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Posted by seekhelp (Member # 15067) on :
 
How many here had this test done by Dr C's lab (non-LLMD = pathologist). He is in WI.

If so, any positive results. Did the results actually lead towards a path of wellness / improvement or was it just another "hmmmm" type of result as 95% are? I've been told this individual tests both urine and clothing.

How valid are the results? The cost is pretty expensive ($300) so I'd like some real life feedback. I'm considering it. SO sick of dumping $$$$ on everything though honestly. It's a black hole with no escape route. [Frown]

I just CANNOT stop the head pressure, off-balance feeling. My ears feel plugged 24/7. Always have supposed 'sinus infection' but miraculously Abx never do anything for me. Makes zero sense. I'm fed up feeling like I'm in the land of the living dead.
 
Posted by jackie51 (Member # 14233) on :
 
I had a lot of those feelings until I did high dose of Zithromax with Mepron last year. Felt like I cleared a sinus infection I didn't even know I had. If I leaned over just right, a dark yellow ooze came out of my nose (this was onthe meds, not before). I breath much better now.

I haven't had any real vertigo/car sickness since last year either.

I am testing my house for mold instead of testing blood/urine. One of my reasons is, if I did test positive for mold, I'd have to test the house anyways. If you're sure it's not your house or work that could be your mold exposure, then it's your car if you're in it every day.

Clothing? I don't understand that.
 
Posted by Lymetoo (Member # 743) on :
 
Candida??
 
Posted by seekhelp (Member # 15067) on :
 
Lymetoo, every LLMD said no coating on tongue or throat. None seemed to think it was an issue. 'Most days' my stomach issues aren't terrible, but I seem to have a real bad week or two every few months. Whatever ails me is relentless. It comes back like clockwork every 3 days. Never have beaten the cycle yet.

However, my candida titers were sky high through blood tests on IgA, IgM, and IgG. Even the LLMDs didn't seem to think much of this test though. Therefore, I never pursued it much.
 
Posted by seekhelp (Member # 15067) on :
 
Anyone actually do this test and get results? Just curious. [Smile]
 
Posted by emla999/Lyme (Member # 12606) on :
 
I haven't had my urinary mycotoxins levels tested by the lab that you mentioned above but I did send a urine sample to RealTime Laboratories in Texas to have them test my urine for mycotoxins.


http://www.realtimelab.com/clinical/mycotoxins


It's been a few years ago since I was tested so I don't remember which mycotoxins were elevated in my urine but I do remember that there were two or three different mycotoxins that were found to be elevated in my urine sample.

I actually moved into a fairly recently built minature house a few years ago just to see if my house was contributing to my health problems. I also took cholestyramine for a while and done other parts of Dr. S's (the toxic mold doctor) protocol. And at first it seemed like it helped me but after a while I actually felt worse doing that protocol so I just stopped following the protocol. And then I just moved back into my old house.

By the way, I have what some people refer to as the "double dreaded" 4-3-53 and 15-6-51 HLA DRB DQB genotypes.
 
Posted by lupinelady (Member # 35155) on :
 
How did you find out your genotype?? Where? if u dont mind saying THNX!
 
Posted by emla999/Lyme (Member # 12606) on :
 
Lupinelady,

To determine my genotype a blood sample was taken from me and sent to Labcorp. The test is called an HLA test.

The Labcorp test# is 012542. Your doctor can order the test or you can order your own test from http://www.privatemdlabs.com/lab_tests.php?view=search_results&show=1203&category=7&search=HLA#1203


After you get your HLA test results back you will have to decifer your test results. The link down bellow describes how to decifer your HLA test results to determine your genotype.


http://www.patsullivan.com/files/hla-test-results.pdf


.
 
Posted by momlyme (Member # 27775) on :
 
I heard of Dr. C who does the mycotoxin testing through a facebook support group. If you want the name of that group, PM me.

I have not used his testing myself. A few in that group have. There is an active thread on this now on facebook.
 


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