Do any of you wise lymies have resources regarding Lyme in children?
I tested my son about 9 months ago (IGeneX) and he was clear, however I understand that it isnt totally accurate. At that time he had a terrible cough, sore throat, fatigue, and a suspicious band like rash on his ankle. I had been diagnosed with lime 2 months prior to becoming tuned into his symptoms.
He recently (3-4 wks ago) had a Varicella vaccine because the school really pinned me into the corner on that one. I regret it.
Now, he is exhibiting some abnormal behavior for him; very disengaged at times, extreme fatigue, unpredictable irritability, difficult to get his attention, wetting his bed, wetting his pants, seems to be sensitive to sound, potentially sensitive to light.
I can't ascertain whether much of it is just normal development for a 5yo boy or if there is something more behind it. I'm also very sensitive to many of those behaviors because I see them in myself in response to Lyme (thankfully not the bedwetting part).
I'll certainly get him another test and take him into a LLMD but I'm hoping for some comments, resources, or info on Lyme in children so I can brush up.
It is under "Quick Links to Popular Topics" which is a post that stays at the top of the Medical Questions forum. So, you can always find it there.
Posted by Tincup (Member # 5829) on :
So sorry your son is having these problems, and you too.
At that time he had a terrible cough, sore throat, fatigue, and a suspicious band like rash on his ankle.
Now, he is exhibiting some abnormal behavior for him; very disengaged at times, extreme fatigue,
unpredictable irritability, difficult to get his attention, wetting his bed, wetting his pants, seems to be sensitive to sound, potentially sensitive to light.
Oh, that poor kid. No, that's not normal development for a five year old. It sounds like he probably feels like shi#.
Sensitivity to sound and light may be due to low magnesium, which also causes many other problems. Low magnesium is a problem with Lyme Disease, as the Lyme bacteria live in our cells and use up the magnesium for themselves.
You can give him foods that are high in magnesium and supplement the mineral orally or through the skin (topical).
Foods rich in magnesium include: Almonds, almond butter Dark chocolate Beans, kidney beans, baked beans, bean soup, bean burritoes.
Posted by YinYang (Member # 36358) on :
Thanks everyone for your input. I guess I've kind of been in denial and irrationality helped support the denial by the negative test. I don't even want this for myself, it's complicated enough, I certainly don't want this for my sweet boy. He is supposed to be happy and healthy and it is my job to be sure of that. He has his whole life ahead of him.
This sucks. I know that, unfortunately, so many people can relate to how I'm feeling.
Thinking about the amount of treatment I'm undergoing, I can't possibly think of having him go through it all. Sigh. Does anyone know what the treatment is for Lyme and Babesia (i have Babesia, so ims starting with that co.) in children?
Time to muster up some courage, make an appointment and tackle this. Crap.
Thanks for providing me a sounding board. This site has been so helpful for me already, for some reason I feel like the emotional support that can be found here will be more necessary for me in helping my son.
Posted by YinYang (Member # 36358) on :
Thanks everyone for your input. I guess I've kind of been in denial and irrationality helped support the denial by the negative test. I don't even want this for myself, it's complicated enough, I certainly don't want this for my sweet boy. He is supposed to be happy and healthy and it is my job to be sure of that. He has his whole life ahead of him.
This sucks. I know that, unfortunately, so many people can relate to how I'm feeling.
Thinking about the amount of treatment I'm undergoing, I can't possibly think of having him go through it all. Sigh. Does anyone know what the treatment is for Lyme and Babesia (i have Babesia, so ims starting with that co.) in children?
Time to muster up some courage, make an appointment and tackle this. Crap.
Thanks for providing me a sounding board. This site has been so helpful for me already, for some reason I feel like the emotional support that can be found here will be more necessary for me in helping my son.
Posted by surprise (Member # 34987) on :
Hang in there- it is overwhelming at first.
My almost 7 yr. old has Lyme and co. I passed to her- I tested shortly after her- we are in treatment together. Our treatments are not the exact same.
I also have a 5 year old who is healthy- no Lyme. They are night and day, these 2 girls.
The 'good' news is you know- because letting it go in someone who is symptomatic is hugely serious.
It will be okay. Step at a time. Find a good Dr. Daughter and I go to appointments together- one after the other.
Posted by T.Maria (Member # 36396) on :
Facing the issues is the best and only way to win. The problem with lyme is the testing - if the tests were accurate there wouldn't be doubt or delayed treatment.
Everything about Lyme is quite emotionally draining - the symptoms, testing and the views.
We have to take this experience and learn what we can.
Posted by YinYang (Member # 36358) on :
quote: We have to take this experience and learn what we can.
So true. It seems so many people have learned the art of patience. I'm having difficulty with that one.
Posted by YinYang (Member # 36358) on :
Thanks for the concern manybites. Yin Yang isn't my real name, if that is what you thought.
If you see my real name in my profile or something, please let me know so I can change it. I don't see it there but I could totally be missing something.
Posted by manybites (Member # 33750) on :
NO I only assumed that you logged in with Yin Yang.
![[group hug]](graemlins/grouphug.gif)