Added plaquenil, 1 dose yesterday two today and I feel like I am dying with head pain, help !!!
Posted by Sammi (Member # 110) on :
I am sorry you are having so much pain.
Are you treating Babs?
Posted by Lymedin2010 (Member # 34322) on :
Allicin, woebenzye, and Lumbrokinase is what helped me when I had head pressure, neck pressure and fogginess. I believe they stem from a lack of oxygen to parts of the brain, and the aforementioned products thin the blood out to provide oxygen more readily.
Lookup or check for interactions if you attempt the same.
Posted by fflutterby (Member # 28081) on :
Yes Sammi, I am treating Babs. UGHH
Lymedin2010 I have nattokinnaise, will that work the same ?
Posted by Lymedin2010 (Member # 34322) on :
Yes, it is a clot buster and blood thinner too. As with anything we take start out low dosage and slow.
Posted by seibertneurolyme (Member # 6416) on :
Nattokinase may help, but it requires a much higher dose than either wobenzyme or lumbrokinase to get the same effect.
It does sound like the plaquenil may be trying to work on babesia -- for hubby that med was like taking candy -- didn't do anything positive or negative.
You could also try something like ginger tea to help with bloodflow. Can just add 1/2 - 1 teaspoon of ginger to a cup of hot water with a little stevia or honey.
Bea Seibert
Posted by Sammi (Member # 110) on :
flutterby, I feel for you. I have had the worst headaches of my life from Babs. They were so bad, I wondered if this is what an aneurysm felt like.
The good news is that they do get better with treatment.
Posted by LaurenMiddleTN (Member # 35174) on :
Hi all, I'm being treated for chronic Lyme with a possible Babs - besides the usual RX I'm on plaquenil, and I am also on Amitrityline 10mg 1@bedtime. This was prescribed before the Lyme for a hyperactive digestive disorder,,, one of the benifits I found - it stopped my migraines cold. Having them at lease once a week - I haven't had 1 in over a year. I have a little pressure in the back of my head and spine but no migrane. ,,,just a thought. Good Luck!
Posted by fflutterby (Member # 28081) on :
Wow, thanks so much. I will look into all of these things. For now I am lowering my dose to 1/2 pill twice a day and I will ramp up. I need to be able to function, what I experienced last night would never allow me to work. I have to go slowly. So far today it is not as bad.
Posted by twicebitten (Member # 5412) on :
I've had those h/a's that feel like you could have an aneurism at any moment! I often felt my head would explode. I had neurologists give me migraine meds for years with little to no results.
It seemed they would come and go as they wanted not due to any meds. Pain pills, or seizure meds did not help much either.
I would have migraines for months, every day, with little relief. When I began my IV Rocephin they got better, still had them but not near as frequent. I haven't had a bad h/a in several years now just taking oral abx for lyme.
Does anyone know if this can be just lyme or is it probably the babs? My test results never showed I had babs, although I have lots of sx of it. I have never taken the meds for it though.
I really hope you can find some relief, it is so very miserable. I remember going in to work, some days having to lead a drum circle, just thinking I'd rather die. Best of luck to you, God bless.
Posted by nefferdun (Member # 20157) on :
My headaches were helped by imitex if I took it as soon as I felt one coming on. Before I was diagnosed, I was taking a huge amount of it thinking they were migraines from menopause.
There have been some headaches though that nothing helps, especially those related to drugs. I couldn't tolerate plaquenil. I hope you find relief.
Posted by nru (Member # 35247) on :
The woman I adore has lyme, and it has come back. She has had migraine type headaches for years, and I got her some magnesium - it seems to work pretty well. She is back on Amoxy, with a Core (Cats Claw, Androgrpahis, Knotweed) method? added to it. From what I have read (lots) it seems the spirochetes strip magnesium from your blood, and they also use it in standard migraine therapy at times. It's pretty cheap, and you might try it - it seems to work for her.
Posted by Deb133 (Member # 18544) on :
nru - what kind of magnesium?
Posted by Larae30 (Member # 35220) on :
I just started taking the Natural Calm magnesium blend and it seems to help?
Posted by nru (Member # 35247) on :
I got her Natures Made magnesium tablets - available anywhere I think. Give it a shot, can't hurt.
Posted by Deb133 (Member # 18544) on :