I think that bartonella is a big part of my problem. I have thought it all along, as I am mostly/all neuro. Cipro seemed to help...I was improving while on it. It was the only drug that rendered me ANY improvement what-so-ever. But...I got tendonitis in both Achilles tendons from it and my LLMD will not put me back on any fluoroquinolones because of the fear that it will return.
I have also tried rifampin. While it didn't really help at all, I can't take that either due to it always skyrocketing my liver enzymes. Am I out of options to hit bart? My LLMD gave me A-Bart at my last appointment and will be trying that shortly...
I am worried that I am out of options...
Thanks all!
Posted by nanaaaaa (Member # 30529) on :
bactrim?
Posted by Kramberry (Member # 34032) on :
I thnk she tried bactrim as indicated in her sig
Posted by bcb1200 (Member # 25745) on :
What about Factive? A quinolone, yes. But newer and with less side effects. Most take it 4 days on 3 off.
Else there are the heavy duty mycins (clindamycin?) Which are very hard on the ears, etc.
Posted by bcb1200 (Member # 25745) on :
Also rifabutin which os a newer Rifampin that is easier on the liver
Posted by jackie51 (Member # 14233) on :
Try the A-Bart. It'll help. Ramp up slooowly.
Posted by skies (Member # 28064) on :
I've heard that minocycline and zith together can have some impact on bartonella.. Not 100% positive if that's true, but I've heard it.
Posted by triathletelymie (Member # 26456) on :
Thanks everyone!
nanaaaaa - Yes, Kramberry is right, I tried bactrim...still on it actually.
jackie...and anyone else...anyone know if A-bart will totally eradicate bart...or just help with symptoms?
Anyone else?
[ 10-24-2011, 01:11 PM: Message edited by: triathletelymie ]
Posted by lymeinhell (Member # 4622) on :
Were you taking tons of milk thistle while on Rifampin before?
Posted by Lala (Member # 29864) on :
Yes, my doctor uses minocycline with azith.
Posted by triathletelymie (Member # 26456) on :
Julie - Yes, I was. But...perhaps not enough...but...the rifampin wasn't really helping anyway. The only thing that has even remotely caused me any improvement what-so-ever, even if ever so minor, was cipro.
Lala - Did that combo work?
Posted by MichaelTampa (Member # 24868) on :
gcmaf?
Posted by triathletelymie (Member # 26456) on :
up
Posted by 2young2dieMom (Member # 25434) on :
ABart is an herbal product but works well.
Posted by anuta (Member # 22646) on :
A-Bart helped tremendously to eliminate bartonella symptoms. It took about 3 months and I was herxing like hell in the beginning.
Does it eradicate bartonella completely? who knows, I was previously on Cipro for 6 months and thought my bartonella was gone,but it came back after I've treated babesia.
Posted by pamoisondelune (Member # 11846) on :
My rife machine works on my Bart.
My PE-1 works on my Bart.
There are threads here for both of those.
Thank heavens we have these options! I would refuse to take those drugs you named. There ARE OTHER OPTIONS , THANK GOODNESS!