Frylabs announced some months ago that they were presenting research results on a conference recently.
Has anybody heard anything/found some summary on the web, in particular about the protomyxoa?
Hansemand
Posted by Dekrator48 (Member # 18239) on :
This info is not from Fry Labs, but it is a summary from BetterHealthGuy.com that contains info from a conference where info about Protomyxozoa was included.
Interesting, though I dont think it contains updated info from the conference Dr F took part in .I may be wrong?
Posted by hansemand (Member # 35305) on :
up
Posted by manybites (Member # 33750) on :
This bug is real and can make you suffer a great deal.I had all the symtoms even halucinations.
Posted by jarjar (Member # 8847) on :
An important thing that I learned from all this is to avoid wheat as the bug thrives on the arginine in it. Also many nuts such as peanuts,Brazil nuts almonds are high in arginine. Last point from Fry made below.
Some of the key points from the the radio interview: �FL1953 is a new, unique protozoan organism that is found in people with CFS, Fibromyalgia, Multiple Sclerosis, ALS, and Rheumatoid Arthritis. �People with Morgellon's also have evidence of the organism. In Morgellon's, Dr. Fry talked about this new protozoan possibly suppressing the immune system such that a fungal/mycelial condition then develops leading to the symptoms of Morgellons. �Dr. Fry discussed the use of Tetracyclines, Zithromax, Plaquenil and other options, but more interesting were his other recommendations. One of the future projects his lab is working on is to complete sensitivity testing of various therapies for this new protozoan. �He shared that diet is very important. The protozoan loves lipids (fats) and that lipid restriction via low-fat diets has been a very powerful tool. Lipids and fatty acids also play a role in the formation of biofilms which seem to collapse with lipid restriction. �He discussed the benefits of a whole food, plant-based diet full of bioflavanoids; which themselves act as an antibiotic. �He suggested that many people with chronic illness may struggle with wheat not due to the gluten content but due to the high arginine which the FL1953 protozoan thrives on
Posted by hansemand (Member # 35305) on :
Thank you very much jarjar. I heard/read that interview.
the �lab announced the conference presentation som months ago on its website. I believe there is newer info from this conference.
Posted by Dekrator48 (Member # 18239) on :
Here is a link with a list of foods with a high arginine content:
Love it...LOL
Posted by hansemand (Member # 35305) on :
latest link is about bartonella. where do you see that "two countries has reported the bug"? Still nothing about the protomyxoa, unfortunately.
Posted by Pinelady (Member # 18524) on :
I sorta collect research hansemand. I will try to look it up for you later today. If I ferget remind me.
Posted by hansemand (Member # 35305) on :
thanks pinelady. dont think you can find anything.Spent some time myself.But would be grateful
Posted by hansemand (Member # 35305) on :
Pinelady Dont spend your time looking it up. After hours of search i believe there is nothing yet.
Posted by flyingtreefort (Member # 30377) on :
Sorta related question, why doesn't the Fry website seem to have any reference to FL 1953, Protomyxzoa or list testing? Am I missing it?
Posted by seibertneurolyme (Member # 6416) on :
I think this is the first I have read about a connection to arginine and the FL1953 bug.
Hubby has never been tested for that parasite.
But he definitely has benefited greatly from high dose arginine as suggested by Buhner for treatment of bartonella and maybe for babesia as well. The arginine helps greatly with brain swelling/pressure headaches and also nausea and other neuro symptoms.
Anyone supplementing with arginine should be aware of their herpes virus status as supposedly arginine feeds that virus.
Hubby is off all meds for a month (half way there now) and then plans to retest with several labs including the F lab -- and he is continuing his arginine. So if he has the FL1953 bug then he should definitely get a positive test result if the theory is correct.
Bea Seibert
Posted by hadlyme (Member # 6364) on :
You might not be seeing new info for awhile but it will be shared when more info is gathered. I have seen new papers that are for medical personal only from the lab. They are not on the web and can not be shared.
We have always been told low arginine in our treatment. And also easy on the nightshades along with low fat.
In due time more will be shared. There is more being studied than just this FL1953. Many autoimmune areas and biofilm things.
Posted by Cass A (Member # 11134) on :
Dear Friends,
I am particularly interested in the results of all tests related to this bug. Last I knew, Dr. F was saying that there was no way to get rid of it completely.
Some things that one can do to help back off the symptoms are
1) take systemic enzymes that clear stuff out of your blood vessels (taken 30 minutes before eating, or your body just uses the enzymes for digestion)
2) Rechts-Regulat (available from BioPure) definitely thins out the blood and makes it carry more oxygen. GiGi would tell you to test for it before using it. It worked great for me!
Best,
Cass A
Posted by hadlyme (Member # 6364) on :
Justt to clarify. Those things you state Cass, are not things that Dr F recommends.
What works the best that Dr F does say is the low fat diet. We can feel like remission with eating that way. That and antibiotics, antimalarias, and antifungals, depending on ones' body.
Posted by Dekrator48 (Member # 18239) on :
flyingtreefort,
The only place that I see a reference to Protomyxzoa on the Fry lab website is on the lab requisition form:
I believe it is fair to conclude that there is nothing out there from the latest presentation.I am sure sombody would have forund it by now.
I have the papers referrred to above, but I dont believe it sheds much light to the questions raised here etc.
In another post I was critical about the policy of the lab not to let other scientists have a chance at working on the completely new bug (F. says it is different from everything seen so far).
I run the risk of being critical again.If what they say about it in interviews is true, it affects milllion and millions of people.�Hope something will be out there soon.
Posted by flyingtreefort (Member # 30377) on :
All, Here's an interview I found on an ALS forum w Dr. F that covers a fair amount.
There's a link in the thread where als folks rip on Dr. F
I understand a small lab needing to protect their intellectual property but it sure is frustrating when we guinea pigs can't get information.
I've been put on Botanifuge with limited effect, then Tindamax with limited effect and now it's to be Ivermectin. This bug is supposed to be my main problem these days
You'll see information when its ready to be shared. If you want more information then be a patient of said Dr. You wouldn't be able to understand the medical scientific info at this point anyway. There are Many different aspects these studies not just FL1953. Its not that anyone is purposely not sharing people. Its called a process and takes a long time. If you search in here you will find info on what HAS been shared.
Posted by hadlyme (Member # 6364) on :
Here's an idea. Why not call the lab and ask them questions. And ck out their twitter page and you can see different areas that they are studying.
We've told you many times to call the lab for info.
Posted by amk33 (Member # 13206) on :
Does anyone know why this parasite does not show up when blood is tested by labs, such as Quest? I recently got numerous tests ordered by a rheumy. In the results, it says, "no bacteria seen". If they were looking for bacteria, wouldn't this parasite be obvious? (I've tested positive by Fry labs, and received the picture of it) Is it smaller than bacteria? I'm trying to understand why it is not showing up at some of the other labs.
Posted by hadlyme (Member # 6364) on :
Quest and other normal labs do not do the same type of tests as Igenex and Fry labs. Different type of smears. Search in here under lab tests.
Posted by amk33 (Member # 13206) on :