This is topic Experience with CCSVI/Atlanta Access Care in forum Medical Questions at LymeNet Flash.


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Posted by amydee (Member # 34832) on :
 
Hi. Considering a CCSVI procedure at Access Care in Atlanta. I was screened by CCSVI Atlanta.

Any input anyone has would be appreciated.

Thanks in advance!
 
Posted by poppy (Member # 5355) on :
 
Seems like there have been posts here before about this procedure, and the bottom line was that it helped temporarily.
 
Posted by CD57 (Member # 11749) on :
 
Amy what did they find on your eval?

There have been a few people who have done it that I know of. All felt better but it didn't seem to last.
 
Posted by amydee (Member # 34832) on :
 
CD57-I had a Doppler Evaluation done by CCSVI Atlanta which had 5 parameters set for diagnosing CCSVI. To be considered positive for the condition you needed to meet only 2 of the parameters. I met 4 out of the 5.

Reflux in the Deep Cerebral Vein, Stenosis in the right Internal Jugular Vein with valve abnormalities bilaterally, no flow in the left mid internal jugular vein and negative change of flow in the cross section area of the right jugular vein.

Poppy-Yes I have done searches and it seems to be a mixed bag on the results. I am still considering if this is even an option that I want to pursue. Not to mention the cost. $7000.
 
Posted by MichaelTampa (Member # 24868) on :
 
I feel like it has lasted for me. I do believe the key is significant treatment of biofilm prior to the surgery, and really keeping up with it afterward. (FYI, my experience was not in Atlanta, the place being asked about, I went somewhere else.)

My health insurance substantially covered the cost, I ended up paying about $1,000 out of pocket.
 
Posted by CD57 (Member # 11749) on :
 
Michael, was there any downside?
 
Posted by amydee (Member # 34832) on :
 
Thank you Michael. Would you care to share what you did for biofilm treatment before and after treatment??

Was this treatment something your LLMD recommended or something you did on your own.
 
Posted by MichaelTampa (Member # 24868) on :
 
On the downside, I saw the risk of something going wrong during the surgery or in the month following where a clot could form, that kind of thing. Nothing bad did happen as it turned out, but certainly there's a risk.

Another downside is while the doppler test is not that intrusive, the other test I had done was MRI with gadolinium injection, and that's a good bit of radiation. I was dragging for two weeks following that MRI.

I treated biofilm heavily with cistus incanus tea, Rechts Regulat, and serrapeptase, for many months before this surgery. And also treated parasites with herbs and a number of full moon rounds of Rx antiparasitics (the Dr. K. protocol with biltricide, pyr pam and ivermectin, albenza, alinia). I also did a few months of the Dr. F. extremely low fat diet before the surgery. Low-fat and antiparasite treatments, to me, fall in the biofilm treatment category.

Following the surgery, just more of the same stuff. Just recently, now 18 months after the surgery, I am doing other things J. D. protocol of salt baths (spirit-repair.com), and also clay baths from L L Magnetic Clay (magneticclay.com). These are intended as detox, and the clay ones theoretically focus on heavy metals (they have a mercury formula, a lead/copper formula, and lots of other cool formulas). I find them enormously powerful and also seem to shake loose things and ready another layer of biofilm for removal. I have recently dropped taking the cistus incanus tea, it seems to be less useful and seems to be more problematic on the dental front.

No, my LLMD did not recommend it. It happened a few months after my body said enough with the abx, so I really wasn't going to the LLMD during that time period, for him to give an opinion on, one way or ther other.
 
Posted by amydee (Member # 34832) on :
 
Thanks Michael. Sent you a PM
 
Posted by GiGi (Member # 259) on :
 
CCSVI worked well for me to the extent that we have many miles of venous system. Not all can be reached with the CCSVI intervention - it is impossible. So biofilm is an ongoing task.

I find MMS to work the best ever and it also neutralizes the heavy metals as well as the bacteria, virus, candida, parasites, etc. that is hiding in the biofilm.

MMS kills pathogens through oxidation. And if done right, it is about the easiest thing I have ever done. Learn about it before you have the Intervention. I wish I had.

Google "CCSVI three years later" or similar - it gives you more to think about.

Take care.
 


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