I had these Sx at first and they went away for awhile.
They are starting again and from mid March to now ,increase almost daily.
Have stopped red meat for a while Could GSE be doing something
Can thinnig blood a tiny bit start this changed a ABX about then, had immediate trouble and stopped it ASAP.. Been increasing since
Stirred the pot?
signs of Babs or Bart or other??
It's causinga lot of trouble, wakefulness, bed more, scarry..
Posted by Summer3 (Member # 35286) on :
I've been having this too. I had a ton of it in December through February, had a break and it came back a few weeks ago. It seems to coincide with Mepron use, so I'm thinking babesia.
Posted by glm1111 (Member # 16556) on :
These are all symptoms of G.I. parasites. If you are not on antiparasitics, I would suggest you get on them and stay on them until symptom free. Treating parasites and getting all of their eggs and larva can take several yrs.
Gael
Posted by Lymetoo (Member # 743) on :
Thinnning blood?? as in serrapeptase, or Wobenzym?? They can increase herxing as the abx can get deeper into the cells.
Posted by Tammy N. (Member # 26835) on :
These are/were my worst symptoms by far. I just started parasite treatment and my symptoms have GREATLY diminished. Gael has posted on this many times, now I am finally seeing it for myself.
I would definitely go solidly at parasites.... a very comprehensive, long-term approach. Good luck.
Posted by nonna05 (Member # 33557) on :
some Wobenzym / couple lately, but have taken before this, maybe not correctly.
Was for inflamation I thought...
Boluoke ,but just got that and have taken maybe 1 every other day for thre days.
I did try the Long L word about a month ago.. So is that good or bad that cells get ABX? sounded good and I went very light.
I was concerned that I wasn't getting enough blood flow due to illness and being in bed so much.
This is really crazy feeling, I'm more jittery also.
phone ringing by me today , while napping about sent me through the roof.
Can GSE do any of this?? Cyst Busting ??
Another member has a son going through similar issues.. and asked about GSE
The breathing got a bit better from a few days ago,but I'v really been in bed most the time.
Why would parasites suddenly act up like this has????/
Posted by glm1111 (Member # 16556) on :
GSE is antiparasitic, but not enough to do the job!
Posted by nonna05 (Member # 33557) on :
glm1111 or anybody else are you saying the GSE for Cyst Busting woke up parasites somehow??/
Non of this illness makes sense,
Is this something to ride out??
What else can set this Sx off?/ A babs flare
Posted by nonna05 (Member # 33557) on :
Summer I thought Babs gone amuck also..What are you doing for it????
It kinda really started when 1 of my ABX's got changed , and I really didn't want to try that one,about 4 days later I had to stop.
Just seem's like something got stirred up and have been playing these games with me... It's just hitting much harder as I go..
Backed down on several supps ..the couple above were minimal tries.
What to do??
This is why I was asking about D3, 5-HTP mostly the thrytophan part of it.
Then TuTu said trazadone was basically 5-HTP. Was to take one to help sleep.
That all might have to do with just feeling like loosing any gained ground.....
Posted by Lymetoo (Member # 743) on :
Boluoke and Lumbrokinase are the same thing. Do not take both!! Wobenzym has the SAME action. Do not take ALL of these!
They will help the abx get deeper into the cells and therefore you WILL HERX HARDER!
Posted by nonna05 (Member # 33557) on :
Ok ,didn't take all at once ....so OK there.
So even though it's so darn uncomfortable it could be worth trying to ride out?
Just keep it low and slow?
Posted by nonna05 (Member # 33557) on :
Summer3 , did you start GSE recently????
Posted by nonna05 (Member # 33557) on :
TuTu ,is this good or bad.. It's certainly getting to me,,,,
Herx?? Parasite? GSE? Boluoke so med get further in??//
Sounds like not enough to do anything all the way to rid infection/parasites..
It would help to know possible reaction to at least mentally prepare....Not sure with this last week it would have made that much difference for me ,but maybe others...
This is when I want to through this whole Vitamin /pharmacy out and take a One A Day and hope for best,
I know the cost of that with my brother dying a year ago from no treatment and a rough life style. Posted by Lymetoo (Member # 743) on :
It is making the abx more effective, so it is good.
Posted by Alexandru Matei (Member # 37348) on :
Getting tested for babesia and bartonella is probably the best first step.
Alex
Posted by nonna05 (Member # 33557) on :
OK cramps are back now....in leg to buttocks..
I should have B&B treatment going
what would that look like to you??
again GSE is taken by many , I just held back to one today.... and didn't take either of the above mentioned by TuTu..
Just to hear from members
If I was on right track and it was/is a big kill.. Then is this normal and you just barrel through it? I've been working on babs and bart all along I have one other/can't remember and possible pneumonia issue..
"will herx harder" what and timing will help most?
Posted by Lymedin2010 (Member # 34322) on :
Nonna, I recieved your PM & sorry to hear you are herxing.
As I mentioned in the past GSE gave me quite a herx and more twitching and "movement" around my body than any other substance that I have consumed for Lyme. �I took one dose then stopped then did a few consecutive days and stopped again. �I felt worst when on GSE, something that I do not get as much from all the ABX I am taking.
It took about a week for the twitching to simmer down and I have not been quite the same with the twitching after taking GSE. �I believe it acts on the biofilm and/or on the parasites. �I stopped GSE so that I can discover what is causing my symptoms and to determine if my ABX had any positive effects.
After almost 2 months now I have determined that my current ABX regimen will not get me well, only temporarily subside some of the symptoms, while allowing others to increase. �I will be adding in Ivermectin shortly and hopefully that will help. �It feels like these twitches/movement is caused by something larger than BB. �After Ivermectin then I may go back to GSE, all depending on my GSE study.
I did a microscopy test to see the effects GSE on a blood smear. �I took one cup of filtered water and 2 drops of GSE. �Placed 2-3 drops of this on a drop of blood and noticed that many of the RBC's had been lysed. �The concentrations �don't represent well the actual absorption of GSE and actual serum levels, but it is a start. � Also want to run a control of just filtered water on a smear.
I just obtained some vacutainers and can now more readily perform multiple slides and tests, so more tests to come. �I have also discovered something crucial this week after observing blood smears from 8 individuals. �Out of those persons, 4 have minor symptoms, but nothing debilitating.
We all appear to be carriers of bacteria that live in our RBC's. �These are the same bacteria that one sees an explosion of when looking at chronically afflicted Lyme patience live blood smears. �In this respect Lyme becomes far more complicated than the coinfections, various BB forms and biofilm, and parasites.
Tom Grier is a person who had late stage Lyme and was able to get back on track after treatment. �He is now a passionate advocate and is a spokesperson for our cause. �I have spoken to him and email him on occassion.
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