I have recently created a site and am looking for success stories. My intention is to find individuals whom have completed one or more treatments, have shown great improvement or remission, and have stayed that way for a minimum of at least 6 months to a year.
I am looking to conduct interviews, via phone, and ask detailed questions about your treatments, such as major therapies you tried, dose, frequency, duration, brand (if there was one) etc etc.
I would then, after your review and approval, be posting all of the success stories in one place for others to read and review.
My own Lyme journey (and success) has been built upon the backs of those who came before me. Many of the treatments I tried were only from the benefit of anecdotal evidence provided by those who were before me good enough to share their experiences.
As important as what worked, I believe, is what didn't work as well. Any insight or help with this little project would be greatly appreciated, and I would be deeply grateful.
It's a new site, so not much material yet, but I'm concentrating on a combination of science and anecdotal stories. I particularly like repeatable, verifiable anecdotal stories that illuminate additional opportunities for healing.
Not everyone is the same, what works for someone will not always work for others. But there is something to be learned by everyone.
Thanks, noodlydoo
Posted by Haley (Member # 22008) on :
Noodly - This is a great idea.
I wish that I could be one of your success stories. Unfortunately, I'm not there yet.
I personally am very interested in Buhner herbs and I would like to see if there are people that have gotten well with his protocol. I can only say that I have a very good feeling about his protocol and I know that many have gotten well with it, but there is not much information.
Keep us posted.
Posted by noodlydoo (Member # 3273) on :
Will do Haley. I'll check out those herbs. Anyone you know personally that has had success that I might be able to get their story?
Posted by Lymetoo (Member # 743) on :
There's an entire thread of success stories in General Support under "Quick Links to Popular Topics."
[ 10-19-2011, 10:56 PM: Message edited by: Lymetoo ]
Posted by Lymedin2010 (Member # 34322) on :
What do you consider success stories? Complete absence of symptoms or symptoms down to a minimal and living a normal life?
I think we need to talk I have information to share. I will PM you.
Posted by sixgoofykids (Member # 11141) on :
Noodlydoo, take a look at my blog below. I got well with an alternative treatment you might be interested in having information on.
Posted by noodlydoo (Member # 3273) on :
Lymedin,
I consider a success anything that you would consider success. Are you living a livable life? Can you get out of bed in the morning and take your kids to school? Your a success in my book. I'm looking for stories about people who beat the odds against late stage disseminated Lyme. Many people won't be in full remission, but if your able bodied and living a relatively productive life...then yes, I'm interested.
But more importantly...I think the devil is in the details. Often, on a message board you hear something like......RIFE did/didn't work for me.
What does that mean? How often did you rife? What machine did you use? What frequencies? Did you use a carrier frequency...if so, which ones? Did you gate? Sine or Square wave? How long (months) did you Rife?
So when I read that something worked or didn't work, I can't help but start to ask myself based on what? This is why I'm trying to dig down a little deeper than you might find on a message board. Thanks for the great question.