My 16 yo daughter was first infected with lyme at 4yo, reinfected by 3 ticks in the past 2 years. After a year of oral antibiotic treatment under an LLMD, her right leg became suddenly numb and paralyzed. It's been like this for 3 months now. Has anyone else had something similar? What treatment did you use? Have you recovered? What kind of time frame?
Posted by Lymetoo (Member # 743) on :
I hope she has the best LLMD available! Has she had an MRI?
Posted by Carol in PA (Member # 5338) on :
What's the diagnosis so far?
What treatments has your doctor ordered? Is she walking at all?
Posted by Maya12 (Member # 36392) on :
Hey many bites how do you treat neuroborellia and can you get better ? Are you still paralyzed? Or did this go away?
Posted by Maya12 (Member # 36392) on :
Is there a different treatment protocol for neuroborellia?
Posted by tickled1 (Member # 14257) on :
I think IV abx?
Posted by Maya12 (Member # 36392) on :
My naturopath wants me to try ozone therapy eventually , did it help?
Also what exactly is neuroborellia? Or how would you know you had it? I have a lot of neuro type issues like mental and cognative and mental but no paralysis
Hope someday I get Iv abx
Posted by mommaofnine (Member # 37497) on :
Thanks for your replies! Sorry I haven't been on recently. We have 4 children with lyme and spend most days at the doctors and doing treatment/therapies at home. My paralyzed daughter does have neuroborellia. We've been treating for 18 months with oral antibiotics under an LLMD with not much success. Mostly her fatigue has lessoned. We are also under a preventative health clinic for nutritional support. This week she begins IV claforan. Our first picc line. We started to use a type of rife from pulsedtechnologies.com in March along with UVIV blood therapy... beginning to see more improvement with some symptoms, but nothing in the paralyzed leg. We also just installed an infrared sauna for detoxing. Our zyto biofeedback machine says she has bartonella, babesia, and ehrichliosis (not sure i spelled those all correctly!) plus multiple viruses and parasites. 18 months ago when she crashed, overnight she became severely dyslexic, lost 30% of her hearing, all of her peripheral vision, was blind for a few minutes, had HUGE memory problems, short and long term. Went from doing high school in 2 years to a first grade level and no energy to do school at all. Didn't know what words like "skip, hop, and flu" meant. Can no longer do math or remember any of what she learned. She is slowly beginning to read again and do school... but nothing like before. She has much pain in all of her joints and spine daily... has for a decade. Has broken multiple bones (11 actually!). Her CD57 is 33. Had six antibodies to lyme on her western blot (last year) and then tested positive on the urine lyme antigen test with igenex in March. She's had 4 ticks. The last was a dog tick last May and her symptoms reversed for a time, but doxy helped her get back on track.
Posted by mommaofnine (Member # 37497) on :
In answer to above questions, no she is not walking at all. She's can't feel or move the right leg. She's lost 75% from hip to knee and 100% from knee to toes. She's in a wheelchair. She had 5 mri and an EEG (nerve testing in leg and spine) in Feb-- all show nothing. Guess I'm thankful it's not showing permanent damage at this point. Posted by Rumigirl (Member # 15091) on :
OMG, this is terrible! She clearly hasn't had the proper treatment so far. There are no good Lyme drs in MI. PM me, and I can tell you who is good to go to. (You can PM by clicking on the icon of the envelope with 2 people).
Does she have a top neurologist? Ideally the neuro would be Lyme Literate, but I'm sure you don't have that. To try to find one, go under the "Seeking a Doctor" section and ask for one in the title in the states that you could travel to (say 3 surrounding states). Or even someone further that you could see once or twice a year.
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