i had an igenex originally back in about 2008 by a doctor that i really really didn't like. near dallas...
i'm not sure he was even competent. i'd like to have it redone and read by this new doc i'm going to in april.
do you think that's a good idea? i got treated for two years but lost a good doc and haven't been treated for three years now.
it would give him a good base to work from and i would trust his interpretation.
i mean i'd like to know.
it was 400 bucks way back when but i don't know what it costs now. i know my insurance won't pay for that.
Posted by Dogsandcats (Member # 28544) on :
I had mine done again about 3 years later. It didn't change much and the doc wasn't too excited about it.
Where was the original test done - which lab?
Posted by Lymetoo (Member # 743) on :
There is no need for a second test .. doesn't matter which lab.
The Western Blot costs around $200.
Posted by poppy (Member # 5355) on :
If you are off antibiotics, why not do the new culture test instead? More expensive, but might be better.
Posted by WhitneyS (Member # 25666) on :
what would be your purpose for retesting?
Unless you think you don't have lyme, it wouldn't help guide treatment.
Posted by Keebler (Member # 12673) on :
- Once diagnosed, there is no need for a second test.
If the new doctor you plan to see in April is really ILADS-educated and fully LLMD, let him guide you.
Take the Igenex test copy for him, of course, with all the paperwork completed and just let him SEE you, TALK to you, WATCH how you move, function, etc.
Sounds like you did not have complete treatment for those two years after being diagnosed - whatever the case, though, the detail here should help.
(What ILADS is) . . . WHY you need an ILADS-educated, Lyme Literate Doctor - starting with assessment / evaluation. -
Posted by kim812 (Member # 17644) on :
I have had 3 Igenex tests done and they all were basically the same...lots of IND and 41+++
Posted by ralphi (Member # 33834) on :
My doc treats by symptoms and told me to save my money for medicine.
If it's worth $200+ to you, then get the test. But you may have a false neg. even with Igenex.
Posted by aperture (Member # 34822) on :
My LLMD just repeated the Western blot. They are trying to get a CDC positive in case I ever need IV, so insurance would pay. I think if this is still negative, they will do an antibiotic challenged Urine PCR for the same reason.
Posted by randibear (Member # 11290) on :
my test was done in 2005. the doctor was uh, not very good. he never explained it but here's what it says.
IGG western blot 23-25 -- IND 31 - IND 39 + 41 +
IGM western blot - 31 +
i assume it's positive right?
Posted by canaanbites (Member # 32852) on :
I personally would consider that positive, based on all that I have read over the last four years.
I agree with taking those results to your new LLMD and let him/her go from there.
Posted by manybites (Member # 33750) on :
You have headaches and JAW TMJ pain.That alone is clear Lyme.I have had it before it was activated from head to toe.
Why do you want to do it again ? You have Lyme and you have activated lyme in your head area for sure right now with what I recall from your last posts .
what is the purpose of doing it?If bartonella is in play ( because your feet hurt) your lyme stays activated as Bartonella is opening the doors of lyme to continue and reproduce and spread.
I have been exactly where you are years ago but was given paikillers from the doctors and was clueles of lyme and bart.
You have lyme , bart for sure activate means reproducing .Your headaches are constant and too long as well.They are no migranes ( as I was told by german doctors a decade ago ) and within a few years after that I was fighting for my life with a FULL BLOWN bartonella ( that is too dangerous) and than LYMe and babs. You need Treatment for sure right away.