This is topic Mayo Clinic for Chronic Lyme - Yes or No? in forum Medical Questions at LymeNet Flash.


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Posted by InNeedOfSeriousHope (Member # 35924) on :
 
I am wondering what the Mayo Clinic's reputation for Chronic Lyme Disease is. From what I have read it doesn't seem to be that good. But I have seen some things suggesting that might be changing. Has anyone had any success there?
 
Posted by Razzle (Member # 30398) on :
 
Personal experience at Mayo Rochester was horrible (2004)...and this was before I knew I had Lyme...
 
Posted by kidsgotlyme (Member # 23691) on :
 
I don't think that you will get even ONE person on this forum that would recommend going there.

They do not recognize lyme and co.
 
Posted by kimmie (Member # 25547) on :
 
They run their own lab test at Mayo, and surprisingly....I was 100% negative and clear of lyme....only to return home with positive lyme test from quest, lab corp and spectrum at the same time. Scary huh?

They do not believe in chronic lyme anyways. I was told I had post viral syndrome and they see it "ALL THE TIME"....
 
Posted by Keebler (Member # 12673) on :
 
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No. No. No. No. No.

Just to be clear: Absolutely NOT.
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Posted by Keebler (Member # 12673) on :
 
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Mayo has sent lyme patients home to suffering and, at times, their deaths. Some of those terrible encounters are in past threads.
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http://flash.lymenet.org/scripts/ultimatebb.cgi/ubb/search/search_forum/1

LymeNet Archives, to search "Mayo" in past threads in all forums.

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http://www.mnlyme.com/

MINNESOTA LYME ASSOCIATION

You would sure want to hear what THEY have to say about Mayo.
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Posted by randibear (Member # 11290) on :
 
oh geez, no. might as well go to an infec doc and just ruin your life.
 
Posted by Keebler (Member # 12673) on :
 
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http://www.canlyme.com/gazette_martz_2006.html

Chronic Lyme disease debate: Common ailment or false hope?

- by Bill Radford � The Gazette - February 19, 2006

Excerpts:

Like the flu, it hit hard and fast.

But Dr. David Martz knew whatever he had was worse than the flu.

. . .

Lyme disease was considered, but blood samples sent to the Mayo Clinic were negative for Borrelia burgdorferi, . . .


- full article at link above.
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Mayo was wrong. Very wrong.

Good think this doctor knew enough to find a real lyme expert elsewhere where he was determined to, indeed, have lyme (and babesia).

He is one of the patients with a success story featured in the documentary �Under Our Skin� � a must see DVD. Check their own site, NetFlix and Hulu.
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Posted by Abxnomore (Member # 18936) on :
 
Absolutely NO.

Find a Lyme literate physician by placing a post in "Seeking a Doctor" or go to one of the referral sites.

http://flash.lymenet.org/ubb/ultimatebb.php/topic/2/13239
 
Posted by Keebler (Member # 12673) on :
 
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http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=015508;p=0

Diagnosing Lyme Disease

Includes a symptom check-list; articles; consideration of differential diagnoses.

---------------------

http://www.canlyme.com/seronegreasons.html

27 REASONS WHY A SERONEGATIVE TEST RESULT MIGHT OCCUR

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http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=013239;p=0

(What ILADS is) . . . WHY you need an ILADS-educated, Lyme Literate Doctor - starting with assessment / evaluation.

===================================

Detail about a new Borrelia Culture Test here:

http://betterhealthguy.com/joomla/lyme-disease/testing

Testing options - See #15

=======================================

Specifics on the new test:

http://betterhealthguy.com/joomla/blog/248-new-borrelia-culture-test-available

and

http://www.researchednutritionals.com/information.cfm?ID=255
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Posted by lightfoot (Member # 2536) on :
 
Oh, No!!!!
 
Posted by Tincup (Member # 5829) on :
 
HOLD THE MAYO!!!! HOLD THE MAYO!!!! HOLD THE MAYO!!!! HOLD THE MAYO!!!! HOLD THE MAYO!!!! HOLD THE MAYO!!!! HOLD THE MAYO!!!! HOLD THE MAYO!!!!

Run, don't walk to the nearest exit!

Run, run, save yourself! Don't look back! HOLD THE MAYO!!!!

[lol]

I've seen hundreds of thousands of posts over the years and only one patient that went to Hold the Mayo Clinic had a positive Lyme test. ONE!

Still didn't get treated even with a positive test, but that one person actually did manage to break the Hold the Mayo record of NONE, and get that ONE positive test!

Run run run run... far far far... go go go!

Save yourself!!!! HOLD THE MAYO!!!!

[Big Grin]
 
Posted by Tincup (Member # 5829) on :
 
And the worst thing is...

They know better! The MN clinic has messed with the ducks in that near-by town and it is SHAMEFUL what they've done.

You'd think if they are so terribly wrong they would just crawl in a hole and let it be... but no! They are pro-active against Lyme.

What BIG toads! *@*&#@#&*((*^$@@

HOLD THE MAYO!!!!

HOLD THE MAYO!!!!

HOLD THE MAYO!!!!

HOLD THE MAYO!!!!

Need I say more?

[Big Grin]
 
Posted by Robin123 (Member # 9197) on :
 
It looks like Ms TC MUSTARD up everything she had in her to KETCHUP with the urgent need of this post not to find itself in a PICKLE,

and her answer along with everyone else's is worth their SALT - you gotta RELISH strong responses like this one...
 
Posted by InNeedOfSeriousHope (Member # 35924) on :
 
I guess that answers that then.
 
Posted by Keebler (Member # 12673) on :
 
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http://www.mnlyme.com/

MINNESOTA LYME ASSOCIATION

Meetings are held the 2nd Tues of each month

First Lutheran Church of White Bear Lake
4000 Linden Street
White Bear Lake, MN

To find the closest groups to you, and LLMDs, Email them at:

[email protected]

---------------------------------

www.lymedisease.org

Lyme Disease.org

A GREAT site to learn more. Their online support for your state:

http://health.groups.yahoo.com/group/MINNESOTALyme
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