It seems like without the "joint pain" no one other than a LLMD will take you serious.
I was curious as to how many others have not experienced this typical symptom.
My symptoms are mainly neurological and peripheral.
Posted by Lymetoo (Member # 743) on :
Tons of folks here!! But not me. I wasn't that lucky! (though the H.. of neuro stuff has got to be awful too!)
We all have neurological involvement one way or the other.
Posted by MichaelTampa (Member # 24868) on :
None of that joint pain here.
Posted by DDEC2 (Member # 30313) on :
With all the people not experiencing joint pain, why is that considered the most clear cut symptom??
Who made this criteria? its ridiculous.
Posted by lymeboy (Member # 24769) on :
I only got the joint pain after a year of intensive treatment. Plenty of muscle aches and pains, but no joint pain to speak of. Seems it came uncovered at some point. But my Symptoms are largely neuro. An llmd is the only doc that will help you through this disease. A reg MD will confuse the issue while you get sicker.
Posted by Razzle (Member # 30398) on :
Different strains of Bb will yield different symptoms. European strains have more skin symptoms. The "Steere/Wormser" Lyme has the classic bull's eye & joint pain. Other strains here in the US don't always cause these "classic" symptoms, but the initial reports on Lyme were written by Dr. Steere & his cronnies, thus the "classic" symptoms we see always include joint pain & bull's eye rashes.
Posted by Lymetoo (Member # 743) on :
Some say the joint pain comes later.
Posted by DDEC2 (Member # 30313) on :
Yea i have had plenty of muscle issues that involve or limit joint movement but have yet to experience any real joint pain.
Any MD looks at me with a blank stare and asks "lyme disease?.... well do you have any joint pain?"
One doc even pretended to know how to interpret my Igenex text result but was holding it upside down!! no joke, then proceeded to tell me that he wouldnt worry too much because im not having any joint pain.
Ridiculous.
Posted by Jamers (Member # 28016) on :
My joint pain did come later like lymetoo mentioned. When I was first very ill, I did not have any pain, just vertigo and icky sicky feeling.
It was about 6 months before I got joint pain.
Posted by MannaMe (Member # 33330) on :
My husband hasn't had any joint pain. Its around 10 years that he had Lyme (we think) He was only diagnosed this summer.
Posted by sbh93 (Member # 30429) on :
I didn't think I had joint pain when the doctor asked. I called it "allover soreness, like I have the flu." It was only with the treatment that I started to notice how the "soreness" would intensify in certain joints and migrate around and then I called it "pain."
I believe when you have something for so long, it may not even register in your brain anymore as something that you should not feel. I didn't even recognize my floaters, flashing lights, skin problems, muscle spasms, 3-day migraines, auditory hallucinations, and other major red flag medical symptoms as abnormal because I'd ignored them so long.
So I guess my point is are you sure you don't have it? Posted by TF (Member # 14183) on :
I never had joint pain. I had undiagnosed lyme, babs, and bart for at least 10 years. It is very likely that my lack of joint pain caused me to have to suffer so long without a diagnosis.
Then, I treated for a little over 3 years. Never had any joint pain then either. But, I had plenty of other horrendous, unbelievable symptoms.
Posted by cleo (Member # 6646) on :
Me, no joint all neuro. I have symptoms almost identcal to tf.
Posted by bcb1200 (Member # 25745) on :
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