LymeNet Flash: Pregnant and Lyme

This is topic Pregnant and Lyme in forum Medical Questions at LymeNet Flash.

To visit this topic, use this URL:
https://flash.lymenet.org/ubb/ultimatebb.php/topic/1/121830

Posted by sareta (Member # 39695) on :

Hi,

I have had lyme sx for almost 2 years, seen countless doctors, and I am FINE on paper.

Finally got some Igenex labs drawn and they are positive for Lyme (CDC negative, PCR negative though).

3 weeks ago I found out I am 8 weeks pregnant, so now I am CONFUSED.

I am in GA and have gotten NO treatment.

Any advice would be great appreciated!

THANKS!!

Posted by Lymetoo (Member # 743) on :

I hope others will be along soon to help you. This is not my expertise!!

Dr. B. lists pregnancy doses under "ANTIBIOTIC CHOICES AND DOSES" starting on page 18 of his treatment guidelines at http://www.ilads.org/lyme_disease/B_guidelines_12_17_08.pdf

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=117194;p=0#000001

Posted by AuntyLynn (Member # 35938) on :

Sareta -

Congratulations on your pregnancy!

But I can certainly understand your concern!

I believe the latest recommendation is to start antibiotics in the second trimester, and to stay on them until after delivery! There was a doc on the livestream ILADs conference (a female), who gave an excellent presentation about this. I'll see if I can find the clip.

Also, you should go to "finding a doctor" on this site, and post for a Lyme Literate doctor in your area.

I would call for an appointment ASAP, explain the results of your Igenex test, and the fact that you are pregnant. (In fact, why not contact the doc who administered the Igenex to start?) I bet that any LLMD would get you in right away.

We wish only the best for you and your little one!

Posted by Lymetoo (Member # 743) on :

That is true. Any LLMD you are calling may put you at the top of their waiting list when they hear you are pregnant.

Posted by sareta (Member # 39695) on :

thanks guys!!! I feel so loved by the support.

Lymetutu gave me a good rec. on an LLMD.

AuntyLynn - do you have any good LLMD recomendations? if so, please PM me [Wink]

Got my Igenex tests results:

IFA OF 40 (EQUIVOCAL)
SERUM NEGATIVE
WHOLE BLOOD NEGATIVE

Now the fun part:

IGM WB:
Band 18 positive
Band 31 IND
Band 34 IND
Band 41 positive
band 89-93 IND

IGG WB:
Band 18 positive
Band 31 IND
Band 34 positive
Band 39 IND
Band 41 positive DOUBLE (++)
Band 45 positive
Band 58 positive
band 89-93 IND

My Sx are brainfog (i can still work) and neck pain and stiffness.

Thoughts?

THANKS

Posted by AuntyLynn (Member # 35938) on :

Unfortunately I know of no one in Georgia. (You might say it's a "dry state.")

However, I would suggest you write to
www.tbdalliance.org

the heading "treatment" has a link to write for a name of someone in your area. These folks help to train LLMDs.

Otherwise, how are ya feelin'?

Posted by ktkdommer (Member # 29020) on :

This blogger is posting her notes from the ILADS lectures. (I think the ones that were streamed.) She started with Dr. C's lecture on pediatric Lyme and Lyme in pregnancy.

http://purplelymegirl.blogspot.com/

Posted by Lymetoo (Member # 743) on :

Sareta is interested in LLMDs from any state.

Posted by coffee71 (Member # 17467) on :

PM sent

Posted by AuntyLynn (Member # 35938) on :

There are a couple of really good ones in the DC area as I understand.

Posted by sareta (Member # 39695) on :

Thanks guys so much. I appreciate everything. I have always been "scared to die"

As silly as that sounds

So this is hard for me, although I can get treated now which is great [Smile]

I now feel a horrible headache and dizziness and back and neck pain, my usual symptoms [Smile]

Hope everyone is feeling good [Smile]

Sareta

Posted by Keebler (Member # 12673) on :

-
http://ilads.org/ilads_media/boston-videos/

Purchase individual DVD, Scroll down to find those you want from last month's ILADS conference

Treatment of Tick Borne Diseases in Pregnant and Pediatric Patients - by Ann F. Corson, MD

Includes: Encrypted Online Link to View Powerpoint Slides and Presentation Video.

------------------

GINGER capsules may be very helpful and are generally safe during pregnancy to help with some symptoms (though not as a direct treatment for infection).

You might find a LL ND (naturopathic doctor) to help guide you with some alternative support methods.

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=013239;p=0

What ILADS is

& WHY you need an ILADS-educated, Lyme Literate Doctor (whether LLMD or LL ND, or both)

-------------

When considering herbal / nutritional / adjunct methods:

if at all possible - because each person & each case is different - it's best to consult with an ILADS-educated LL (lyme literate) doctor who has completed four years of post-graduate medical education in the field of herbal and nutritional medicine -

- and someone who is current with ILADS' research & presentations, past and present.

Many LL NDs incorporate antibiotics (depending upon the licensing laws in their state). Some LLMDs and LL NDs have good working relationships.

When possible, it's great to have both a LLMD and LL ND and even better when they have a long-standing professional relationship.

-----------------------

http://flash.lymenet.org/ubb/ultimatebb.php/topic/2/13964

How to find an ILADS-educated LL:

N.D. (Naturopathic Doctor);

L.Ac. (Acupuncturist);

D.Ay. (Doctor of Ayurvedic Medicine);

D.O.M. (Doctor of Oriental Medicine);

Integrative / Holistic M.D., etc. (Be aware that those in this category can have various levels of formal herbal &/or nutritional education, perhaps even just a short course. Do ask first.)

Links to many articles and books by holistic-minded LL doctors of various degrees who all have this basic approach in common:

Understanding of the importance of addressing the infection(s) fully head-on with specific measures from all corners of medicine;

knowing which supplements have direct impact, which are only support and which are both.

You can compare and contrast many approaches.

BASIC HERBAL EDUCATIONAL & SAFETY links,

BODY WORK links with safety tailored to lyme patients . . .
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