IgM <20 IgG 40 with note on/for IgG that 40 to 160 "May or may not indicate active infection...blah blah blah"
Docs 1 & 3 are corporate docs, Doc 2 is a small Lyme Literate doc. But I cannot get the corporate docs to even remotely acknolge the tests as they have said these results are negative and since they were performed by Igenx & they've had a negative Wall Stree Jornal report from what? 6 years ago the-----MY!!!!!------ results are suspect at best.
HELP!!!!!!!!!! Do I have Lyme or not?????? Co infection or not???????
Posted by Jedi (Member # 34760) on :
Anyone?????
Posted by bcb1200 (Member # 25745) on :
Your results are neasrly identical to mine. You have it in my experience (I'm not a doc).
Your lyme IgM is positive with band 83/93 positive. This is lyme dna. No doubts. IgG is negative, which is very common with chronic lyme. Mine was negative too.
I also had 40 for my IgG for Bart. A weak positive, but positive nonetheless.
Suggest you get to an LLMD and away from corporate docs
Posted by MichaelTampa (Member # 24868) on :
That is a HECK of a lot of bands to not be caused by lyme. It is very commonplace that regular docs do not accept or believe or understand the tests. It says nothing about your infection status, it only says a lot about their lack of understanding or caring or something like that.
Posted by Dekrator48 (Member # 18239) on :
Diagnosis is not ruled out just by lab tests.
Diagnosis is clinical...based on your history, physical exam, symptoms, and labs.
You definitely do have positive Lyme specific bands on your western blot.
If you have a bunch of lyme symptoms, then that sure points to lyme.
Coinfection testing can also be inaccurate, so don't base anything just on that.
If you have coinfection symptoms, then you may have a coinfection, since they are common.
Thanks... I was/have been trying to tell my Wife, the docs, and a co-worker now the same thing...a positive is still a positive-- even if its a weak positive.
Posted by Beth22 (Member # 30232) on :
you have lyme. period.
Posted by Lymetoo (Member # 743) on :
I'll be back later... sure looks like Lyme to ME!!
Thanks folks, been reading every spare second i can here at work. But YES... I DO have the multi-symptomatic, over-misdiagnosed to anything & everything all the way up to and including depression, chronic fatiques, etc. And wow, surprise surprise-- every Kaiser test I've taken over the years has been negative.......
Posted by Lymetoo (Member # 743) on :
From the link I posted above:
18: An outer surface protein.
22: Possibly a variant of outer surface protein C.
23-25: Outer surface protein C (osp C).
28: An outer surface protein.
30: Possibly a variant of outer surface protein A.
31: Outer surface protein A (osp A). 34: Outer surface protein B (osp B).
37: Unknown, but it is in the medical literature that it is a borrelia-associated antibody. Other labs consider it significant.
39: Unknown what this antigen is, but based on research at the National Institute of Health (NIH), other Borrelia (such as Borrelia recurrentis that causes relapsing fever), do not even have the genetics to code for the 39 kDa antigen, much less produce it. It is the most specific antibody for borreliosis of all.
41: Flagella or tail. This is how Borrelia burgdorferi moves around, by moving the flagella. Many bacteria have flagella. This is the most common borreliosis antibody.
45: Heat shock protein. This helps the bacteria survive fever. The only bacteria in the world that does not have heat shock proteins is Treponema pallidum, the cause of syphilis.
58: Heat shock protein.
66: Heat shock protein. This is the second most common borrelia antibody.
73: Heat shock protein.
83: This is the DNA or genetic material of Borrelia burgdorferi. It is the same thing as the 93, based upon the medical literature. But laboratories vary in assigning significance to the 83 versus the 93.
93: The DNA or genetic material of Borrelia burgdorferi.
In my clinical experience, if a patient has symptoms suspicious for borreliosis, and has one or more of the following bands, there is a very high probability the patient has borreliosis.
These bands are 18, 22, 23-25, 28, 30, 31, 34, 37, 39, 41, 83, and 93.
[---- from DR C's update from 2005 --- ----The significant antibodies, in my opinion, are the18, 23-25, 28,30, 31, 34, 39, 58, 66 and 93.----]
Posted by Jedi (Member # 34760) on :
Thanks, thats about the clearest summary yet. And in looking over my past posts I need to apoligize for my hasty typing....makes me look a tad ignorant when in reality I'm a lousy typer and tired beyond belief since getting these results.
Posted by Lymetoo (Member # 743) on :
You can always edit mistakes. (I make them all the time.)
Click on the "pencil/pad" icon next to the date on whatever you need to correct. Then just go in and fix it!! Posted by Jedi (Member # 34760) on :
Ok, another question if you folks would be so kind.
Docs 1 & 3 refuse to prescribe Levaquin - what the LLMD (doc 2) wants me on for 3 MONTHS. IS that a normal med for Bartonella? Normal course? Any alternatives?
Posted by kidsgotlyme (Member # 23691) on :
I have heard some say that Levaquin is the best abx for bart. We haven't had any experience with it though. My daughter did ceftin/zith/rifampin combo and saw great results for her bart.
Personally, I would want to try something besides the Levaquin first. I am not opposed to it if needed, but Levaquin can have some nasty side effects.
It can cause tendon ruptures. I actually know of two people who have had major trouble from this class of drugs.
You always have to weigh risks vs. benefits.
Posted by Jedi (Member # 34760) on :
You hit the nail on the head with the side effects: thats what I'm desperately worried about as having just had a zip-pack reaction when I had a strep throat. The levaquin side effects just fat out scare me.........
thanks for the mention of the others: will discuss with the LLMD when/if I can get back into see her reasonabley soon
Posted by Kramberry (Member # 34032) on :
Rifampin is hard on the liver either no escape
You might want to try naturals?
Abart i guess
Posted by timaca (Member # 6911) on :
Jedi~ Consider looking at this website:http://chronicfatigue.stanford.edu/
Click on "Infections" then click on each pathogen listed, then click on "lab tests". Run those tests and see what the results are.
Best, Timaca
Posted by Lymetoo (Member # 743) on :
how about Bactrim?
Posted by Jedi (Member # 34760) on :
OHHHHHHH Boy, does it get interesting now.
FINALLY got the results (re-test_) back from Corporate doc 1 regarding Lyme and Bartonella. Surprise Surprise! I actually registered POSITIVE for Bartonella.... still regestered negative for lyme ....
So get this: Doc says I'm IgG Posistive for Bart, not IgM.....so therefore its an old infection and most likely leftover antibodies with a level as low as mine...... And then the kicker, HE'S NOT GOING TO TREAT IT>>>>>>>>
I ask him did Corporate Lab do the actual testing as I could see on his screen it was sent/referred out. Guess they sent it to LL lab #2 in the country..... He looks surprised and goes Oh, I guess not.......they did it elsewhere. Guess you were right.......
Can't/Couldn't really get him to budge until my meeting next week with a infectious disease specialist sees me and reviews the results with me
Can somebody stop this ride called earth? I wanna get off
More when I know more....
THANK YOU ALL FOR YOUR INPUT AND LINKS!!!!!!! I maybe headed towards Stanford next if I get nowhere further with this set of Docs & specialist
![[Cool]](cool.gif)
![[cussing]](graemlins/cussing.gif)
....![[dizzy]](graemlins/dizzy.gif)
![[loco]](graemlins/loco.gif)
![[shake]](graemlins/shake.gif)
![[rant]](graemlins/rant.gif)