LymeNet Flash: WE NEED EVERYONE'S HELP!!

This is topic WE NEED EVERYONE'S HELP!! in forum Medical Questions at LymeNet Flash.

To visit this topic, use this URL:
https://flash.lymenet.org/ubb/ultimatebb.php/topic/1/114085

Posted by Lymetoo (Member # 743) on :

As many of you know, Seeking a Doctor has no one to run it. I simply cannot work there like I have in the past. I have a lot of neck pain due to a bulging disc.

Others have similar problems and can only spend limited amounts of time on it.

I'd like to get your feedback on this ..hence the posting in Medical.

If you would be willing to build and maintain a list for your state, please post here. ( my PM box fills FAST )

I have a name list for all states. However, it is OLD!! I could give you what I have and you could go from there to update it. Delete and add.

I would prefer that you've been a member here for at least 6-12 months .. but perhaps I can't be choosy!! [bonk]

All you would need to do then is reply to those in Seeking that you are able to help.

We are thinking about creating an email address to receive recommendations of LLMDs from members. I'm tired of giving out names of doctors, only to get feedback that this particular dr is NOT a true LLMD and/or NOT a good dr. Let's narrow down the lists!!

[bow]

Suggestions on how best to handle this are welcome!!!

Posted by mom2kids (Member # 31972) on :

If I had access to LLMD lists for different states I could help some or as much as possible I should say. There are times when I am down for the count and don't even get online for days, know what I mean?

I know when I first posted in seeking I got like a 20 page list that was outdated and took me a couple of times to get through the whole thing. Don't get me wrong I very much appreciated the guidance, but it could definately be edited.

The list also included advice on how to approach a LLMD or a doc about appointments and treatment along with some other pointers. This was all good info, but maybe it should be in a thread of it's own.

P.S. Just PM if you think I might qualify for the job.
P.S.S. I hope my "freshness" on another thread about you visiting Plum Island does not disqualify me. [kiss]

Posted by faithful777 (Member # 22872) on :

I can provide a list for VA, MD & DC and try to do that as much as possible.

Posted by Lymetoo (Member # 743) on :

[Big Grin]

heehehee... you're enlisted, mom2kids! Thanks!! [Cool]

Now to get a working list....

Posted by momintexas (Member # 23391) on :

Tutu, I can do Texas, OK, Louisiana.

I already know the only 2 options unless someone new has come along - if there is - let me know.

Posted by Lymetoo (Member # 743) on :

Woohooo! We're on a roll!

Sending faithful a list for comparison.

Thanks, MIT!

Posted by gigimac (Member # 33353) on :

I have all the posts for NC from when I got my references and would be happy to share

Posted by Lymetoo (Member # 743) on :

Thanks, gigimac!

Posted by lyme in Putnam (Member # 11561) on :

Ive been trying to do NY/CT as much as I can when I log on. Welcome back. Feel good.

Posted by fflutterby (Member # 28081) on :

I can do NJ and New York area. I work full time but I will jump in every day!

Posted by Lymetoo (Member # 743) on :

Do either of you need a starting list?

Posted by mom2kids (Member # 31972) on :

I need a list and I need to know if there are guidelines to posting replies in "Seeking"... I only know of 2 LLMD's near me (MA and CT), but I don't mind doing any of the states as long as I get a list.

Posted by fflutterby (Member # 28081) on :

I think I still have mine but it may be outdated, can you send it along ?

Posted by lyme in Putnam (Member # 11561) on :

I just give them the names of who I've seen, which are many. Don't have an official list.

Posted by Razzle (Member # 30398) on :

mom2kids,

Just PM'd you my list for WA...

Posted by Nicole_Denise (Member # 20620) on :

I'm not from the states and I only know one LLMD in Seattle. I do keep an eye out for Canadians, or people from Washington, but I don't know that I'd be much help

Posted by mom2kids (Member # 31972) on :

Thanks Razzle, got the WA list.

I know not ot post any LLMD info online, but are there any rules as to what info can/can't be sent in a PM. I don't want to get in any trouble...

Posted by TF (Member # 14183) on :

If you want to send me the Maryland list, I will tell you if I think names need to be removed or added.

I try to respond to every Maryland request (unless they specify western Md which means they don't want the doc list I give out). I also help those in PA and Del. who aren't far from Maryland. And, I help those in northern Va.

Posted by steve1906 (Member # 16206) on :

Lymetoo, I�ll help out as much as possible. When you�re done compiling a list you can send it to me.

Posted by Rene (Member # 4870) on :

I'm willing to do Kentucky and Indiana, however do not have any list at all. Only know of two, possibly 3 docs. If someone is willing to send a list that is current, I'm in.

Posted by marypart (Member # 27012) on :

Faithful, if you pm me your list for VA,MD and DC, I can send it out, too. I'll just post "List for VA, MD, DC sent" when I've done it. That way we'll know it has been done.

TF, I think I have your list, but if I'm going to be helping out with the DC metro area, please send me any updates you have.

Thanks to all.

Posted by Dogsandcats (Member # 28544) on :

What a great team!

Posted by jackie81 (Member # 27031) on :

Iam from Canada but I am online all the time so if you give me a starting list I will do some research and add/delete whatever is needed. I will do any/all states

thanks

Posted by Lymetoo (Member # 743) on :

steve... thanks!! may take awhile to compile ..

info sent to TF and ready to send to Rene

jackie .. will PM you

Posted by sk8ter (Member # 8671) on :

I and Robin123 can handle Ca....her Northern and me So...

Posted by Lymetoo (Member # 743) on :

thanks! [Smile]

Posted by coffee71 (Member # 17467) on :

Guys you can count on me too, and I am willing to help if you sent me lists for NY,MD,VA and any other state.

Few months ago I offered my help, but I never received any list to share.

Lymetoo I sent you a PM

Posted by Kudzuslipper (Member # 31915) on :

Could a complete list be posted somewhere online with password only access? That way only one document is being updated . And then,a group of volunteers with the password could go in, copy the appropriate states and mail it to the person asking to find a dr.

I would be happy to pitch in too...but can't say i am an authority, as i am just figuring it all out too. But, if there was a lymenet approved list somewhere, I would be happy check into finding a doctor a couple of times a week an to copy and send.

Posted by hopingandpraying (Member # 9256) on :

Doesn't METALLIC BLUE have a complete list? Wasn't he updating it or something? And, btw, how is he doing?

Seems he hasn't been around for a while. I read he was trying new protocols. Does anyone have any information about him? We're all concerned.

Posted by Kerryblue (Member # 4077) on :

DUH, No sleep quite ill. Not quite sure all you want to be done or exactly how. Sorry.
Florida gal,Huggggssss, to all in need,Kerry

Posted by Lymetoo (Member # 743) on :

I don't know, kudzu. Interesting idea!

hopingnpraying.. I'm not a fan of a list with 30-40% non-LLMD's on it. Just my bias.

no worries, kerry! [Smile]

Posted by hopingandpraying (Member # 9256) on :

Thanks, Tutu. Was not aware the list had so many non-LLMDs on it!

Posted by Lymetoo (Member # 743) on :

yes, many complaints

COFFEEEEE......your mailbox is full!!!!