hi i have had lyme for many years now. i was treated a long time ago, i have not been on any treatment for 8 years. 3 years ago i was diagnosed with a illness called trigeminal neurrolgia which i will use tn to shorten it. it is very severe nerve pain. i have been treated with meds which did not help and then a mvd operation for it. they said they found a blood vessel pressing on my nerve. recenlty a old doc thought i might have something called lyme trigeminal neur olgia. there are a few people on another site that said they did have lyme and tn together. i was wondering if anyone has heard of this or has this and is caused by lyme. my pain feels like its in my tooth but they say its really the nerve. and the pain is very severe. any answers will be appreciated. thanks michelle
Posted by jlf2012 (Member # 36002) on :
Yes! Shooting pain and pressure in my right ear, jaw and teeth were my first symptoms...awful, awful pain. This was years before I was diagnosed with lyme disease. I took tegretol and eventually had an MVD. After that the other lyme symptoms took hold tenfold. Did your MVD help? They thought they saw a compression of my nerves but didn't find one after drilling a hole in my skull!! That was 2 1/2 years ago and i'm still recovering.
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