disease from progressing. I am now on IV medications which I felt the positive impact by day 5. Most of my pain is gone and I'm sleeping again! B/c of that I no longer need two naps during the day making me much more functional. I felt so much better I even volunteered at Vacation Bible Study where I was on my feet for 5 hours each day working in the kitchen. Before my IV meds, that would be an impossibility!
My LLMD said 3 months if you don't improve, you need to change/adjust something. 3 cycles should be long enough to evaluate effectiveness of your medications.