Mine is non restorative sleep. I get absolutely NOTHING out of my sleep. I am ALWAYS completely, 100% exhausted.
I'm very curious what you all would list as your #1 worst symptom. Is it also horrible sleep/exhaustion?
Posted by randibear (Member # 11290) on :
headaches and muscle pain
Posted by jackie81 (Member # 27031) on :
For me its the weird spacey feeling...and anxiety. It really just depends on the day
Posted by aperture (Member # 34822) on :
Low grade fevers everyday since March. Then it would have to be horrific fatigue and brain fog. If I could get rid of these 3 symptoms, I could probably deal better with all of the other 50 symptoms.
Posted by imagine2 (Member # 3136) on :
Pain, Pain, and Pain....full body!! Posted by gagamooppop (Member # 34314) on :
I'm with jackie81...I feel like I'm tripping on some form of drugs for the most part of my day and then get nervous about feeling like that.
...not that I'd KNOW what it feels like to take trippy drugs, but that's all I can think of...
Posted by Susie R (Member # 30780) on :
Crushing fatigue and lots of joint pain. All getting better with treatment!
susie
Posted by maustin (Member # 35054) on :
Terrible fatigue, brain fog.
Posted by BuffyFan (Member # 34679) on :
mine is exhaustion too. I don't sleep well and don't feel rested at all. I also wake up multiple times during the night.
Posted by gigimac (Member # 33353) on :
general overall feeling bad like a never ending flu. I guess the technical term is malaise?
Weakness used to be my worst symptom but treatment seems to have helped that!
Posted by Larae30 (Member # 35220) on :
fatigue and brain fog
Posted by Dogsandcats (Member # 28544) on :
fatigue and loss of memory/words
Posted by mom2kids (Member # 31972) on :
FATIGUE...the worst part of that is people just think I'm "tired"! I hate that word, "tired"... I am not tired I literally can't move.
PAIN...it never ends, but if the fatigue was gone I could deal with the pain.
Posted by CherylSue (Member # 13077) on :
intermittent malaise, fatigue, depression, and anxiety
Posted by chastain (Member # 34236) on :
SEvere vertigo...feeling like im going to pass out, vomiting, numbness, feeling like im out of my body, fear of dying
Posted by back2game (Member # 23927) on :
PAIN - everywhere - top of head to bottom of feet.
Posted by bcb1200 (Member # 25745) on :
Before diagnosis it was dizziness and a drunk / drugged feeling.
Today, that is gone and I'd have to say tinnitus and muscle twitching.
Posted by twicebitten (Member # 5412) on :
nerve pain, and when I can't walk, the worst.
I used to have "knock on wood", debilitating migraines and those are really bad too, but I currently don't have those.
I guess when hands and feet don't wanna work is very frustrating too.
Posted by amydee (Member # 34832) on :
Before diagnosis was dizziness and headaches and brain fog.
Now it's fatigue, depression and anxiety.
Posted by Dekrator48 (Member # 18239) on :
Pain!!!
All over, but the neck pain and stiffness is the absolute worst!
Posted by norcal (Member # 29829) on :
It was depersonalization,now it is sleeplessness and pain.
Posted by Tammy N. (Member # 26835) on :
Numbness/tingling/buzzing.
Jennifer -- I have to tell you.... fatigue/exhaustion/non-restorative sleep were a BIG part of my picture for years. One HUGE thing that has helped is a gluten-free, dairy-free and sugar-free diet. I cannot believe that I wake up with energy and can last through the day. I have only been doing this for a few weeks and it has made an enormous difference, I cannot believe it. Although I really dislike the limits it imposes. But I keep telling myself it will be temporary until I am healthy and well. Also, I notice a surge of energy after I do some parasite treatments. Although they can sometimes be difficult to tolerate (depending on the treatment), once I go off treatment, my energy soars.
Good luck. Happy New Year.
Posted by lyme in Putnam (Member # 11561) on :
Depersonalization, confusion, taking me from who I am. Hate it.
Posted by annxyzz (Member # 20404) on :
Fatigue , brain fog .... I no longer have pain after ABX . The fatigue and cognitive issues are far better , but still " in my face " .
Posted by Buster (Member # 19472) on :
Gastroparesis
Posted by seekhelp (Member # 15067) on :
Incredible head pressure (if really from Lyme). #2 is unbearable fatigue/yawning.
Posted by Razzle (Member # 30398) on :
My top 5 worst symptoms:
1. Messed up gut motility ("bells palsy of the gut")...officially diagnosed as "idiopathic" Dysphagia, Gastroparesis, & Pelvic Dyssynergia. I know for a fact my small bowel is also slow, but no official diagnosis...
2. Fatigue & weakness (improving some with L-Lysine supplements)
3. Immune issues: Immune Deficiency (low T-Cells), Allergies/chemical sensitivities, etc. Genetic Methylation issues also fit in here, but what role Lyme plays with that is unknown (but I know it does play some role)...
4. Brain/cognative issues - sleep problems, memory issues, anxiety, etc. (GABA supplements help some with sleep & anxiety)
5. Pain - random, changes location & intensity frequently, and no pain killers work! And I believe the RSD (severe spreading nerve pain) I had from 1997-2001 was also related to Lyme (the RSD is in remission now, but it tries to return whenever I am unable to exercise)...
Posted by Dekrator48 (Member # 18239) on :
I no longer have fatigue, insomnia and non-restorative sleep due to bioidentical hormones.
Posted by fatherguido (Member # 25266) on :
1) Brain fog.
2) Fatigue and occasional sleeplessness which are correlated.
3) Anxiety/Lyme rage.
4) Numbness/tingling.
Posted by MannaMe (Member # 33330) on :
For my husband : #1 FATIGUE and #2 the unbalanced / tipsy feeling.
Since starting treatment : #3 muscle aches
Posted by koo (Member # 30462) on :
Anxiety, although pretty much gone with treatment, and indifference.
Posted by nefferdun (Member # 20157) on :
It depends which infection is dominant but overall I fear a return the mental disorders - depersonalization from bart and feeling retarded from babesia. Physically, fatigue and dizziness from babesia was terrible.
Right now, it is apprehension and paranoia. I just worry about every little thing, hoping it is not the boggie man ready to pounce on me again.
Posted by skies (Member # 28064) on :
For me, the worst part is all the "head" stuff, other than the extreme fatigue and lack of stamina..yet I cannot sleep without sleep aids to save my life.
I hate the anxiety/irritation and feelings of depersonalization. The brain fog and the spacey/out of it feelings are also very unpleasant. I also have trouble with the whole "rocking boat" feeling...this feeling becomes much worse when I'm over tired or stressed (doesn't take much). Can't wait until that stops someday. So sick of feeling this way.
Posted by ktkdommer (Member # 29020) on :
Many of my issues have cleared up. Photophobia and eye issues are my biggest problems right now. Could change tomorrow. The brain comes and goes.
Posted by outerspace1226 (Member # 34274) on :
1 fatigue 2 chest pain due to stomach/gas pressure 3 pain all over
Posted by marypart (Member # 27012) on :
At the beginning, foot pain in both soles of the feet, and muscle pain in the left calf and thigh. After that resolved, terrible gastroparesis with constipation and heartburn.
I'm left with intermittent heartburn with rib burning and tingling all the way around to the back. I hate that rib burning and tingling.
Posted by bv (Member # 9578) on :
Burning skin and muscle twitches, especially in my lower extremities. Also joint pain. Used to have a tipsy, shaky feeling and floaters in my eyes, but they have disappeared with abx.
Posted by nonna05 (Member # 33557) on :
feeling like I lost who I am..........and that very few care
Posted by MattH (Member # 30846) on :
nonna05,
I completely understand. I have felt like I lost a large percentage of my short term mermory and several IQ points to where I did not really believe who I used to be! Lately I have see some improvement on both fronts. Still a long way to go but the many protocols and routines seem to be paying off.
I was always very competitive and leaned forward in the saddle, well this disease really changed my personality. I had to hide my short term memory lapses at work but I know several noticed. It is frustrating when you know you are more capable than what you can currently demostrate.
BV, I too have noticed that my floaters have decreased.
All the Best, MattH
Posted by Final Equinox (Member # 34533) on :
Definitely the symptom that bothers me the most is the brain issues (fog, memory, speech, cognitive deficits, disturbed sleep, etc.).
Followed closely by the total body joint pain, and fatigue.
After 2 months of oral ABX, I have some improvement in all but the joint pain.
Posted by phyl6648 (Member # 28522) on :
Weird head feelings, Anxiety, Deep bone pain, Fatigue, Unable to exercise .. Ringing in ears, Sinus issues, Vision problems and now Bladder Control.. Not sure these are all lyme related.
Seems after a year or so of treatment nothing is working..
Such doom and gloom and worry, worry, worry...
Posted by hopefull (Member # 29198) on :
I have terrible pain in my neck and knees plus the over all achiness like I constantly have the flu. And fitigue. I hate the fatigue. It makes me feel like I've just wasted another day. Posted by jackie51 (Member # 14233) on :
Head pain, fatigue, loss of clarity/mind...
Posted by Lymedin2010 (Member # 34322) on :
-Head and neck pain/pressures/burning and brain fog.
-Exhaustion and low energy.
-Circulation issues and burning/numbness of hands/feet.
-Night sweats. 2-3 shirt changes a night.
-Tinnitus (wow the worst today!).
Posted by michlyme (Member # 17845) on :
sleeplessness
pain allover
short term and long term memory loss, cognitive issues
Posted by Jennifer70 (Member # 30280) on :
Pain-joint, fibromyalgia burning pain, muscle pain, anxiety and crazy fatigue, also not feeling alive..disconnection from my life, and others.
Posted by LSG Scott (Member # 21624) on :
Fatigue , brain fog, but the worse is the off balance feeling
Posted by Robin123 (Member # 9197) on :
Pain in the upper neck.
Off balance feeling could be caused by C1 vertebra out in the neck. I get mine corrected and then I feel almost normal again.
Posted by WPinVA (Member # 33581) on :
Fatigue, by far. Other symptoms have come and gone, but the fatigue is always there. It's better than it used to be, but it's very much still here.
Not as big of a problem on a day-to-day basis, but my short term memory is definitely not as sharp as it used to be.
Posted by lyme-o (Member # 35115) on :
For my husband it has been his breathing. He hasn't been able to breathe good for months. And his muscle loss has given him such a terrible limp in his left leg. After months on meds, he says he wouldn't feel too bad if not for those 2 things.
Posted by canaanbites (Member # 32852) on :
Irritability and brain fog
Posted by BackinStOlaf (Member # 23725) on :
Breathing problem the entire year from a vocal cord problem most likely caused my nerve dysfunction from the lyme
Posted by triathletelymie (Member # 26456) on :
BRAIN FOG!!! INABILITY TO CONCENTRATE/TOTAL LOSS OF ALL EXECUTIVE FUNCTION WHAT-SO-EVER/LACK OF CONCENTRATION AND UNDERSTANDING/SHORT AND LONG TERM MEMORY LOSS/LACK OF MOTIVATION AND ABILITY TO PRIORITIZE AND MULTO-TASK!
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