Husbands breathing deteriorated so badly in the past few days. So this morning he wanted to go to the ER. We knew they wouldn't do anything and his oxygen level would be fine. Which it was. It was 95. They did a CT scan. No problems there. No blood clots from his PICC line. I called his LLMD from the hospital. He tells me that its Babs causing the breathing issues and that he should be on Malerone and Artemisinin. Well hello. He himself took him off the Art. Said he couldn't be on it longer than a month. They stopped the Malerone when PA put him on IV Vanco. I'm so tired of all the contradictions. We see his PA most of the time. So he was giving her a heads up for tomorrow morning. We'll see what she says then.
Posted by Keebler (Member # 12673) on :
- Sorry. I've had my share of ER disappointments. It sure can be rough.
This seems to be much better tolerated for Babesia treatment (still probably best in combination, though). Ask tomorrow:
CRYPTOLEPIS sanguinolenta -
Posted by Keebler (Member # 12673) on :
- For inhalation therapy, Google:
Himalayan Salt Pipe -
Posted by Life+Lyme (Member # 33568) on :
Sorry!! I had the same experience this week. Was it air hunger? Let me know what they say.
Posted by lyme-o (Member # 35115) on :
LLMD wants to restart Malerone and Artamesinin
Posted by WendyK (Member # 18918) on :
Ugh, so not fun to have to do ER trips! Sorry to hear he's having a rough time. I hope the malerone helps - that air hunger is scary! Keep us posted.
Posted by Lymetoo (Member # 743) on :
Hope he feels better soon. Do you have a really good LLMD?? I can't tell for sure!
Posted by lyme-o (Member # 35115) on :
Yes lymetoo. One of the best in upstate NY
Posted by dal123 (Member # 6313) on :
Buy an oxygen concentrator, I have recommended oxygen and oxygen concentrators for several sick people, this dr is seeing results and now is prescribing oxygen foe those infected with babs, but the caveat, u gotta pay outa pocket if rue not on medicare and your O2 Sat is normal, With babs u can have normal o2 sat but u are still actually oxygen deprived bec of the RBC infestation, it helps so much with air hunger, you can get refurbished concentrators online wo a prescription.
Posted by Lymetoo (Member # 743) on :