I'm wondering if anyone here has taken part in the 2-day extensive neurocognitive testing offered by C University in New York?
It's extremely expensive, but they claim to be able to achieve a very specific diagnosis.
I'm planning to see a LLMD in a couple of months, but I worry...what if my symptoms are caused by something other than Lyme (or, perhaps a problem that was caused by Lyme, such as adrenal or thyroid problems) and that throwing tons of abx at it, thereby taxing the rest of my system, isn't the right approach.
Thanks.
Posted by T.Maria (Member # 36396) on :
Not sure about that test. But I sometimes worry about the same thing - what if it is something else? However, I have had a lot of bloodwork to rule out thyroid, adrenal and other med issues.
Have you had your adrenals or thyroid tested?
Posted by slowli (Member # 36697) on :
I know my doc did thyroid, but not adrenal. Looking at those symptoms, I wonder...
BTW, I have an appointment in May with Dr. M! Thanks for the referral, she seems great. Posted by steve1906 (Member # 16206) on :
Dr. M asks fora series of bloodwork before you even see her. She checks your electrolyte levels which I believe would show an abnormality if you had Addison's...leading to more blood work.
You are not alone, I think I have gone through researching every disease that can mimic lyme including Addison's.
But then, I take a look at my symptoms sheet and while some of the symptoms are consistent, there are others that are not.
Dr. M will give you an honest evaluation.
Posted by T.Maria (Member # 36396) on :
Great article Steve. My ND put me on an adrenal support.
Posted by tiffagoo (Member # 23750) on :
ALOT of people with Lyme disease have thyroid issues. I have Hashimotos Thyroid Disease, and I've met alot of other Lyme patienst who have the same thing.
Plus, my LLMD said that alot of his patients of some sort of thyroid issue.
Posted by Keebler (Member # 12673) on :
- slowli,
I would absolutely, positively NOT do that neurocognitive testing.
It's extremely expensive and can be nearly useless, even damaging to your medical file.
You say they claim to be able to make a specific diagnosis with neurocognitive testing. They only consider psychiatric disorders, however.
When I did this, I thought they could tell me why my brain did not work right regarding memory, attention span, etc. They simple slapped "crazy" on me and said they'd never before seen such severe symptoms and I needed psych drugs (which nearly killed me).
I did not know "neurocognitive" is really all about psychiatrist stuff.
That was a few years before I finally found out lyme was the cause of so much.
Now, AFTER you see the LLMD and get a good diagnosis and suggested actions -- THEN you can ask about neurocognitive issues and if further testing might be of value. -
Posted by Keebler (Member # 12673) on :
- These links explain a great many things but they are neither about JUST diagnosis but a better understanding of how lyme (& cos) affect every cell of a body.
These articles / sites are nearly required reading to come to even a basic understanding of how lyme changes everything.
Once I read these, so much of what I'd be going through for years made sense. And that is a gift to my spirit.
![[Smile]](smile.gif)