For those who have been cured WITHOUT IV meds, did you have neuro lyme or more muscular/skeletal lyme?
can someone with neuro lyme be cured without IV?
Posted by seekhelp (Member # 15067) on :
She had white spots on a MRI if I recall correctly. Definitely was neuro. She said bad muscle weakness, facial drooping, and much more.
Posted by BackinStOlaf (Member # 23725) on :
ok thanks...my only symptoms of Neuro lyme are tingling and nerve problems and some light brain fogginess sometimes.
I don't want to have to do IV. I'm scared and I can't afford it.
I've done 7 months on Bicillin and just finished it because I can't afford it anymore.
Posted by Beth22 (Member # 30232) on :
there are several people here who are well now without iv abx. i don't think it is a must, from all i have read. i had neuro involvement with bell's palsy, brain fog, though a normal mri, but I was diagnosed within 6 months so i know that made a difference.
Posted by jackie51 (Member # 14233) on :
I had both (neuro and joints and everything else that comes with it).
I've only been on oral meds. Well, one time I did IV, when I was in the ER from taking doxy on an empty stomach. They thought I had diverticulitis and gave me some ABX IV overnight and then sent me home with a 10 day supply. One was flagyl, I don't remember the other one.
But, for lyme, babs, bart, only orals. I'm not done yet so I don't think I'm considered a "cure", but I'm very close.
My LLMD did say that for children who have water in the knee, i.e. very swollen joints, if it doesn't resolve in a few months, then IV is the way to go.
I have a friend who saw the bite, got on IV, was on IV for 6 months and is now completely well. Treatment was aggressive and successful. Sure beats the years I've been treating.
I don't see any Babs treatment in your signature. Have you treated for this?
Posted by BackinStOlaf (Member # 23725) on :
Babs Treatment: I did some months of Mepron/Biaxin/Artemesia
Doc not sure if I have babesia so we did a test run with meds and no reaction whatsoever.
Posted by lymeinhell (Member # 4622) on :
I never did IV, and I had SIGNIFICANT neuro issues and excruciatingly painful musculor/skeletal issues.
I have my brain and life back, have been off abx for 7 years now, and live a very normal life, but still need to take flexeril at bedtime for the muscle issues. I think that part is permanent, as I went untreated for more than a decade.
So I would never say I was 'cured' - I much prefer the term 'Peaceful Coexistence'.
Posted by Lala (Member # 29864) on :
How long had you been treating, Julie?
Posted by jwall (Member # 22999) on :
Julie, did you ever take anything for the excruciating pain? I would call what I have now excruciating pain - really more nerve though. I can't stand the antiseizure meds as they take too much of my personality away. Can't figure out what to do with this awful pain I have.
Posted by whatayear (Member # 15833) on :
i had bad neuro lyme and a heart condition called IST i have been in remission for 4 years without IV or abx. I used deseret biological, chisolm labs transfer factor, recht regulat (biopure usa) for thick blood, green vibrance, lypo sepheric vit C , intramax, excercise, organic diet, lymphatic drainage etc two best things i did was deseret bio bartonella series therapy and chisolm labs lyme and co specific transfer factors
Posted by Jason21 (Member # 16393) on :
I had neuro and muscular LD as well as bart.
I was "cured" (fingers crossed) without IV abx. 18 months of Doxy, biaxin, zith, and flagyl got me to about 80%.
6 more months of tindamax and cipro got me to 100%. I had a relapse when I got a bad cold and sinus infection last spring and took a z-pak. I caught the symptoms early this time, and 3 months of tindamax and cipro "cured" me this time.