I started back at 3 min on Lyme, Bart, Babs 432, 570, & 832 respectively. I seemed to do ok for the first 4-5 days, although I did have some Herxing, chills, but it was all tolerable. At day 5 or 6, I re-ran the same numbers, again at 3 min. each.
Again, I herxed similarly to the first time, but by day 4, I began to get Encephalopathy type symptoms:
For me, this would be off the wall Anxiety that Xanax doesn't touch, pathetic 2 y.o. crying, my right eyelid and sac below the eye swells, and I feel like I want to die. I have subtle personality changes and I can almost feel the swelling in the brain if this is possible.
Detoxing wise, I do a ton of Coffee Enemas, lots of water, epsom salt baths, fish oil, bromalain, baking soda, etc. Binders don't seem to do anything. Cholestyramine makes me worse worse and my fir sauna seems to exacerbate symptoms too.
I know I have the "Dreaded" detox gene as many also have.
Would love to hear if anyone has this problem and what to do about it. It's not consistent with Life when I get like this and the Herxing can go on for days and days.
Whats weird is that it takes about 4 days after rifing before the full out Encephalopathy sets in, and this I do not understand.
Thanks in advance, anyone/everyone...
Gary
Posted by canefan17 (Member # 22149) on :
432 caused this for me - usually 4 days after running it.
Keep the bowels moving Take antioxidants Fish Oils Vit C
Posted by ditcher (Member # 36863) on :
If you are using benzo's regularly and have developed a physical dependence you have to be careful when detoxing and using binders.
Your pulling the benzo's out with the toxins and probably putting yourself into withdrawal and aggravating your herx.
Your a nurse what do they give people that OD in the ER, activated charcoal...
Think about it...
Posted by lymetwister (Member # 19590) on :
I'm not taking binders b/c they don't work for me for one. I.e., they don't reduce my brain herxing.
But you are correct that they could put one into w/d
Posted by lyme987 (Member # 22148) on :
If you have been rifing a while, most people experience their worst herx on day 4 or 5. Very normal
I see a naturopath who uses NMT therapy to help clear the toxins out after my rife sessions, has made a HUGE difference
Posted by Lymetoo (Member # 743) on :
quote:Originally posted by lyme987: If you have been rifing a while, most people experience their worst herx on day 4 or 5. Very normal.
- And a rife herx can take 2 wks to show up... so don't overdo the rifing. I always rifed ONCE every two weeks for just that reason.
Do you have B.Rosner's book on Lyme and Rife Machines?
For lyme frequencies: no more often than every 12-14 days. To do more is dangerous and can cause kidney failure.
Only when someone is relatively certain they are approaching a steady remission might that be done more often for lyme frequencies. One should be very steady before increasing.
Other frequencies can be more often but it seems that this was way too much all at once and too often. -
Posted by Keebler (Member # 12673) on :
- If "Cholestyramine makes [you] worse" why take it?
I could not tolerate it at all. Many simply can't. -
Posted by wilson2112 (Member # 34625) on :
Gary,
You sound like you have active lyme and babesia and what you call a herx are the Relapsing/Remitting symptoms.
I am sorry but rife is quackery.
**edited rude comment**
[ 04-17-2012, 07:48 PM: Message edited by: Lymetoo ]
Posted by Keebler (Member # 12673) on :
- I do not think rife is "quackery" at all. But it's very important to take it slow and steady.
Rife can absolutely be instrumental when used appropriately, along with other modalities, in balance.
It may be best to be guided by a LL ND who has a broad knowledge and experience base with rife, etc.
Even so, with the best treatment plan, tick-borne infections create a very rocky road. No garden party. No walk in the park or day at the beach.
But - I do hope you can find the expert to best guide you. I hope you can find that steady pace where the introduction of a new item or step won't toss you off all the way off the track.
Sometimes, this is so awful that we try to run away from it by working harder, doing all we can, come hell or high water.
That approach seldom works for me. And I've tried it plenty before there was no other option but to slow it down. Changing my expectations was emotional wrenching. I felt a failure for not pushing as hard as possible, even if it nearly killed me.
Putting all that in perspective, though, can be life changing. With "lyme complex" we simply have to approach things differently.
In addition to your LLMD (who I know can't advise on rife) . . . as an adjunct, can you find a good LL ND who is well versed with rife and other key elements? -
Posted by wilson2112 (Member # 34625) on :
I think this article makes it perfectly clear what rife CAN'T do:
Here is Keebler discussing her rife machine back in January:
"posted 01-26-2012 12:52 AM - Yes, it is safe, as long as instructions are followed and support methods are in place.
Yes, I think it's an excellent idea, especially for those who have trouble with pharmaceuticals.
I have an EMEM-5 but have not yet been able to learn all I need to get started with it. It's the heavy metal detox stuff that has me stumped. So very hard to figure out, or afford.
I have hyperacusis, so the fan on my EMEM 5 is so very loud to my ears that it's torture to use (but the maker said he'd never heard anyone else have that problem and he's build many over the years).
My EMEM 5 requires dialing the different code number for each infection. A machine that "sweeps" would be far easier but also more expensive.
The least expensive is an EMEM-5 (about $450. and upward). I hear that has gotten the job done for many folks. It just takes a bit more brain power.
Still, hope that my brain will kick in soon so I can get to the rife is my only hope for any kind of a life. That much is very clear to me. So, I'd better just stop trying to wake my brain up at the computer and make a series of dates with my Rife.
Rosner's book details the choices.
The discussion thread below is very helpful, too.
Herxheimer support & Heavy metal detox methods still need to be employed with rife. Probiotics, too, and other key nutritional supports. "
I WAS NOT BEING RUDE I WAS STATING FACTS SOMETHING THIS SITE IGNORES.
Posted by GiGi (Member # 259) on :
Make certain that you do not have the Smart Meters in your house or your neighborhood. Also check your exposure to EMF/RF from your location. www.antennasearch.com
This is becoming a problem anywhere in the world today, no matter where you live.
EMF/RF symptoms are identical to any of the symptoms that we think of as Lyme etc. symptoms.
Check this out. Some microwave emitters are hidden in neighborhoods, churches, roof tiles, etc. It is a nightmare once you start looking into it.
Take care.
Posted by jarjar (Member # 8847) on :
Sometimes when I rife my bart. will run away to the part that is furtherest away from my touchpads. Just yesterday I had to go after my left hand as it ran there for safety.
I have had it run up into my brain before and in return I will put a pad on my forehead and one on my back neck. One pad positve and the other negative. Then I fire away and the bart goes "Oh crap" he found us! Not sure if you have touch pads like the gb 4000 but if you can focus on the brain it should clear up.
Posted by lymielauren28 (Member # 13742) on :
Wilson, just that fact that you linked to Lymenet Europe destroys your credibility in my humble opinion.
Also, highjacking another's thread - not cool. Sounds like something cave would do:)
Posted by lymielauren28 (Member # 13742) on :
That being said - I actually agree with the relapsing/remitting comment you made. Bart reproduces every 72 hours or so - meaning you need to rife for it at least that often. Symptoms return fast....
Posted by Dogsandcats (Member # 28544) on :
Even though someone may disagree with someone's point of view, it is unnecessary to post anything that is even remotely unkind.
If there is another place that tolerates that, then that might be a better place to express those type of comments.
This site is a support forum. If someone has made a technical error it can be reported in a respectful manner.
This post is not to start a debate. Just reiterating the way this forum operates.
Posted by jdp710 (Member # 34017) on :
Mannitol will reduce the brain swelling and is what's commonly used.
You can do a google search for more info.
It's also what I use when I get in trouble but I notice it takes about 12 hours for it to start lowering symptoms.