am pretty sure that my boyfriend does.
Posted by Keebler (Member # 12673) on :
- Was the turkey burger from the thigh or drumstick of the turkey? Most likely.
White meat will likely be best. But, really, I'd go for a vegetarian diet for a little while. Be certain to get enough protein from legumes, etc.
There is a recent thread here with detail about exactly what you report. I'll look for that a come back with link. Or if others find it first, I hope they will post it.
Do you recall a recent tick bite? It could be an allergy to the tick bite causing the meat reaction.
It could also be a liver condition that results in deficient enzymes to metabolize meat (Porphyria). Details in the "Red Meat Allergy" post.
AVOID MEAT BROTH & STOCK now, too. Until you know more.
However, you should be assessed by a LLMD.
Is your boyfriend being treated by a LLMD? But, looking back at your post you say you "are pretty sure your boyfriend does."
That seems to say he's not been assessed by a LLMD. ? -
Posted by Keebler (Member # 12673) on :
(What ILADS is) . . . WHY you need an ILADS-educated, Lyme Literate Doctor - starting with assessment / evaluation. -
Posted by Sammi (Member # 110) on :
Hi calicarli, welcome!
What you are describing has been in the news a lot recently. A tick-bite induced meat allergy also happened to author John Grisham and his wife.
You can read a journal article called "The relevance of tick bites to the production of IgE antibodies to the mammalian oligosaccharide galactose-α-1,3-galactose." To read it just copy and paste the title. For some reason, this site is not letting me post the link.
You can be tested for this.
Posted by Keebler (Member # 12673) on :
Christina Cooks - a wonderful site for VEGETARIAN cooking.
However, she liberally uses brown rice syrup and occasionally uses wheat or gluten. But those can be side-stepped. The basics for great flavor and nutrition are all here in with an emphasis on
MEDITERRANEAN CUISINE -
Posted by calicarli (Member # 38582) on :
I don't recall having a tick bite but have always
grew up with a father who is an avid hunter and
have always been an outdoors person myself. My bf
does have an llmd he sees but has not yet treated
fearing he will get worse. You might know him as
DerkDiggler hes regularly on this site.He is
pretty sure that it is sexually transmitted and
it is just too much of a coincidence that I am
having these symptoms all of a sudden.
Posted by Keebler (Member # 12673) on :
- 1) you have been outdoors a lot, around hunting. That's a major piece of information right there.
Even if you've been outdoors at all, have a pet, a Christmas tree or holiday greenery . . .
. . .chances are you've been bitten. Parts of California is teeming with ticks and tick-borne disease (TBD). Some are very tiny, the size of a pin-head. They are very "shrewd" and often unseen.
Ticks have a substance that numbs our skin to their bite. Most often, there is no awareness of the bite.
Contrary to popular IDSA myth, a tick does NOT need to be attached for any number of hours or day. Even just the bite can transmit infection(s).
2) regardless of your boyfriend's thoughts, YOU need to be assessed by a LLMD for both this allergy and possible TBD. YOU need to proceed with this if you want YOUR life.
Doing nothing is not an option. At the very least, find a doctor who will test you for the allergy. It's so important & could save your life. I think it can apply to all kinds of ticks, not just the lone star.
Just avoiding red meat may not be enough as, even if become vegetarian, you might be exposed unaware to meat or broth in a dish somewhere along the line.
3) connect with the lyme support groups around you. -
Posted by calicarli (Member # 38582) on :
I was having such bad stomach cramps my doc. sent
me to have a sonogram. noticed a lesion on the
bottom of my liver, slow working gallbladder,but no
stones. All of my other symptoms/ diseases ive been
diagnosed with by my doc. include :
as a child i had Juvenille Rheumatiod Arthritis.
I have Graves disease (hyperthyriodism)
Von Willebrands disease (factor 8)
ovarian cysts
lightheadedness
anxiety
light sensitivity
night sweats
Posted by Keebler (Member # 12673) on :
- Sorry to hear all this. You may have had lyme &/or other TBD since childhood. I hope you can find a LLMD very soon.
All the symptoms (& the JRA dx) you describe pretty much scream: Lyme & Babesia. And/or possibly other chronic stealth infection.
Don't be swayed by your boyfriend's fear that treatment will make it worse. Treatment saves lives. A good LLMD &/or LL ND can find a treatment designed for YOUR body and offer support methods, too.
Get to an expert for the best diagnostics.
Good luck. Most people DO get better. -
Posted by Keebler (Member # 12673) on :
- I see that
Von Willebrand disease (vWD) is the most common hereditary coagulation abnormality . . . (Wiki).
So, since lyme can also cause major problems with sticky blood, be sure any LLMD you see knows this up front.
The diagnostics you had for VWD might need to be examined as to whether it's truly hereditary for you or acquired by infection. Still, either way, you need an ILADS educated lyme literate expert for proper assessment.
Go to www.LymeDisease.org - find the referral & support links. That group is based in California.
My advice is to find the one that best suits you. I would not necessarily go to the one your boyfriend has seen - unless they would also be the best fit for YOU - AND they have excellent recommendations from others.
Take care. -
Posted by calicarli (Member # 38582) on :
both of my parents were negative for VWD
Posted by Keebler (Member # 12673) on :
- Well, then, it's rather unlikely that it would be hereditary in your case, but acquired. Lyme can cause some terrible problems with thick blood.
Of course, It might skip generations but, again, a LLMD can best guide you there. -
Posted by calicarli (Member # 38582) on :
thanks for your help
Posted by calicarli (Member # 38582) on :
thanks for your help keebler what is your best
educated guess even though you are not a doctor
knowing my situation and all of the knowledge you
have what is it you think I might have going on
with me?
Posted by Razzle (Member # 30398) on :
Meats are very hard on the liver, so the lesion on the liver may be responsible at least in part for your reactivity to meat.
Some of your other diagnoses - esp. the ovarian cysts and the Graves' Disease - suggest possible gluten sensitivity or Celiac - have you been tested? Best, most accurate is the EnteroLab stool test ( http://www.enterolab.com/ ) but it isn't completely perfect either...only way to know for sure is a gluten free diet trial (for a minimum of 3 months).
The other stuff - the JRA, sweats, light sensitivity, etc. - are sounding more like Lyme & Coinfections.
Yes, I agree you should be evaluated by an LLMD sooner than later.
Oh, and not everyone gets terrible herxes. Those who detox well don't seem to suffer nearly as much with herxing as those who have detox difficulties (such as MTHFR).
Also, you can do stuff to help with detox to minimize severity of the die-off reactions, such as bath soaks in epsom salt water, getting adequate sleep, dry skin brushing, drinking fresh squeezed lemon juice in water throughout the day, taking binders (pectin, fiber, charcoal, etc.), gentle non-aerobic exercise (resistance/weight training, yoga, etc.).
Posted by Lymetoo (Member # 743) on :
Find an LLMD!!! The original Lyme cases were cases of what they THOUGHT was Juvenile Rheumatoid Arthritis.
Posted by Sammi (Member # 110) on :
Night sweats and lightheadedness are hallmark symptoms of the co-infection Babesiosis.