So after months and months of mystery symptoms I finally went to my first LLMD appt in august and had my follow up yesterday. Here us what I learned.
WB IGM 18 + 31 IND 34 IND 41 IND
WB IGG 39 IND 41 + 58 +
Heavy Metals With dmsa provoking agent
-Cesium 12 ( should be under 10)(before dmsa 6.2) -Lead 23 ( should be under 2)(before dmsa 1.3) -Mercury 28 (should be under 4)(before dmsa 4.9) -Nickel 30 (should be under 12)(before dmsa 5.5) - Thallium 1.3 (should be under 0.5)(before dmsa 0.7)
Low/deficient levels of -folate - calcium -CoQ10 (very low) -selenium (very low) -alpha lipoic acid ( very low)
Borderline low levels of -cysteine -chromium -zinc -pantothenate -biotin -b12
Nothing too significant on fecal analysis accept -a rare yeast (rhodotorula glutinis/mucilaginosa) -low levels of secretory iga (9.7) -low levels butyrate (.39) -low total SCFA's (3.2)
Blood work showed -elevated IGG for EBV -elevated IGG IFA for EBV -elevated IGG for parvovirus - elevated IGG EIA for mycoplasma (my doc believes these are all past infections) -borderline low T4
Posted by Tucker-Bell (Member # 37578) on :
The current treatment plan is to
Continue on: -A-bab -NT-detox -milk thistle - vit d
Start - a multi vitamin -coQ10 -alpha lipoic acid -grapeseed extract -fiber - probiotics
Remove all metal fillings then begin IV chelation therapy.
Then re-evaluate blood work
Has anyone had high levels of several heavy metals? Did u replace all ur fillings?
Is it ok to not be treating for Lyme?
Is there any questions I should be asking my doctor?
Does anyone have any thoughts or insights from their own experiences?
I really like my LLMD and trust him, it's just nice to hear others opinions, knowledge, and experiences.
Thanks so much! This is a wonderful community and I'm so appreciative it exists.
Posted by Lymetoo (Member # 743) on :
I certainly would treat lyme!!! Maybe he is letting you get your gut in order first???
Did he say you had lyme??
I had my mercury fillings removed.
Posted by Tucker-Bell (Member # 37578) on :
Can someone also explain the IGG vs IGM and what bands on the WB are more specific then others?
Posted by sixgoofykids (Member # 11141) on :
I think it's okay to work on one thing at a time and maybe reduce toxin load before attacking the Lyme. I have a friend who worked on her toxin load then never needed to go after the Lyme directly, the body did once it was strong enough.
I had my amalgams out back in 1991, chelated, then went into remission for 12 years until I got bitten again. I was also exercising at the time. Even Dr. Burrascano has said he has seen people go into remisison from exercise alone.
Posted by Judie (Member # 38323) on :
I would test your cooking pans for nickel (replace any scratched, old pans too) and stop eating canned foods. That might help with decreasing the nickel amount. Nickel hasn't been used in dental material for several years because it's highly allergenic.
"Has anyone had high levels of several heavy metals? Did u replace all ur fillings? "
Actually, I've been in hell sense I replaced my metal filling. I was allergic to the replacement material (a lot of them are waaaayyyy more toxic than metals) and it took me several years to find one that I wasn't allergic to.
Also, my fillings NEVER hurt me before I did this, and I've been in horrible pain ever since.
Also, my friend's tooth cracked when she got the fillings replaced. She wound up losing her tooth. Every time a tooth is drilled, it becomes weaker.
I would seriously consider getting allergy testing before putting anything in your mouth if you're not having any pain from your metal fillings.
Get a list of ALL the substances they plan to use, including adhesives and bonding materials then talk to the manufacturer to get a material substance data sheet (MSDS) and an ingredients list.
As MSDS only lists what the government believes is toxic, but there may be 50 more ingredients in addition to it that hasn't been tested for toxicity.
Lastly, my doc warned me NOT to do a challenge test when I test for heavy metals. The challenge forces your body to release stuff at an accelerated rate so everyone scores high on stuff. Then you're talked into doing more medical stuff than you need to.
I don't know how to advise you on it. I trust my doc too, but you need to do what's best for you.
[ 09-20-2012, 05:39 PM: Message edited by: Judie ]
Posted by Tucker-Bell (Member # 37578) on :
I don't know... My llmd had Lyme and mercury toxicity... And had his fillings replaced and said it was the best thing he did for his treatment.
I'd be more concerned about them just trying to get more money from you if he said I had to use a certain dentist. But he gains no profit from me getting my fillings replaced. So I don't really think that's the reason.
From my understand it's really hard to treat Lyme if you have heavy metals because the Lyme literally holds the metals in your body and uses them to evade the immune system. Therefor antibiotics cannot be as affective.
So basically I can't treat the Lyme until I treat the metals, and I can't treat the metals until I remove the fillings.
Regarding the provoking agent; it's my understanding the metals are typically in denser tissues...where the Lyme is... So to see what's really in your body and in your tissues you need the provoking agent... Also explaining why they levels increase. The metals that were in ur denser tissues are now being pulled out where ur body can process them out.
But you can't pull out metals that aren't there, and you aren't suppose to have metals at those levels in your body period. Just because they were hiding without the provoking agent... Doesn't mean they aren't there and aren't causing issues.
Posted by Tucker-Bell (Member # 37578) on :
Judie just out of curiosity is your doctor an ILADS trained LLMD?...
I feel like all doctors say different things... I'm confused...boo
All I know is I am in a lot of pain... Very painful unrelenting knots in my back, twitching in my arms, weird fluid swelling on my hips and the back of my neck... Aches everywhere...extreme fatigue.... Constant head and ear pressure....squishy squirting sound in my head....and on and on and on
I feel so lucky to finally have some answers... But I feel like this is gonna be a long road Posted by Judie (Member # 38323) on :
I have 2 LLMDs (both ILADS trained) and an ND.
Since you asked for thoughts, experiences and feedback, I wanted to provide you with my experiences.
Some people say that get relief from removing fillings. I did not have any relief but more problems doing this.
The complication that incurred after removal I believe had nothing to do with being high in metals, but they were problems I think anyone considering amalgam removal should be aware of.
I'm certainly not telling you what to do and I really hope you can find relief working with your doctor. Your doc does sound well trained.
I'm glad that your doc isn't insisting you see a particular dentist.
I have a friend who is seeing a practitioner who is very on the fringe and is insisting she works with a particular dentist. She spends probably about $1000 a month on supplements that the practitioner manufactures at some home lab.
Posted by Tucker-Bell (Member # 37578) on :
I don't know... My llmd had Lyme and mercury toxicity... And had his fillings replaced and said it was the best thing he did for his treatment.
I'd be more concerned about them just trying to get more money from you if he said I had to use a certain dentist. But he gains no profit from me getting my fillings replaced. So I don't really think that's the reason.
From my understand it's really hard to treat Lyme if you have heavy metals because the Lyme literally holds the metals in your body and uses them to evade the immune system. Therefor antibiotics cannot be as affective.
So basically I can't treat the Lyme until I treat the metals, and I can't treat the metals until I remove the fillings.
Regarding the provoking agent; it's my understanding the metals are typically in denser tissues...where the Lyme is... So to see what's really in your body and in your tissues you need the provoking agent... Also explaining why they levels increase. The metals that were in ur denser tissues are now being pulled out where ur body can process them out.
But you can't pull out metals that aren't there, and you aren't suppose to have metals at those levels in your body period. Just because they were hiding without the provoking agent... Doesn't mean they aren't there and aren't causing issues.
Posted by Tucker-Bell (Member # 37578) on :
Sorry for the double post I'm not sure how I did that...
Anyway thankyou so much Judie for sharing your experience, I so appreciate it.
Were you ever able to find a dental replacement that worked for you? I have had some fillings replaced in the past and tgey have used some kind of white filling. And I haven't had pain in those teeth. I did have pain after my last tooth. But it was from the fact they had to give me 5 shots before my mouth actually went numb.
Posted by Tucker-Bell (Member # 37578) on :
Sorry for the double post I'm not sure how I did that...
Anyway thankyou so much Judie for sharing your experience, I so appreciate it.
Were you ever able to find a dental replacement that worked for you? I have had some fillings replaced in the past and tgey have used some kind of white filling. And I haven't had pain in those teeth. I did have pain after my last tooth. But it was from the fact they had to give me 5 shots before my mouth actually went numb.
Posted by Catgirl (Member # 31149) on :
I guess it depends on your history, neuro symptoms, etc. Biological dentists know how to remove amalgams properly. If I were going to do it, that's who I'd see. Everyone is different though, so what works for one person, may not work so well for another.
I see a well known doc and was told not to take mine out (mouth full of metal). But he knows my history, levels, etc. He's also had thousands of patients, and has seen more than most. So if the man tells me not to do it, I'm not going to do it. That said, I would love to do it. But I don't want to end up having worse problems than I have now.
I can think of someone on this blog who never had hers taken out, and she still got well (and she had a terrible case of lyme and co infections--TF). Just use the search tab above to search for any of her posts (you can read her story). She's not only loaded with great advice, she's a very kind & wonderful person.
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