So, I had emergency gallbladder surgery in March after abdominal pain for several months. What finally got me was throwing up non-stop. Anyway, like I have said in last posts, I still have "gallbladder" pain. I was in the hospital last week for dehydration because I spent a whole day throwing up bile and couldn't keep liquids down. At first I thought it was a virus, but I finally put the pieces together. I talked to my LLMD today, and he was saying Frye laboratories have discovered a new parasite. Apparently there has been an article published in the past month. Anyway, my dr told me today that he thinks that I have this new parasite and that it is causing all my issues. We also noticed that all of my attacks are appx a month apart- the life cycle of the organism. Has anyone else heard about this? I am going to start a new anti-parasitic herb treatment.
Posted by sickofsick (Member # 29258) on :
The "new" parasite is FL1953 or protomyxoa rheumatica. My daughter tested positive for it recently. It hides in biofilms.
I haven't tracked her symptoms well so unsure about cycles. But she has had unrelenting nausea and stomach pain for the past year. Ultrasounds, hida scan, endoscopy all normal.
Posted by Life+Lyme (Member # 33568) on :
My hidascan was normal; I just had sludge. When I couldn't stop throwing-up, the only thing they thought they could do was take it out. They couldn't complete my ERCP because of complications. Many gastro guys have said that they have done all the tests they can and have no explanations. When I have attacks no pain meds will work even the heavy duty ones. I really hope that we are now on the right track! He did mention something about my biofilm. I was kind of lost, though:)
Posted by karenl (Member # 17753) on :
Dr. K says parasites live in the bile ducts over the gallbladder and then people think this is a gallbladder problem. The K protocol can solve the problem.
The Fry bug should not cause this problem as far as I know.
Posted by 2young2dieMom (Member # 25434) on :
I was just dxd with protomyxoa rheumatica. I haven't had any stomach issues except c.diff a few months ago after a picc line infection. Flagyl and florastor cleared it up.
I was dxd with ALS 2 years ago. I have paralysis in my neck and shoulders now my legs are weakening.
My dr wants to start me on low dose ivrometctin (sp?) for protozoan parasites. This is the only bug I've tested positive for in all WB and Igenex tests.
I also have monoclonal gammopathy.
Posted by cologirl (Member # 34409) on :
I had my gallbladder out also about 5 years prior that eventually ended up having lots of muscle pain and fasiculations. I was dxd with the FL1953 also, and started the parasite abx and other biofilm breaking supplements. The jury is still out as to if this is really causing all my symptoms, but like you this is the first time I have a positive test for anything. Seen lots of doctors and spent nearly 60K to get better. I think they are having a symposium in Canada soon and the LLMD will be discussing this new parasite, i.e. treatments, validation, etc. Lets pray for all of us that this is part of the puzzle to better health.
Posted by hadlyme (Member # 6364) on :
I am in treatment for the FL1953 with Dr. F.
You can search in here for FL1953 or Low fat diet.
It's a MUST to do low low fat diet with this FL1953. McDougall Diet.
There are great things being discovered with low fat, abx, diflucans, and parasitic drugs.
If your dr's have said you have this FL9153, they need to have told you to do the diet with any treatment.
You can herx on just diet, so be careful.
I feel that this protozoan is the one that is responsible for us never getting completely better. Now, with focusing on it, I'm getting better.
2young, my dr. is seeing ALS patients that are getting better. My dad and aunt both had ALS, so with me having this, I'm staying with this dr. for sure. He has many new grants to study ALS and this protozoan.
Posted by Mindy159 (Member # 31149) on :
hadlyme, what ax are you taking?
Posted by hadlyme (Member # 6364) on :
I am on Zith and Diflucan and Malarone.
Diflucan as I had Valley Fever (fungal infection that us AZ's get from the dirt!)... but also have herx'ed really hard on it (it's a parasitic drug).
Right now I'm pulsing with it with my own schedule of about 3-4 days each with a couple days off in between each one.
In a month will start on that other parasitic drug.. baby doses!!
Posted by Life+Lyme (Member # 33568) on :
Another really interesting/ weird thing is that my bad pain/ vomiting attacks are almost always on full moons. Now, I understand that full moons to have effects on people--pregnant women going into labor. My LLMD said that the parasite increases 700 fold on full moons and I guess that it is clogging my bile duct or something.
After my last attack, I had blood work done a couple hours later. I just got it back and my liver levels were really high! I hope this isn't causing permanent liver damage. That doesn't seem like a fun new thing.