I have been a lurker for about a year now and thought I would get everyone�s opinion on my issues. This has been a great source of information!
I have had blood test and all that comes up is a low positive ANA.
-Developed mastitis 3 month post partum- Given antibiotics for two weeks. During the course of antibiotics
-Felt run down
-Cracking joints
-Achy muscles, tendons and bones
-Right hip hurts on a daily basis!
Then a few weeks later everything else unfolded and has over the past year�.
-Had one severe headache with nausea every time I sat up
-A few weeks later developed burning in the feet BAD!
-Burning/hot hands with mottling
-Burning inner ears
-Burning tip of tongue
-Anxiety
-Flushing hot rash that covered chest, neck, cheeks and nose (not sun sensitive)
-Twitching of upper left area of nose/eye
-Twitching then spread to full body �popcorn like� feeling
-Pounding or twitching in left ear
-Occasional stumbling over words
-Rashes on sides of first fingers that come and go
-Slight numbness in both calves
-Right ear occasions has �whoosh� sound
-Upper abdominal pain
-Slight swelling between first and second knuckle
This is the order in which they appeared. Some of these symptoms have stayed and some show up every now and then.
The Rhuemy said it doesn�t look like Lupus at all even though my face was flushed.
The Neuro said that my symptoms did not look like MS.
I am most concerned with the postive ANA and the fact that it happened post partum. Wouldn�t that indicate autoimmune and not Lyme? So confusing...
Before all this I was extremely healthy and active. I am an avid outdoors person and have camped in other states as well.
I am on schedule for an LLMD in June. I hope I find answers. I am researching daily!
Posted by Keebler (Member # 12673) on :
- Just about everyone with lyme has ANA abnormalities on tests. Lyme causes all kinds of turmoil with the immune system, it gets flipped on its head, nearly literally.
What should be up is down and what should be down is up. Only an LLMD will know this and know how to proceed.
Drop the neurologist.
Drop the rheumatologist.
Glad you are on a list for a LLMD in June. Hope they are ILADS connected. Hope you got good references for your choice. Just to be sure. -
Posted by Keebler (Member # 12673) on :
See listener comments, too. They show us how very wrong of the ID (Infectious Disease) doctor who was interviewed. Very typical, though, and why ID doctors are not the ones who help those with lyme.
Neurologists & rheumatolgists also follow the same umbrella group (IDSA) that ignores lyme and discounts those who have it.
Making the most of your LLMD visit -
Posted by Keebler (Member # 12673) on :
- Are you currently breast feeding? Sounds like your baby is about a year old?
When you see the LLMD be sure to inform her or him of your baby and history of the antibiotics making you worse. That could have been a herxheimer (a sign of lyme toxin overload) . . .
. . . and if you had lyme during pregnancy - or during breast feeding - it can be passed on to the baby.
I want to find a nice way to turn this around but am just too tired to figure that out. will come back with just another set of links that comes to mind.
take care -
Posted by Keebler (Member # 12673) on :
LIVER & KIDNEY SUPPORT & and several HERXHEIMER support links, too. -
Posted by Keebler (Member # 12673) on :
- Take photos of any rashes you get. If you have past rash photos, save them for your LLMD.
Avoid steroids, even topical steroid creams.
Do not agree to a "lumbar puncture" (spinal tap) as a test if suggested by any other doctor.
Start taking some good PROBIOTICS now.
Call the LLMDs office and ask if there is an article, a book, any list of supplements or diet that can help as you wait for the June appt.
Be sure to inform them if you are breast feeding as that matters with supplement choices.
ASK them if continuing to breast feed (if doing so now) is okay.
Ask their preference of PROBIOTICS for you now.
Get on their cancellation list. -
Posted by Lymetoo (Member # 743) on :
Welcome!!
Moving this to Medical Questions where you will get more help.
Posted by rkbb2004 (Member # 40070) on :
I stopped breast feeding after I started getting sicker and sicker. I thought maybe getting my body back to a normal state would make this all go away. Not so much....
I do understand that the baby could have it as well...IF I get diagnosed. I feel like my whole life is holding out til the next appt. only to find nothing.
Posted by Lymetoo (Member # 743) on :
![[Smile]](smile.gif)