Has anyone had a terrible reaction to IV ALA? Am trying to help a friend.
Please let me know what helps to ease this situation.
Thanks so much!
Posted by seibertneurolyme (Member # 6416) on :
My guess would be that the patient possibly has a mercury toxicity problem. Chelation may be needed -- but it probably will not be a quick or easy fix.
For now, antioxidants which cross the blood brain barrier might help. CoQ10, pycnogenol (pine bark extract) and vitamin C would be a good start.
Bea Seibert
Posted by TerryK (Member # 8552) on :
ALA = Alpha Lipoic Acid??
Can you tell us what kind of reaction they had?
Posted by imagine2 (Member # 3136) on :
Thanks Bea, I will tell her that. I have both that I can give her.
Terry, she can hardly hold her head up...can barely talk. She just says she feels horrid. She had the treatment yesterday.
What does Alpha Lipoic Acid actually do?
Posted by canefan17 (Member # 22149) on :
Why is someone doing IV ALA?
ALA (even in small oral doses) will move tons of metals from the brain and put them into motion.
This could cause seizures, brain fog, fatigue, heart palps, angina, acid reflux, more and more.
Do Doctors just blindly write scripts for this ish?
Have them load up on binders or do colonics/enemas asap.
Posted by Lymetoo (Member # 743) on :
That is frightening!
Posted by Mo (Member # 2863) on :
canefan's exactly right, get on binders in the gut - but SAFE. bentonite clay plus psyllium and activated charcoal taken as it should be, or a product by Jarrow called Heavy Metal Detox, which is NOT a chelator, it's a binder made of apple pectin and algin. algin binds better than chlorella. even chlorella CHELATES metal.
chelators can easily POISON your most critical organs right quick if you have ANY metal in your mouth and tissues.
mo
Posted by TerryK (Member # 8552) on :
I agree. It can mobilize heavy metals. Aside from the binders mentioned by Mo there is a binder that helped me a lot but it is $$$. It was recommended by my LLMD (he does not sell it or profit from it in any way). It is called Microsilica by Biopure.
The only other thought I have is that some of us have problems handling sulfur and ALA is a sulfur based supplement. If you have the problem that I have (CBS upregulation), taking sulfur based supplements create more toxins for your body to deal with in the form of sulfites and creates excess ammonia (another toxin). When I get too much sulfur I use molybdenum and Nuramedix Sparga until I feel better.
Too much sulfur for me makes my hands, feet and eyes burn and my body ache. I often feel too ill to do anything. Cutting way down on meat can help if it is a sulfur issue.
some uses of ALA from webmd - also look at side effects by clicking the tab labled side effects http://tinyurl.com/3ox6acb
Sorry your friend is feeling ill. Hope they feel better soon.
Terry I'm not a doctor
Posted by imagine2 (Member # 3136) on :
VERY helpful information. Thank you so much. Will send it to her immediately.
Terry, I have some molybdenum which I will also give to her. Also, what is CBS upregulation?
Posted by seibertneurolyme (Member # 6416) on :
One other angle no one has mentioned. Alpha lipoic acid is one of te nutrients required to produce glutathione. Hubby has actually stopped his glutathione IV's -- he no longer needs them due to taking a better absorbed oral form of alpha lipoic acid.
If a person is deficient in glutathione the intitial doses can cause some extremely unpleasant side effects. It is possible that by getting ALA by IV it would cause a person to temporarily increase production of glutathione.
The first time hubby got IV glutathione it caused nausea and dry heaves and Parkinsonian tremors. We were 4 hours from home and I had to pull the car over every 20 or 30 minutes so he could throw up (or at least try to). It actually took months to recover because no one could explain what had happened.
It was almost a year before anyone could talk hubby into trying IV glutathione again. At that time he could tolerate a lower dose and he increased the dose gradually and continued doing IV glutathione at home for 4 or 5 years. We did it daily for a couple of years and then decreased to 4 or 5 times weekly.
Glutathione is one of the major detoxifiers in the body. It would depend on what toxins were stored in the body as to what the reaction would be to a sudden increase in glutathione production.
For 8 months or so prior to the glutathione IV hubby had gone through an aggressive mercury chelation protocol with DMPS and DMSA and d-penicillamine etc etc. His mercury toxicity symptoms of tremors and nausea/dry heaves had improved about 80 or 90% prior to the IV.
His tickborne infections were undiagnosed at the time of the 1st glutathione IV. It is hard to say even now what exactly caused his extreme reaction to the glutathione. And that reaction was one of the reasons it took years to diagnose his tickborne infections -- all the docs were stuck on whether he still had a mercury issue or trying to figure out what caused the adverse reaction to the glutathione. No one could seem to grasp that the same symptoms could be caused by a different illness.
This is not medical advice, just my opinion based on hubby's experiences.
Bea Seibert
Posted by MannaMe (Member # 33330) on :
Bea, was your husband's glutathione IV only glutathione?
My husband will be getting a bag of nutrition IV at his next appointment. These IV's have Vitamin C, Vitamin B, B-12, Magnesium, & Glutathione.
Posted by seibertneurolyme (Member # 6416) on :
MannaMe,
What you are describing sounds like either a Myer's cocktail or some variation of that.
The first time hubby did IV glutathione that was the only thing in the IV. And what I was trained to administer at home was IV push glutathione. Later we also did some of the IV phosphatidylcholine IV's (Patricia Kane protocol). Some docs call this protocol "lipid exchange".
If you do a nutrition IV it is my understanding that the glutathione should be added at the end and not mixed with the other ingredients.
Hubby did many of the nutritional IV's -- at one point he did them 5 days a week for 2 or 3 months when he had a really bad crash from trying Borrelogen. This was before he had done any antibiotics.
In my opinion the nutritional IV's should not cause any problems, but nothing is guaranteed.
IV glutathione has been tried as a treatment for Parkinson's and that is one of the reasons hubby tried that. The neurologist in Florida who convinced him to try it again was doing an NIH study on the use of glutathione in Parkinson's patients. Dr P is the author of a couple of books about brain health.
Bea Seibert
Posted by chootik (Member # 11221) on :
My LLMD DOES NOT recommend IV ALA. He said it has too many complications and showed me an article that talked about the possible side effects.
ALA is best done orally.
Posted by imagine2 (Member # 3136) on :
Thanks, Bea. May I ask how much glut. your hubby was taking daily?
Posted by seibertneurolyme (Member # 6416) on :
Hubby generally did between 1000 and 2000 mg of IV glutathione per dose -- frequently 2 or 3 times daily. At the time they could never find a seizure med which would work and I was giving him IV Ativan multiple times daily.
The times when he passed out and I needed to get him up off the floor and into bed I would do the IV glutathione after the IV Ativan and it would bring him around enough to get him into bed.
A doctor who did muscle testing jokingly told us that hubby might as well drink the glutathione he was so deficient in it.
We had a prescription for IV glutathione from Medhaus Pharmacy (mail order) and ordered the 100 ml reusable bottles and had to get overnight shipments about once a week.
I am trying to summarize hubby's 10 year medical history for a new LLMD who wants details of every med ever tried -- don't think they are going to get quite that level of detail as there are some things we would just as soon forget.
I remember one hospital visit a couple of years ago where hubby had encephalopathy (could not even tell you his own name), but he was able to recite details of his medical history because he had repeated it soooo many times.
Bea Seibert
Posted by Brussels (Member # 13480) on :
Dr. K never gives even ORAL ALA in the beginning of any treatment. Far too dangerous. I hope he listens and get TONS of binders that help.
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