Do any of you folks know a Lyme doc that treats PANDAS?
Pediatric Auto-Immune Neurological Disorder Acquired by Strep?
Posted by Lymetoo (Member # 743) on :
Treating Lyme should work. I will PM you.
Posted by Garden (Member # 31671) on :
Lymetutu, could you please PM me the same info?
Thank you!
Posted by momintexas (Member # 23391) on :
I know of a couple that do.
Lyme and Mycoplasma can cause the same PANDAS (PANS) types of symptoms.
They are now saying that all 3 infections should be checked for when a child shows PANDAS (PANS - some people know it as PITAND)symptoms.
They recently had a conference here about it.
But, sadly, all 3 can cause the symptoms. Please check for all 3.
Posted by Keebler (Member # 12673) on :
- Most good ILADS-educated LLMDs and LL NDs are well versed in far more than just lyme. [However a PANDAS doctor may not be versed in lyme or other tick-borne infections - or mycoplasma.)
If you are asking for a child, a pediatric LLMD might be best. But, despite the name, I know PANDAS affects adults, too.
"Controversial and still highly contentious concepts of PANDAS (Paediatric Autoimmune Neuropsychiatric Disorders Associated with
Streptococci) and PITAND (Paediatric Infection-triggered Autoimmune Neuropsychiatric Disorders) were introduced by A. J. Allen and Swedo et al. in
the late nineties. The premise brought forward by these researchers, that certain mental illnesses
(e.g. Obsessive-compulsive disorder, tic disorders including certain cases of Tourette's syndrome) can be caused by an infection with a common
infectious agent (designated as "PANDAS": Group A beta-hemolytic Streptococcus - GABHS) and (possibly) by other infectious agents (designated as "PITAND": certain viruses, Mycoplasma
pneumonie, etc.), severely challenges a century of Freudian "devotion" of the medical community. In a simple language, theories of Allen and Swedo are bringing the mental illness back to its biological
roots and essentially define it as a physical illness with mental symptoms. Recent scientific evidences are widening the list of possible mental
illnesses that could be included into PANDAS and PITAND group. Certain cases of Anorexia nervosa (see the footnote below), psychotic symptoms following the Lyme disease and at least some cases
of Autistic Spectrum Disorders (PDD NOS) have all been linked to an infectious agent and their pathophysiology appears compatible with PANDAS and PITAND syndromes."
Posted by merrygirl (Member # 12041) on :
my son has pandas....
there are some docs in ct.
pm me
Posted by pab (Member # 904) on :
Lymetoo,
Can you PM the info too?
Posted by merrygirl (Member # 12041) on :
There is also a study at the nih for newer cases of pandas. Gpogle it or pm me. Its a great opportunity if your child qualify.