I got the preliminary 10 day result back from the borrelia advanced lab test, saying "inconclusive", it will go back to grow for another 10 weeks. My question is has how many have had an "inconclusive" and then have it come back negative in the end?
Has anyone gone on to continue to treat with a negative on this test. My docs are so positive it's lyme and bart, but if this is negative, I'm definitely going to wonder if all this is something else even with the history of tick bites.
Posted by poppy (Member # 5355) on :
If it were me, I would continue treating. The fact that they are going to continue the culture for another 10 weeks does not necessarily mean it will take that long to get a positive. That is just the end point of the culturing.
Posted by Lymetoo (Member # 743) on :
You CAN have a negative on this and still have Lyme, but if it's positive there is no doubt.
Posted by NJFitnessGuy (Member # 30886) on :
quote:Originally posted by joahsark: I got the preliminary 10 day result back from the borrelia advanced lab test, saying "inconclusive", it will go back to grow for another 10 weeks. My question is has how many have had an "inconclusive" and then have it come back negative in the end?
Has anyone gone on to continue to treat with a negative on this test. My docs are so positive it's lyme and bart, but if this is negative, I'm definitely going to wonder if all this is something else even with the history of tick bites.
I am going to take this test as well once I can save up the $595.00.
Just out of curiousity, were you symptomatic at the time your blood was drawn? They say that this could help produce quicker results. And what time of the day was your blood drawn and sent out?
Apparently this test is 80% accurate, but you could still be positive even if you get a negative, but if you`re positive, you are definitely positive, with pictures to prove it.
I`m very anxious to get this test done myself.
Posted by joahsark (Member # 20598) on :
Yes, I was super sick on the morning the drew the blood, Hoping it "helps".
Docs here have grown VERY apprehensive lately about treating sero-negative patients. I'd have to leave the state to find someone and even then I don't know who.
I had a spect done last week, praying that the results show what they need to, I'll get those results tomorrow, I have 24/7 brain swelling (for years), in addition to hopefully getting that positive test back in OCT.
Advanced Labs said they would not even be looking at again until the next 10 weeks were up, in Oct.
Posted by BoxerMom (Member # 25251) on :
I just want to say "Good luck."
Will you make it to the Lyme picnic in Sept, even for an hour? Everyone loves the picnic. It's a great place to connect. That's where I met our local Lyme community in 2008.
Posted by poppy (Member # 5355) on :
I stand corrected. Have not had this test yet myself, but thought that others had reported the culture was checked multiple times.
Posted by joahsark (Member # 20598) on :
Thanks so much BoxerMom!!! I am sure hopiong to make it to the picnic this year! I've looked forward to it for about three years now since I discovered you guys and every time it rolls around I'm too sick, really hoping timing is good this time!
Seeya there!
Poppy- I sure wish they would!! I'd be peeking at it every day if I could. Ugh, the waiting!!!
Posted by vitamink (Member # 36646) on :
hi joahsark,
my results were inconclusive after 10 days and negative after 10 weeks. that created quite a bit of confusion, but i also had a spect scan and the results were consistent with lyme. (i also had igm+ 23, 39 on the wb).
the negative culture still makes me question the diagnosis from time to time, but the docs think it was a false negative.. and i'm getting a picc line in a few days.
good luck, karina
Posted by Lymetoo (Member # 743) on :
A picnic?? I no longer "do" picnics. Can't imagine.
Is it "safe" in the PNW??
Posted by jackie81 (Member # 27031) on :
My sons test came back negative after the ten weeks..not sure what dr J in ct will say about that..see him in a few weeks
Posted by BoxerMom (Member # 25251) on :
Don't worry, Tutu. The local Lyme leaders would never hold a picnic in a high risk tick area. We're sick, not stupid.
Posted by joahsark (Member # 20598) on :
My SPECT was abnormal with blood flow restriction in two parts of the brain. One step closer I guess.
Parasite testing next while we wait for the weeks to pass.
Posted by BoxerMom (Member # 25251) on :
Congratulations on your abnormal SPECT!
I can't even believe I'm saying that. But I know how important it is.
I hope your sample shows some spirochetes.
Do you remember which brain areas were ischemic?
Posted by joahsark (Member # 20598) on :
Lol. I know it, it seems so crazy to happy for an abnormal brain result. I forgot to grab my copy of the report from Dr. W. She said two areas but of course I forget what they were, memory must've been one of them. LOL.