My doc thought that Bart was the worst now, and also Babesia. (I thought Lyme and Babs).
I'm on full-dose rifampin, now working up in dose on clindamycin (am a bit more than 1/3 of the way up to a high dosage). On rocephin, which I don't have a problem with.
I'm having extreme anxiety and insomnia, a "finger in a socket" feeling. Although I am exhausted in the day, I get wired to the wall late at night. I already had that, but now it is through the roof.
When I try to go to bed, my heart is pounding, and I'm completely wired. I often can't sleep anywhere near long enough, as the wired thing wakes me up hours too early. Then, I am exhausted beyond belief, but wired.
Neurontin, which I take to sleep is barely making a dent at all, even though I've upped the dose. Rifampin lowers the effectiveness of neurontin and many, many meds. Detox does help. I guess I need more detox, plus meds and supplements to calm the jitters. Help!
I'm supposed to up the clindamycin dosage, go to a double dose of rocephin 4 days per week, as opposed to daily, and add Mepron, which I've never had a problem with. But I'm holding off for now on increasing or adding anything until I can get this more under control. I'm sure my doc would want me to do that. (I go back in 1 week).
On top of everything, I am mightily struggling with Candida now. do have meds for that, however (and lots of probiotics). Arghhh!
Any suggestions other than what I said? (More detox, and anti-anxiety supplements/meds). Like benzo's.
This is on top of existing anxiety/depression that is bad from the whole darned mess of illness so long that I have had no life for years, and have been barely existing! I can't seem to tolerate any antidepressants at all to boot. Sigh.
[ 06-08-2012, 05:36 PM: Message edited by: Rumigirl ]
Posted by Rumigirl (Member # 15091) on :
up.
Posted by sammy (Member # 13952) on :
You know your body well. Does this feel like a herx or an infection flare?
Sounds to me like you are having a herx like reaction from adding the clinda. The wired tired symptoms with insomnia and anxiety makes me think of bartonella.
Hang in there if you can. Maybe stick at this dose or a lower one for a few days before increasing.
I would go ahead and pulse the rocephin. That may help you have some breaks.
Sorry I don't have any advice with the benzo's. I don't have any personal experience there. I'm sure lots of others can help you better. If you need to take them and have a prescription then go ahead and take them as prescribed.
It sounds like many of us are struggling right now. We all need each other. Glad we have LN to connect. I couldn't make it alone.
Thanks for being my friend Rumi. Hope you feel better soon.
Must make my brain think and try to pack for my trip now...
Posted by canefan17 (Member # 22149) on :
Welcome to Bartonella
My LLMD (who trained under Dr H) has me on Ativan at night (for anxety/sleep - boy does it work!)
And I take trileptal to avoid seizure-like herxes and reduce overactive nervous system (which Bart can cause)
These have helped me greatly.
Posted by Rumigirl (Member # 15091) on :
canefan, so I assume that you take the trileptal in the daytime, right? If I took an anti-seizure med or anti-anxiety med in the
daytime, I would be flat on my back. I often can't do anything more anyway. That's the problem. I sometimes think that I need to "step
on the gas and the brake" at the same time, ie, take stuff to get me going some (which I already do a ton) and something to chill out the anxiety/jittters. Arghhh!
I just realized today that another issue is that my Hashimoto's is probably acting up, as my T3 has been well above normal for quite a while. I'm not seeing anyone now who can adequately address that. I
need to find a dr who can. I'm tired of so many drs. But I do need to find someone for this. In addition to get help with the anxiety/insomnia/jitters stuff.
I've had this symptom get worse from treating numerous times already, and that is without treating Bart much before (from babs tx or from Bart getting worse as the others improve).
sammy, take care, we should talk before you go. Yes, what in the heck would we do without LN??!! It's lonely enough as it is.
Posted by migs (Member # 16496) on :
Well no suggestions here but if it makes you feel better, I do feel your pain. That dead in day and then strange relief at night is classic die off symptoms for me. The napping and dreaming all night is also standard when I switch up meds or restart a good one.
It will fade...just hang in and remember that relief will follow soon.