Two weeks ago my PCP said I have Lyme (after 1 year of undiagnost symptoms, many drs visits, etc.) He put me on Doxy for a month.
Today I saw a rheumatologist who reviewed my Lyme test and said the Western Blot was negative. I've been reading a lot about it and don't know what to think.
It definitly seems to me I have Lyme, over the past year I've had: constant headaches, dizziness, muscle aches, muscle spasms, fatigue, fatigue and more fatigue, visual problems, neck pain.
No other disease fits the bill better than Lyme - none... PLEASE HELP!
Posted by TF (Member # 14183) on :
If the rheumy told you your diagnosis is fibromyalgia, then the rheumy doesn't know anything.
Fibro is caused by lyme disease. Lyme doctors know this. (Just ask the rheumy what causes fibro, and the answer will be "We don't know"!!! Yep, they don't know.)
Stick with the doc who told you you have lyme. Drop the rheumy. Rheumies are usually bad news for lyme patients.
Posted by droid1226 (Member # 34930) on :
What did your Western Blot say exactly? Sure sounds like lyme. Rheumatologists are useless when it comes to lyme. You also need a co-infection panel as it definitely sounds like you have lyme.
Posted by TF (Member # 14183) on :
This is a post by a lyme doctor. It explains the Western Blot results:
Get a copy of your Western Blot results and post them here. Post each band listed and what it shows next to each band.
We will help you interpret your results. However, as the lyme doctor says in the post above, if you have even one positive band on the Western Blot, and you have lyme symptoms, then the test result is significant--it is confirming that your body is reacting to lyme bacteria.
Posted by Keebler (Member # 12673) on :
- There are VERY few lyme literate rheumatologists in the U.S. Yours is obviously not lyme literate.
Even if your Western Blot might be negative (but that is not yet proven as CDC negative determination is not the same thing as negative test) that cannot prove the absence of lyme.
Infect Drug Resist. 2011;4:97-113. Epub 2011 May 3.
Evaluation of in-vitro antibiotic susceptibility of different morphological forms of Borrelia burgdorferi.
Excerpt:
. . . Conclusion
Antibiotics have varying effects on the different morphological forms of B. burgdorferi.
Persistence of viable organisms in round body forms and biofilm-like colonies may explain treatment failure and persistent symptoms following antibiotic therapy of Lyme disease.
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Liver support & Adrenal support is also very important before and all during treatment. Most LLMDs are well aware of those methods. -
Posted by mattrv197 (Member # 38507) on :
Thank you all. I will provide details as soon as I get them.