I feel like I've finally pieced the puzzle together (new to this and recently discovered the symptoms in a young child are very likely due to Lyme). I think we're still in the early stages but I'm not sure (no history/recollection of bite). I now have a sense of urgency in that I don't want to wait for test results, but not sure of my options. I'm not sure what to say when I call the Pediatric LLD and explain the situation and communicate urgency. In short, HOW DO I GET HELP FAST SO I CAN STOP THIS FROM PROGRESSING FURTHER?
Posted by mom2kids (Member # 31972) on :
Nothing about this process happens fast, I'm sorry to say. I am new to this whole Lyme thing myself so I can't give you any advice other than you need have some patience. I know this is hard when it comes to kids and their health.
I hope you get some answers soon.
Posted by Lymetoo (Member # 743) on :
Moving to Medical Questions where most members are....
i'll be back later
Posted by lou (Member # 81) on :
How long has the child had the symptoms? This tells you how urgent it is to get treatment. Just a short time with symptoms means it is urgent. Long time with symptoms means the treatment will take a long time and is not as urgent.
And sorry to bring more bad news, but ticks frequently give people more than one type of germ, and this may require different meds.
Posted by grtpyrlvr (Member # 34588) on :
I totally understand...We are in the early stages as well and I just want to skip to the "treatment stage". It's very frustrating to have to keep waiting when she see your child sick. Have you found an LLMD yet? We are in that stage our self.
Posted by ladyluck (Member # 34643) on :
Thanks all for your replies! It is so hard, and it's a shame that more is not done to raise awareness and education about Lyme. I totally understand the political reasons for why this is, but it doesn't make it any easier to accept. This speaks volumes about our national orgs so-called missions to "control and prevent disease" (e.g., CDC, NIH, etc.) Meanwhile, people are suffering!
So back to our situation - we're waiting for test results now.
@lou: Symptoms been persistent for 6-8 weeks
@grtpyrlvr: Yes, we lucked up and got in with Dr. J in CT; appt. this week. So we'll see how that goes. Also went to a local LLMD, so we will see.
Posted by Rumigirl (Member # 15091) on :
OMG, you really lucked out on getting in to see Dr. J so soon!!! That's gold. Thank God that you did. Keep coming back here for more info and help as you need it.
Posted by Lymetoo (Member # 743) on :
YEA!! Good job, Mom! Posted by ladyluck (Member # 34643) on :
Yay - thought I'd post an update post-appointment. Dr. J is AWESOME!! He is a great man; passionate about what he does. Thank goodness for him. He put DD on treatment schedule based on symptomology so hopefully things will be looking up from here. The only issue now is overcoming my paranoia about letting DD outside for play for fear of future bites...
Posted by sbh93 (Member # 30429) on :
Wow, you're in Tally. I'm so glad for you that you got in with Dr. J so quickly and dealing with the travel. I would super appreciate a PM with the name of the "local LLMD" you mention.
We're still struggling with the outside thing so I completely understand. I was reinfected while camping in central FL (rash and all, definitely lyme around here) and two of my children possibly are infected as well.
Posted by gagamooppop (Member # 34314) on :
Hi everyone...have been on the search for an LLMD in CT and see you all mentioning Dr. J. Can someone PM with Dr. J's info?? Greatly appreciated!!
Posted by gagamooppop (Member # 34314) on :
Oops nevermind...figured out who it was...thanks anways! reading through old threads...
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I was reinfected while camping in central FL (rash and all, definitely lyme around here) and two of my children possibly are infected as well.