My mom was just diagnosed with "thyroiditis" which surprises me since she doesn't have a thyroid.
Her eye Dr told her there is "Crystalizing" behind her eyes and prescribed her with 80mg of prednisone daily.
Now, a few things I need to point out here. My mom has been tested for Lupus 4 times - all negative.
She's been tested for Lyme twice with a known tick bite and bullseye rash.
Test was done, Dr told her it was negative. I have been badgering her to get another opinion and to get copies of her records.
Copies came and her LabCorp test shows Band 23 and 41, but was considered "negative".
Now that she is on the steroids she is having profound fatigue, flu like symptoms and requiring a daily nap.
I am sick about this. My mom said she has to take the steroids to possibly save her eyesight.
She's not a big believer in Lyme and has seen Under Our Skin. I'm not sure at this point if she'd even treat it if she were positive by CDC standards due to not wanting to deal with the herxing.
My question is - does anyone have a good understanding of "Thyroiditis" that can explain it me me a little better?
I have googled it but I know in my gut she has Lyme and this is a Lyme thing. I cannot get her to listen to me though.
Any thoughts are very much appreciated.
Posted by Lymetoo (Member # 743) on :
Didn't know you could get it without a THYROID!!??
Google Hashimoto's Thyroiditis and see what you come up with.
Steroids are sometimes needed in order to save eyesight, unfortunately.
I hope she can get off of them and get ON lyme treatment!
Posted by Jane2904 (Member # 15917) on :
Sorry I don't have any info for you.
Sending big hugs and hope it all works out okay for your Mom.
Posted by DoctorLuddite (Member # 13853) on :
Sounds more like she has choroiditis, inflammation of the choroid lining of the eyeball...
Posted by momintexas (Member # 23391) on :
Could that happen in both eyes?
Posted by Leonardjio (Member # 32906) on :
quote:Originally posted by momintexas: She's been tested for Lyme twice with a known tick bite and bullseye rash.
Now that she is on the steroids she is having profound fatigue, flu like symptoms and requiring a daily nap.
Any thoughts are very much appreciated.
No wonder, the steroids depress the immune function, so Borellia is having a good time. You must be right its Lyme, clearly. Doctor's often prefer a detour first.
Best have her get checked on selenium, central in immune function.
(Greek researchers studied the impact of selenium treatment on antithyroid peroxidase (TPO) levels in patients with Hashimoto's thyroiditis. In the study, patients received 200 mcg of selenium (an l-selenomethionine supplement) orally for 6 months.
Half the group continued taking selenium for an additional six months, and the other half stopped selenium supplementation. The researchers found that the anti-TPO levels were reduced substantially during the first six months, with an approximately 5.6% reduction after 3 months, 9.9% after six months, and an additional 8% in the additional six months for the groups that continued with supplementation.
The group that stopped supplementation saw a 4.8% increase in the antibody levels during the second six months.)
Posted by DoctorLuddite (Member # 13853) on :
If there is immune attack on the choroid layer, it is within reason that the attack would not be selective to only one eye.
Posted by momintexas (Member # 23391) on :
Thank you for your responses.
I will definitely pass all of this info on - I really appreciate the help.
![[Frown]](frown.gif)