Anyway..I wanted to update everyone on my progress. I was diagnosed in May 2010 after 5 months of illness. I've been in treatment for almost 2 years. Dx'd with Lyme, Bart, and Babesia Duncani.
I made rapid improvement initially and then was in a plateau more or less for most of 2011.
In January 2012 I switched to a new (very famous) LLMD and started a brand new protocol of Bicillin, Biaxin XL, Plaquenil, Cryptolepis, Mepron, and LDN.
3 weeks after starting the Bicillin I started to feel a bit off / bad. I had a big flare of my usual suspects of problematic symptoms. Namely vision weirdness, TMJ stiffness, fatigue, sweating, muscle twitching, neck pain, etc. This lasted for the entire month of March.
Well, here we are on April 17 and I have to say that I have felt really GREAT the past week.
Today I spent all day working in the yard in the hot sun. No fatigue. No major sweating issues (I have sweated profusely with minimal exertion for the past several years.) I have energy...my mind is clear, etc.
The only symptoms that I am noticing right now is minor tinnitus, minor / very occasional muscle twitching in my calves, and mild night sweats. But otherwise all is good.
I still have some distance to go. But I haven't felt this good in a really long time. And I wanted to report it to the group as I know everyone here appreciates good news.
Knocking on wood..knocking on wood..etc.
Be well!
[ 04-24-2012, 08:19 PM: Message edited by: bcb1200 ]
Posted by nonna05 (Member # 33557) on :
Posted by seekhelp (Member # 15067) on :
Posted by birdie67 (Member # 35994) on :
That's wonderful!! Wishing you continued good health and healing Posted by Lymedin2010 (Member # 34322) on :
Great news! Thanks for giving us inspiration & please keep us posted.
Posted by norcal (Member # 29829) on :
Sounds very familiar to me. I started bicillin and biaxin in early Feb. after a long plateau ,making great improvements. congratulations!!!!
Posted by Tammy N. (Member # 26835) on :
So happy to hear this wonderful news. Keep at it! I hope your treatment brings you all the way back to wellness.
Please keep us posted, especially after you stop meds.
Could you PM me on who your doc is?
Thanks, Tammy
Posted by tricia386 (Member # 29623) on :
SO glad you hear it! Congrats
Posted by Sammi (Member # 110) on :
Great news bcb1200!
Let your Lyme doctor know you are feeling well. I am sure he/she would love to hear some good news.
I hope your progress continues!
Posted by Hoops123 (Member # 18333) on :
Terrific news. Keep up the good work.
Posted by nefferdun (Member # 20157) on :
That is great bcb. We do appreciate good news and we also like to know what is working for others so thanks so much for sharing.
Be on your guard and keep on treating until you are symptom free for two months. I hope that happens very soon.
Posted by lymeinhell (Member # 4622) on :
That's so great!!! I am happy to hear you are reminded of what 'normal' is again!! It's definitely a sign you are on the right track.
As you continue to improve, these periods of 'normal' will last longer and come more frequently, and bad days will become moments or hours.
Posted by lyme in Putnam (Member # 11561) on :
Posted by Jane2904 (Member # 15917) on :
Great news, thanks for sharing Posted by Dekrator48 (Member # 18239) on :
That's wonderful!
Wishing you complete wellness!!!!!
Posted by Lymetoo (Member # 743) on :
THAT'S AWESOME!! How are those babies?? Posted by baileypup (Member # 22824) on :
Great news that you have noticed such improvement! That's what a great doc will do for ya. If I could see any doc, he would be one that I would choose.
Are you treating lyme and babs? I'm curious as to why this is working so well.
Posted by cht girl (Member # 26170) on :
Such wonderful news!! Very happy for you, I pray you are on your way to a full recovery...
Posted by kidsgotlyme (Member # 23691) on :
Posted by fflutterby (Member # 28081) on :
So happy for you bcb ! Posted by Catgirl (Member # 31149) on :
Right on!
Posted by ShaneB (Member # 36958) on :
would share directly with me name of doc? Shane
Posted by dbpei (Member # 33574) on :
So happy for you! You give us all such hope by sharing this great news. Thank you!! Wishing you continued wellness.
Could you PM me with MD's name?
Posted by Kudzuslipper (Member # 31915) on :
Great News.
Posted by bcb1200 (Member # 25745) on :
Well I seem to have spoken too soon. After a month of feeling wonderful it is as if someone threw a switch yesterday. It started in the AM with a bit of a hoarse voice. THen fatigue set in.
Then flushing, hot flashes, dizziness, nausea.
Sweating more now. Feeling off / foggy.
Hoping it is just a flare. Seems very Babs like. And no, I don't think I have FL1953 as I tested 100% negative on The Dr. F test. And I don't have any other symptoms. Hoarse voice, yes. But I've had this off and on long before lyme. it is a GERD symptom for me.
Posted by Tammy N. (Member # 26835) on :
No!! Don't worry yet, it could just be an off day. I hope you wake up feeling great again tomorrow.
I thought hoarse voice could also be Bart.
Could you please pm me on who your doc is?
Feel better!
Posted by David95928 (Member # 3521) on :
IMHO you are herxing on the Bicillin.
Posted by nonna05 (Member # 33557) on :
Low potassium can make you feel terrible and somebody on here said you have to watch potassium when on Bicillin. Nonna
Posted by nonna05 (Member # 33557) on :
Plaquenil..How long have you been on that??...for some it not a Eye issue..
Posted by nonna05 (Member # 33557) on :
![[woohoo]](graemlins/woohoo.gif)
![[Smile]](smile.gif)
![[lick]](graemlins/facelick.gif)
Nonna
![[Cool]](cool.gif)