I'm back to about 85% functioning, thanks to several rounds of IV treatment and about 2 years now of treatment all together.
But it seems like every time I get close to kicking it entirely, something lapses and I backslide a bit.
We tried to start stepping down my dosages (I'm on Zith and Flagyl now, so we just went from 3 a day on the Flagyl to 2 a day, to 1 a day). When I hit 1 a day, my joint pain started creeping back. So, ok, we move it back up to 2.
But since I started it again... my joint pain did improve, but it's like it brought back these other weird symptoms that I haven't had in months. Seems to be largely neuro stuff - dizziness, chorea - but also some muscle weakness and headaches.
Was just wondering if anyone else has had issues like this. That last 15% is just proving to be really elusive. I am doing what I can by being consistent with my diet and exercise, getting enough water, the usual.
Posted by joalo (Member # 12752) on :
Up.
Posted by OtterJ (Member # 30701) on :
ladycakes, are you just treating the lyme, or have you also treated for coinfections? I have treated lyme only to have bart or babs to rear their ugly little heads.
Posted by kgg (Member # 5867) on :
Unfortunately, it sounds like you are not done yet. These bugs are tenacious.